Stxbp1 Foundation
- Assets
- $1.4m
- Revenue
- $735.5k
- Investments
- $0.0
- Employees
- 0
- Location
- Holly Springs, NC
- Founding
- 05/2017
- Data as of
- 12/2023
- EIN
- 82-1439459
Organization Overview
Stxbp1 Foundation is located in Holly Springs, NC. The organization was established in 2017. According to its NTEE Classification (G20) the organization is classified as: Birth Defects & Genetic Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Stxbp1 Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2023, Stxbp1 Foundation generated $735.5k in total revenue. This organization has experienced exceptional growth, as over the past 5 years, it has increased revenue by an average of 47.3% each year . All expenses for the organization totaled $1.3m during the year ending 12/2023. You can explore the organizations financials more deeply in the financial statements section below.
Since 2021, Stxbp1 Foundation has awarded 14 individual grants totaling $845,812. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
TO CREATE AWARENESS IN THE DISORDERS ASSOCIATED WITH STXBP1 MUTATIONS. FUND AND DRIVE RESEARCH DISCOVERY OF A CURE. PROVIDE FAMILIES WITH TOOLS TO HELP THEM UNDERSTAND THE DISEASE & HOW TO GET INVOLVED. ADVOCATE TO IMPROVE EARLY DETECTION. FOSTER ACTIVISM TO HELP CHANGE POLICIES IN FAVOR OF ORPHANED DISEASES. IMPROVE THE LIVES OF OUR STXBP1 FAMILIES.
Describe the Organization's Program Activity:
Part 3 - Line 4a
FUNDED MULTIPLE PRECLINICAL GRANTS TO VARIOUS ORGANIZATIONS TO FURTHER RESEARCH AROUND STXBP1
HOSTED IN PERSON STXBP1 SUMMIT+ TO UPDATE FAMILIES ON CURRENT RESEARCH AS WELL AS PROVIDE ADDITIONAL RESOURCES TO BE USED IN EVERYDAY LIFE
LAUNCHED A LONGITUDINAL MULTI SITE NATURAL HISTORY STUDY FOR PATIENTS.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Charlene Son Rigby President | OfficerTrustee | 30 | $0 |
Melissa Hioco Director, Development | OfficerTrustee | 30 | $0 |
Jacqueline Steinberg Vice President & Scientifi | OfficerTrustee | 10 | $0 |
Heather Jones Treasurer | OfficerTrustee | 15 | $0 |
Jennifer Clatterbuck Director, Community Engage | OfficerTrustee | 5 | $0 |
Russ Novy Director, Marketing & Bran | OfficerTrustee | 5 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $47,044 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $647,448 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $694,492 |
| Total Program Service Revenue | $0 |
| Investment income | $41,035 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $735,527 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $385,588 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $38,715 |
| Fees for services: Accounting | $9,655 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $716,925 |
| Advertising and promotion | $5,538 |
| Office expenses | $414 |
| Information technology | $4,034 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $151,177 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $0 |
| All other expenses | $0 |
| Total functional expenses | $1,323,859 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $1,337,910 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $26,405 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $3,304 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $1,367,619 |
| Accounts payable and accrued expenses | $349,521 |
| Grants payable | $0 |
| Deferred revenue | $5,000 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $354,521 |
| Net assets without donor restrictions | $1,013,098 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $1,367,619 |
Grants Awarded
Over the last fiscal year, Stxbp1 Foundation has awarded $385,587 in support to 6 organizations.
| Grant Recipient | Amount |
|---|---|
UNIVERSITY OF PENNSYLVANIA - HELLER LAB PURPOSE: TO FUND RESEARCH | $38,688 |
CHILDREN'S HOSPITAL OF PHILADELPHIA PURPOSE: TO FUND RESEARCH | $50,000 |
WEILL CORNELL MEDICINE PURPOSE: TO FUND CLINICAL TRIAL | $82,500 |
CHILDREN'S HOSPITAL COLORADO PURPOSE: TO FUND RESEARCH | $104,399 |
UPLIIFTING ATHLETES PURPOSE: TO FUND RESEARCH | $10,000 |
BAYLOR COLLEGE OF MEDICINE PURPOSE: TO FUND RESEARCH | $100,000 |