Sickle Cell Disease Association Of America Inc
- Assets
- $2.0m
- Revenue
- $1.1m
- Investments
- $517.4k
- Employees
- 5
- Location
- Hanover, MD
- Founding
- 09/1972
- Data as of
- 12/2022
- EIN
- 23-7175985
Organization Overview
Sickle Cell Disease Association Of America Inc is located in Hanover, MD. The organization was established in 1972. According to its NTEE Classification (G20) the organization is classified as: Birth Defects & Genetic Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 12/2022, Sickle Cell Disease Association Of America Inc employed 5 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Sickle Cell Disease Association Of America Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2022, Sickle Cell Disease Association Of America Inc generated $1.1m in total revenue. This represents a relatively dramatic decline in revenue. Over the past 8 years, the organization has seen revenues fall by an average of (5.9%) each year. All expenses for the organization totaled $1.3m during the year ending 12/2022. As we would expect to see with falling revenues, expenses have declined by (4.3%) per year over the past 8 years. You can explore the organizations financials more deeply in the financial statements section below.
Since 2015, Sickle Cell Disease Association Of America Inc has awarded 113 individual grants totaling $10,274,408. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2022
Describe the Organization's Mission:
Part 3 - Line 1
TO ADVOCATE FOR PEOPLE AFFECTED BY SICKLE CELL CONDITIONS AND EMPOWER COMMUNITY-BASED ORGANIZATIONS.
Describe the Organization's Program Activity:
Part 3 - Line 4a
HRSA: TO PROVIDE A NEWBORN SCREENING FOLLOW-UP PROGRAM THAT ENSURES ACCESS TO CARE FOR INDIVIDUALS WITH SICKLE CELL DISEASE (SCD). IT INCLUDES PROVIDING FOLLOW-UP SERVICES: EDUCATION, COUNSELING, LEAD ADVOCACY INITIATIVES, AND ACCESS TO MEDICAL HOME.
SCDAA: SCDAA AND ITS MEMBER ORGANIZATIONS ENGAGE IN COMMUNITY OUTREACH AND PROGRAM EFFORTS THROUGHOUT THE UNITED STATES AND CANADA. THESE EFFORTS INCLUDE BUT NOT LIMITED TO: EDUCATIONAL CAMPAIGNS THAT BUILD AWARENESS OF SCD AND RELATED CONDITIONS AND PROGRAMS THAT PROVIDE SERVICES SUCH AS GENETIC TESTING AND COUNSELING, CASE MANAGEMENT, AND PSYCHOSOCIAL SUPPORT FOR INDIVIDUALS AND FAMILIES IMPACTED BY SICKLE CELL DISEASE.
PCORI: TO DEVELOP A NATIONAL ADVOCATE NETWORK OF SICKLE CELL DISEASE PATIENTS, FAMILIES, CAREGIVERS AND OTHER STAKEHOLDERS EXPERTS THAT CAN PARTNER WITH CLINICIANS AND RESEARCHERS TO DESIGN, IMPLEMENT AND EVENTUALLY DISSEMINATE PATIENT CENTERED OUTCOMES RESEARCH AND COMPARATIVE EFFECTIVENESS RESEARCH (PCOR/CER) PROJECTS THAT IMPROVE OUTCOMES TO PATIENTS WITH SICKLE CELL DISEASE (SCD).
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
David N Braxton PHD Chair | OfficerTrustee | 5 | $0 |
Ed Folwers Treasurer | OfficerTrustee | 5 | $0 |
Jakela Parker Vice Chair | OfficerTrustee | 5 | $0 |
Genice T Nelson Dnp Aprn Secretary | OfficerTrustee | 5 | $0 |
Biree Andemarian MD Chief Medical Officer | Trustee | 5 | $0 |
Lewis Hsu MD Vice Chief Medical Officer | Trustee | 5 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $4,500 |
| Fundraising events | $9,663 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $515,113 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $529,276 |
| Total Program Service Revenue | $666,861 |
| Investment income | -$96,347 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $1,104,795 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $477,853 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $54,700 |
| Payroll taxes | $40,502 |
| Fees for services: Management | $45,000 |
| Fees for services: Legal | $29,467 |
| Fees for services: Accounting | $7,065 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $0 |
| Advertising and promotion | $0 |
| Office expenses | $31,537 |
| Information technology | $101,987 |
| Royalties | $0 |
| Occupancy | $81,320 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $26,487 |
| Interest | $7,761 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $0 |
| All other expenses | $0 |
| Total functional expenses | $1,342,644 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $1,203,156 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $186,864 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $4,212 |
| Prepaid expenses and deferred charges | $8,991 |
| Net Land, buildings, and equipment | $26,962 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $517,411 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $4,574 |
| Total assets | $1,952,170 |
| Accounts payable and accrued expenses | $95,765 |
| Grants payable | $0 |
| Deferred revenue | $37,780 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $121,427 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $254,972 |
| Net assets without donor restrictions | $1,697,198 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $1,952,170 |
Grants Awarded
Over the last fiscal year, Sickle Cell Disease Association Of America Inc has awarded $0 in support to 8 organizations.
| Grant Recipient | Amount |
|---|---|
CENTRAL ALABAMA CHAPTER OF THE SICKLE CELL FOUNDATION PURPOSE: 4000 | $0 |
PIEDMONT HEALTH SERVICES AND SICKLE CELL AGENCY PURPOSE: 4500 | $0 |
OHIO SICKLE CELL AND HEALTH ASSOCIATION PURPOSE: 4500 | $0 |
SCDAA-MICHIGAN CHAPTER INC PURPOSE: 4000 | $0 |
CENTRAL ALABAMA CHAPTER OF THE SICKLE CELL FOUNDATION PURPOSE: 4000 | $0 |
SCDAA-MICHIGAN CHAPTER INC PURPOSE: 4000 | $0 |