National Mps Society Inc

Organization Overview

National Mps Society Inc is located in Durham, NC. The organization was established in 1986. According to its NTEE Classification (G20) the organization is classified as: Birth Defects & Genetic Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 12/2023, National Mps Society Inc employed 11 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. National Mps Society Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 12/2023, National Mps Society Inc generated $2.3m in total revenue. This represents relatively stable growth, over the past 8 years the organization has increased revenue by an average of 3.5% each year. All expenses for the organization totaled $2.8m during the year ending 12/2023. While expenses have increased by 7.5% per year over the past 8 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.

Since 2016, National Mps Society Inc has awarded 50 individual grants totaling $2,608,833. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2023

Describe the Organization's Mission:

Part 3 - Line 1

THE NATIONAL MPS SOCIETY EXISTS TO CURE, SUPPORT, AND ADVOCATE FOR MUCOPOLYSACCHARIDOSIS (MPS) AND MUCOLIPIDOSIS (ML).

Describe the Organization's Program Activity:

Part 3 - Line 4a

THE SOCIETY FUNDED APPROXIMATELY 9 RESEARCH GRANTS DURING 2023 FOR THE PURPOSE OF FINDING TREATMENTS AND CURES FOR MPS AND RELATED DISEASES.


THE SOCIETY PROVIDED MEDICAL EQUIPMENT SCHOLARSHIPS, FUNERAL EXPENSE GRANTS, EDUCATION SCHOLARSHIPS, MEDICAL TRAVEL & EXTENDED HOSPITAL STAY ASSISTANCE, AND TRAVEL TO CONFERENCES SCHOLARSHIPS FOR THE PURPOSE OF PROVIDING FAMILY SUPPORT FOR PEOPLE AND THEIR FAMILIES WHO ARE IN SOME WAY AFFECTED BY MPS.


THE SOCIETY PROVIDED INFORMATION SERVICES AND EDUCATIONAL SUPPORT FOR AFFECTED FAMILIES (NEWSLETTERS, SYNDROME BOOKLETS, FACT SHEETS, WEBSITE, DIRECTORY) AND INCREASED PUBLIC AWARENESS OF THESE RARE GENETIC DISEASES (CONFERENCES & ADVOCACY).


Get More from Intellispect for FreeCreate a free account to get more data, nonprofit salaries, advanced search and more.

Board, Officers & Key Employees

Name (title)Compensation
Matthew Ellinwood
Cso
$162,589
Terri Klein
President &
$130,785
Nicole Bennett
Director
$0
Maureen Cote
Secretary
$0
Stephanie Cozine
Director
$0
Tamara Cullere
Director
$0

Financial Statements

Statement of Revenue
Federated campaigns$3,589
Membership dues$2,150
Fundraising events$787,499
Related organizations$0
Government grants $0
All other contributions, gifts, grants, and similar amounts not included above$977,793
Noncash contributions included in lines 1a–1f $3,318
Total Revenue from Contributions, Gifts, Grants & Similar$1,771,031
Total Program Service Revenue$451,952
Investment income $124,182
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales -$16,220
Net Income from Fundraising Events -$34,286
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $2,296,659

Grants Awarded

Over the last fiscal year, National Mps Society Inc has awarded $369,242 in support to 7 organizations.

Grant RecipientAmount

IOWA STATE UNIVERSITY

PURPOSE: MEDICAL RESEARCH

$27,709

UNIVERSITY OF MINNESOTA FOUNDATION

PURPOSE: MEDICAL RESEARCH

$25,000

TRUSTEES OF UNIVERSITY OF PA

PURPOSE: MEDICAL RESEARCH

$75,000

REGENTS OF THE UNIV OF MINNESOTA

PURPOSE: MEDICAL RESEARCH

$41,533

THE NEMOURS FOUNDATION

PURPOSE: MEDICAL RESEARCH

$50,000

RESEARCH TRIANGLE INSTITUTE

PURPOSE: MEDICAL RESEARCH

$100,000
View Grant Profile

Peer Organizations

Create an account to unlock the data you need.

or