Prisms Inc is located in Herndon, VA. The organization was established in 2000. According to its NTEE Classification (G20) the organization is classified as: Birth Defects & Genetic Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 12/2023, Prisms Inc employed 2 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Prisms Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2023, Prisms Inc generated $420.6k in total revenue. This organization has experienced exceptional growth, as over the past 7 years, it has increased revenue by an average of 12.8% each year . All expenses for the organization totaled $274.8k during the year ending 12/2023. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
PRISMS IS DEDICATED TO PROVIDING INFORMATION AND SUPPORT TO FAMILIES OF PERSONS WITH SMS, SPONSORING RESEARCH AND FOSTERING PARTNERSHIPS WITH PROFESSIONALS TO INCREASE AWARENESS AND UNDERSTANDING OF SMS.
Describe the Organization's Program Activity:
Part 3 - Line 4a
PRISMS PROVIDES SUPPORT TO OUR SMS COMMUNITY IN A NUMBER OF WAYS IN INCLUDING PHONE AND EMAIL SUPPORT, INFORMATION SHARING NEWSLETTERS, ANNUAL REPORTS, WEBINARS, AWARENESS MATERIALS, INFORMATIONAL PACKETS, AND A SHARED COMMUNITY FACEBOOK GROUP FOR FAMILY SUPPORT. PRISMS ALSO OFFERS GUIDEBOOKS ON TOPICS SUCH AS MEDICAL MANAGEMENT GUIDELINES, CONSTIPATION, BEHAVIOR, AND RESIDENTIAL LIVING. WE PROVIDE AN ONLINE STORE WHERE OUR COMMUNITY CAN PURCHASE PRISMS MERCHANDISE AS WELL AS THE BOOK ON THE ROAD TO SUCCESS WITH SMS.
PRISMS USES SOCIAL MEDIA TO HELP SPREAD AWARENESS ABOUT SMITH-MAGENIS SYNDROME. PRISMS MAKES A PUSH ON RARE DISEASE DAY, PRISMS BIRTHDAY AND SMS AWARENESS DAY. PRISMS UTILIZES A REGIONAL REPRESENTATIVE PROGRAM AS AN OUTREACH PROGRAM COMPRISED OF VOLUNTEERS FROM SMS FAMILIES TO PROVIDE SUPPORT TO THOSE WHO HAVE BEEN NEWLY DIAGNOSED IN THEIR COMMUNITIES.
IN 2023, PRISMS CONTINUED TO SUPPORT THE PCRC PRISMS CLINICS AND RESEARCH CONSORTIUM. CLINICS WITHIN THE PCRC PROVIDE MULTI-SPECIALTY, COMPREHENSIVE, AND COMPASSIONATE CARE FOR PATIENTS WITH SMS. THE CLINICS PROVIDE FAMILIES AN OPPORTUNITY TO RECEIVE MEDICAL AND CLINICAL CARE AND TREATMENT RECOMMENDATIONS THAT THEY CAN CARRY HOME TO THEIR LOCAL PROVIDERS AND GET ANSWERS TO THEIR HEALTH CONCERNS ASSOCIATED WITH SMS. PRISMS CONTINUED FUNDING OF RESEARCH OF SMITH-MAGNEIS SYNDROME AT BAYLOR COLLEGE OF MEDICINE WITH A GRANT FOR THE PATIENT REGISTRY. THE PATIENT REGISTRY AIMS TO COLLECT ONGOING INFORMATION ABOUT INDIVIDUALS WITH SMS THROUGH AN ONLINE QUESTIONNAIRE PLATFORM. THE CLINIC TRAVEL FUND REIMBURSES CAREGIVERS FOR EXPENSES ASSOCIATED WITH TRAVEL TO AND FROM A SMS CLINIC. THIS HELPS TO ENSURE FAMILIES WILL SEEK OUT THE MOST QUALIFIED CARE. PRISMS ALSO PAID FOR A CLINIC COORDINATOR FOR PART OF THE YEAR.
Name (title) | Role | Hours | Compensation |
---|---|---|---|
Michelle Larscheid Com Mgr 012023-9 Executive Director 10/2023-12/2023 | Officer | 40 | $69,714 |
Casey Gorman Executive Director 1/2023-10/2023 | Officer | 40 | $60,837 |
Brandon Daniel President | OfficerTrustee | 5 | $0 |
Margaret Miller Vice President | OfficerTrustee | 5 | $0 |
Diane Erth Secretary | OfficerTrustee | 5 | $0 |
Percy Huston Treasurer | OfficerTrustee | 5 | $0 |
Statement of Revenue | |
---|---|
Federated campaigns | $0 |
Membership dues | $0 |
Fundraising events | $47,006 |
Related organizations | $0 |
Government grants | $0 |
All other contributions, gifts, grants, and similar amounts not included above | $361,959 |
Noncash contributions included in lines 1a–1f | $3,288 |
Total Revenue from Contributions, Gifts, Grants & Similar | $408,965 |
Total Program Service Revenue | $0 |
Investment income | $8,212 |
Tax Exempt Bond Proceeds | $0 |
Royalties | $0 |
Net Rental Income | $0 |
Net Gain/Loss on Asset Sales | $0 |
Net Income from Fundraising Events | -$2,638 |
Net Income from Gaming Activities | $0 |
Net Income from Sales of Inventory | $6,082 |
Miscellaneous Revenue | $0 |
Total Revenue | $420,621 |
Statement of Expenses | |
---|---|
Grants and other assistance to domestic organizations and domestic governments. | $0 |
Grants and other assistance to domestic individuals. | $0 |
Grants and other assistance to Foreign Orgs/Individuals | $0 |
Benefits paid to or for members | $0 |
Compensation of current officers, directors, key employees. | $130,551 |
Compensation of current officers, directors, key employees. | $26,836 |
Compensation to disqualified persons | $0 |
Other salaries and wages | $0 |
Pension plan accruals and contributions | $0 |
Other employee benefits | $0 |
Payroll taxes | $10,877 |
Fees for services: Management | $0 |
Fees for services: Legal | $0 |
Fees for services: Accounting | $20,845 |
Fees for services: Lobbying | $0 |
Fees for services: Fundraising | $8,000 |
Fees for services: Investment Management | $0 |
Fees for services: Other | $24,524 |
Advertising and promotion | $0 |
Office expenses | $2,722 |
Information technology | $9,008 |
Royalties | $0 |
Occupancy | $0 |
Travel | $19,274 |
Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
Conferences, conventions, and meetings | $19,695 |
Interest | $0 |
Payments to affiliates | $0 |
Depreciation, depletion, and amortization | $0 |
Insurance | $3,832 |
All other expenses | $11,420 |
Total functional expenses | $274,778 |
Balance Sheet | |
---|---|
Cash—non-interest-bearing | $230,835 |
Savings and temporary cash investments | $0 |
Pledges and grants receivable | $2,750 |
Accounts receivable, net | $0 |
Loans from Officers, Directors, or Controlling Persons | $0 |
Loans from Disqualified Persons | $0 |
Notes and loans receivable | $0 |
Inventories for sale or use | $972 |
Prepaid expenses and deferred charges | $7,861 |
Net Land, buildings, and equipment | $0 |
Investments—publicly traded securities | $433,353 |
Investments—other securities | $0 |
Investments—program-related | $0 |
Intangible assets | $0 |
Other assets | $15,583 |
Total assets | $691,354 |
Accounts payable and accrued expenses | $2,859 |
Grants payable | $18,750 |
Deferred revenue | $0 |
Tax-exempt bond liabilities | $0 |
Escrow or custodial account liability | $0 |
Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
Secured mortgages and notes payable | $0 |
Unsecured mortgages and notes payable | $0 |
Other liabilities | $0 |
Total liabilities | $21,609 |
Net assets without donor restrictions | $658,238 |
Net assets with donor restrictions | $11,507 |
Capital stock or trust principal, or current funds | $0 |
Paid-in or capital surplus, or land, building, or equipment fund | $0 |
Retained earnings, endowment, accumulated income, or other funds | $0 |
Total liabilities and net assets/fund balances | $691,354 |
Over the last fiscal year, Prisms Inc has awarded $160,000 in support to 2 organizations.
Grant Recipient | Amount |
---|---|
BAYLOR COLLEGE OF MEDICINE PURPOSE: genetic counselor compensation | $10,000 |
UNIVERSITY OF MICHIGAN MEDICAL SCHOOL PURPOSE: SMS related research | $150,000 |