Kentucky Hemophilia Foundation Inc is located in Louisville, KY. The organization was established in 1997. According to its NTEE Classification (G20) the organization is classified as: Birth Defects & Genetic Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 06/2021, Kentucky Hemophilia Foundation Inc employed 3 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Kentucky Hemophilia Foundation Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 06/2020, Kentucky Hemophilia Foundation Inc generated $252.4k in total revenue. This represents a relatively dramatic decline in revenue. Over the past 6 years, the organization has seen revenues fall by an average of (5.8%) each year. All expenses for the organization totaled $262.7k during the year ending 06/2020. As we would expect to see with falling revenues, expenses have declined by (1.0%) per year over the past 6 years. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2020
Describe the Organization's Mission:
Part 3 - Line 1
TO PROVIDE EDUCTION AND EMPOWERMENT CONCERNING THE TREATMENT OF BLEEDING DISORDERS.
Describe the Organization's Program Activity:
Part 3 - Line 4a
ADVOCACY DAY IS AN ANNUAL EVENT AT THE STATE CAPITOL TO EDUCATE LEGISLATORS ABOUT THE NEEDS AND CONCERNS OF KENTUCKY'S BLEEDING DISORDERS COMMUNITY AND EMPHASIZE THE NEED FOR PATIENT ASSISTANCE PROGRAMS AND THE IMPORTANCE OF ACCESS TO HEALTH CARE.
THE ANNUAL FAMILY INFORMATION AND SUPPORT DAY AT THE LOUISVILLE ZOO PROVIDES AN OPPORTUNITY FOR FAMILIES AFFECTED BY BLEEDING DISORDERS TO OBTAIN CUTTING EDGE INFORMATION ABOUT AVAILABLE FACTOR PRODUCTS AND ANCILLARY SERVICES AND HAVE AN OPPORTUNITY TO MEET AND GET ACQUAINTED WITH OTHER FAMILIES FOR SUPPORT.
SEE SCHEDULE O
Name (title) | Role | Hours | Compensation |
---|---|---|---|
Ursela Kamala Executive Director | Officer | 40 | $77,884 |
Cory Meadows Board Member & President | OfficerTrustee | 1 | $0 |
Brad Comer Board Member & Treasurer | OfficerTrustee | 1 | $0 |
Laura Webb Board Member & Vice President | OfficerTrustee | 1 | $0 |
Bradley Woods Board Member & Secretary | OfficerTrustee | 1 | $0 |
Roeland Hartmans Board Member | Trustee | 1 | $0 |
Statement of Revenue | |
---|---|
Total Revenue from Contributions, Gifts, Grants & Similar | $153,837 |
Investment income | $1,198 |
Tax Exempt Bond Proceeds | $0 |
Royalties | $0 |
Net Rental Income | $0 |
Net Gain/Loss on Asset Sales | $0 |
Net Income from Fundraising Events | -$5,194 |
Net Income from Gaming Activities | $2,191 |
Net Income from Sales of Inventory | $0 |
Miscellaneous Revenue | $0 |
Total Revenue | $252,425 |
Statement of Expenses | |
---|---|
Grants and other assistance to domestic individuals. | $0 |
Grants and other assistance to Foreign Orgs/Individuals | $0 |
Benefits paid to or for members | $0 |
Compensation of current officers, directors, key employees. | $76,007 |
Compensation to disqualified persons | $0 |
Other salaries and wages | $37,375 |
Pension plan accruals and contributions | $0 |
Other employee benefits | $607 |
Payroll taxes | $8,653 |
Fees for services: Management | $0 |
Fees for services: Legal | $0 |
Fees for services: Accounting | $12,057 |
Fees for services: Lobbying | $0 |
Fees for services: Fundraising | $0 |
Fees for services: Investment Management | $0 |
Fees for services: Other | $1,425 |
Advertising and promotion | $1,250 |
Office expenses | $18,920 |
Information technology | $0 |
Royalties | $0 |
Occupancy | $5,245 |
Travel | $2,256 |
Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
Conferences, conventions, and meetings | $0 |
Interest | $1,845 |
Payments to affiliates | $0 |
Depreciation, depletion, and amortization | $4,746 |
Insurance | $4,804 |
All other expenses | $0 |
Total functional expenses | $262,747 |
Balance Sheet | |
---|---|
Cash—non-interest-bearing | $413,404 |
Savings and temporary cash investments | $0 |
Pledges and grants receivable | $0 |
Accounts receivable, net | $21,038 |
Loans from Officers, Directors, or Controlling Persons | $0 |
Loans from Disqualified Persons | $0 |
Notes and loans receivable | $0 |
Inventories for sale or use | $0 |
Prepaid expenses and deferred charges | $16,104 |
Investments—publicly traded securities | $0 |
Investments—other securities | $0 |
Investments—program-related | $0 |
Intangible assets | $0 |
Other assets | $0 |
Total assets | $544,589 |
Accounts payable and accrued expenses | $17,674 |
Grants payable | $0 |
Deferred revenue | $37,947 |
Tax-exempt bond liabilities | $0 |
Escrow or custodial account liability | $0 |
Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
Secured mortgages and notes payable | $28,635 |
Unsecured mortgages and notes payable | $0 |
Other liabilities | $10,192 |
Total liabilities | $94,448 |
Net assets without donor restrictions | $0 |
Net assets with donor restrictions | $0 |
Capital stock or trust principal, or current funds | $0 |
Paid-in or capital surplus, or land, building, or equipment fund | $0 |
Total liabilities and net assets/fund balances | $450,141 |
Over the last fiscal year, we have identified 3 grants that Kentucky Hemophilia Foundation Inc has recieved totaling $14,159.
Awarding Organization | Amount |
---|---|
Hemophilia Alliance Foundation Lansdale, PA PURPOSE: PROMOTE HEMOPHILIA | $8,000 |
Whas Crusade For Children Inc Louisville, KY PURPOSE: FULL GRANT! $6,124.00 FOR ANY ITEM ON GRANT LIST FOR THE 2023 SUMMER CAMP PROGRAM FOR CHILDREN AND YOUTHS WITH BLEEDING DISORDERS - CABINS, FACILITIES RENTAL, USE OF POOL, SPORTS AND RECREATIONAL ACTIVITIES, INFIRMARY, WELLNESS, AND FITNESS MATERIALS, ETC. | $6,124 |
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $35 |
Organization Name | Assets | Revenue |
---|---|---|
Fort Sanders Perinatal Center Knoxville, TN | $10,128,344 | $20,892,841 |
United Cerebral Palsy Association Of Greater Cleveland Inc Cleveland, OH | $12,790,842 | $13,371,888 |
United Cerebral Palsy Heartland Berkeley, MO | $21,714,583 | $13,839,591 |
United Rehabilitation Services Of Greater Dayton Dayton, OH | $10,265,698 | $5,599,820 |
United Cerebral Palsy Center For Disability Services Joliet, IL | $3,735,483 | $3,150,628 |
National Association Of Neonatal Nurses Chicago, IL | $1,978,150 | $2,104,976 |
Cerebral Palsy Of Southwestern Illinois Fairview Heights, IL | $3,197,425 | $1,946,488 |
Reach Services Inc Terre Haute, IN | $2,911,645 | $1,297,496 |
Organization Of Teratology Information Specialists Nfp Brentwood, TN | $1,314,372 | $1,595,383 |
Fairfield Center For Disabilities And Cerebral Palsy Inc Lancaster, OH | $1,295,164 | $1,445,146 |
Midwest Asian Health Association - Maha Chicago, IL | $1,647,552 | $1,767,369 |
The Lyon Family Foundation Chicago, IL | $4,144,753 | $242,200 |