Prisms Inc

Organization Overview

Prisms Inc is located in Herndon, VA. The organization was established in 2000. According to its NTEE Classification (G20) the organization is classified as: Birth Defects & Genetic Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 12/2023, Prisms Inc employed 2 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Prisms Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 12/2023, Prisms Inc generated $420.6k in total revenue. This organization has experienced exceptional growth, as over the past 7 years, it has increased revenue by an average of 12.8% each year . All expenses for the organization totaled $274.8k during the year ending 12/2023. You can explore the organizations financials more deeply in the financial statements section below.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2023

Describe the Organization's Mission:

Part 3 - Line 1

PRISMS IS DEDICATED TO PROVIDING INFORMATION AND SUPPORT TO FAMILIES OF PERSONS WITH SMS, SPONSORING RESEARCH AND FOSTERING PARTNERSHIPS WITH PROFESSIONALS TO INCREASE AWARENESS AND UNDERSTANDING OF SMS.

Describe the Organization's Program Activity:

Part 3 - Line 4a

PRISMS PROVIDES SUPPORT TO OUR SMS COMMUNITY IN A NUMBER OF WAYS IN INCLUDING PHONE AND EMAIL SUPPORT, INFORMATION SHARING NEWSLETTERS, ANNUAL REPORTS, WEBINARS, AWARENESS MATERIALS, INFORMATIONAL PACKETS, AND A SHARED COMMUNITY FACEBOOK GROUP FOR FAMILY SUPPORT. PRISMS ALSO OFFERS GUIDEBOOKS ON TOPICS SUCH AS MEDICAL MANAGEMENT GUIDELINES, CONSTIPATION, BEHAVIOR, AND RESIDENTIAL LIVING. WE PROVIDE AN ONLINE STORE WHERE OUR COMMUNITY CAN PURCHASE PRISMS MERCHANDISE AS WELL AS THE BOOK ON THE ROAD TO SUCCESS WITH SMS.


PRISMS USES SOCIAL MEDIA TO HELP SPREAD AWARENESS ABOUT SMITH-MAGENIS SYNDROME. PRISMS MAKES A PUSH ON RARE DISEASE DAY, PRISMS BIRTHDAY AND SMS AWARENESS DAY. PRISMS UTILIZES A REGIONAL REPRESENTATIVE PROGRAM AS AN OUTREACH PROGRAM COMPRISED OF VOLUNTEERS FROM SMS FAMILIES TO PROVIDE SUPPORT TO THOSE WHO HAVE BEEN NEWLY DIAGNOSED IN THEIR COMMUNITIES.


IN 2023, PRISMS CONTINUED TO SUPPORT THE PCRC PRISMS CLINICS AND RESEARCH CONSORTIUM. CLINICS WITHIN THE PCRC PROVIDE MULTI-SPECIALTY, COMPREHENSIVE, AND COMPASSIONATE CARE FOR PATIENTS WITH SMS. THE CLINICS PROVIDE FAMILIES AN OPPORTUNITY TO RECEIVE MEDICAL AND CLINICAL CARE AND TREATMENT RECOMMENDATIONS THAT THEY CAN CARRY HOME TO THEIR LOCAL PROVIDERS AND GET ANSWERS TO THEIR HEALTH CONCERNS ASSOCIATED WITH SMS. PRISMS CONTINUED FUNDING OF RESEARCH OF SMITH-MAGNEIS SYNDROME AT BAYLOR COLLEGE OF MEDICINE WITH A GRANT FOR THE PATIENT REGISTRY. THE PATIENT REGISTRY AIMS TO COLLECT ONGOING INFORMATION ABOUT INDIVIDUALS WITH SMS THROUGH AN ONLINE QUESTIONNAIRE PLATFORM. THE CLINIC TRAVEL FUND REIMBURSES CAREGIVERS FOR EXPENSES ASSOCIATED WITH TRAVEL TO AND FROM A SMS CLINIC. THIS HELPS TO ENSURE FAMILIES WILL SEEK OUT THE MOST QUALIFIED CARE. PRISMS ALSO PAID FOR A CLINIC COORDINATOR FOR PART OF THE YEAR.


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Board, Officers & Key Employees

Name (title)Compensation
Michelle Larscheid Com Mgr 012023-9
Executive Director 10/2023-12/2023
$69,714
Casey Gorman
Executive Director 1/2023-10/2023
$60,837
Brandon Daniel
President
$0
Margaret Miller
Vice President
$0
Diane Erth
Secretary
$0
Percy Huston
Treasurer
$0

Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$0
Fundraising events$47,006
Related organizations$0
Government grants $0
All other contributions, gifts, grants, and similar amounts not included above$361,959
Noncash contributions included in lines 1a–1f $3,288
Total Revenue from Contributions, Gifts, Grants & Similar$408,965
Total Program Service Revenue$0
Investment income $8,212
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $0
Net Income from Fundraising Events -$2,638
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $6,082
Miscellaneous Revenue$0
Total Revenue $420,621

Grants Awarded

Over the last fiscal year, Prisms Inc has awarded $160,000 in support to 2 organizations.

Grant RecipientAmount

BAYLOR COLLEGE OF MEDICINE

PURPOSE: genetic counselor compensation

$10,000

UNIVERSITY OF MICHIGAN MEDICAL SCHOOL

PURPOSE: SMS related research

$150,000
View Grant Profile

Peer Organizations

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Organization Of Teratology Information Specialists Nfp
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$1,674,568
American Board Of Medical Genetics And Genomics Inc
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$1,137,838
Sickle Cell Disease Association Of America Inc
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Stxbp1 Foundation
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Dada2 Foundation
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United Hemophilia Foundation
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$242,991
Moji Coffee And More
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$276,894
The Walter E Boehm Birth Defects Center Inc
Chattanooga, TN
$164,169
Prisms Inc
Herndon, VA
$420,621
Bow Foundation
Charlottesville, VA
$370,375
Cdh International
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$213,512
Gene And Florence Monday Foundation
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$200,696
Kentucky Hemophilia Foundation Inc
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Faith For Hayden Inc
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$175,199

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