Genetic Alliance Inc
- Assets
- $1.2m
- Revenue
- $2.3m
- Investments
- $0.0
- Employees
- 13
- Location
- Damascus, MD
- Founding
- 11/1988
- Data as of
- 09/2021
- EIN
- 52-1571905
Organization Overview
Genetic Alliance Inc is located in Damascus, MD. The organization was established in 1988. According to its NTEE Classification (G20) the organization is classified as: Birth Defects & Genetic Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 09/2021, Genetic Alliance Inc employed 13 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Genetic Alliance Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 09/2021, Genetic Alliance Inc generated $2.3m in total revenue. This represents a relatively dramatic decline in revenue. Over the past 6 years, the organization has seen revenues fall by an average of (7.3%) each year. All expenses for the organization totaled $2.5m during the year ending 09/2021. As we would expect to see with falling revenues, expenses have declined by (7.1%) per year over the past 6 years. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
GENETIC ALLIANCE ENGAGES INDIVIDUALS, FAMILIES, AND COMMUNITIES TO TRANSFORM HEALTH.
Describe the Organization's Program Activity:
Part 3 - Line 4a
GENETIC ALLIANCE PROVIDES INTERACTIVE TOOLS TO CREATE, MANAGE AND DISSEMINATE INFORMATION TO EDUCATE INDIVIDUALS, FAMILIES AND COMMUNITIES. THE GOAL OF THIS WORK IS EMPOWERING INDIVIDUALS THROUGH GENETICS AND GENOMICS TO TAKE CHARGE OF THEIR HEALTH.
TRANSLATIONAL RESEARCH ENDEAVORS OF GENETIC ALLIANCE INCLUDE THE GENETIC ALLIANCE REGISTRY AND BIOBANK, A CROSS DISEASE CLINICAL DATA AND BIOLOGICAL SAMPLE REPOSITORY. THIS AREA ALSO INCLUDES PROGRAMS TO EXAMINE THE READINESS OF GENOMIC APPLICATIONS' INTEGRATION INTO HEALTH.
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PDF Copies of 990 Filings
Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Sharon F Terry President/ceo | OfficerTrustee | 40 | $251,000 |
Natasha Bonhomme Chief Strategy Officer | 40 | $167,000 | |
Shantanu Gaur Treasurer | OfficerTrustee | 1 | $0 |
Kemp Battle Secretary | Trustee | 1 | $0 |
Kelly Edwards PHD Director | Trustee | 1 | $0 |
Usama Malik Director | Trustee | 1 | $0 |
Outside Vendors & Contractors
| Vendor Name (Service) | Service Year | Compensation |
|---|---|---|
Lunapbc Inc Consulting | 9/29/20 | $163,300 |
Family Voices Consulting Newborn Screening | 9/29/20 | $111,171 |
Lunapbc Inc Consulting | 9/29/20 | $163,300 |
Family Voices Consulting Newborn Screening | 9/29/20 | $111,171 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $1,043,375 |
| All other contributions, gifts, grants, and similar amounts not included above | $115,057 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $1,158,432 |
| Total Program Service Revenue | $1,172,353 |
| Investment income | $45 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $2,331,033 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $520,118 |
| Compensation of current officers, directors, key employees. | $84,587 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $499,827 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $186,946 |
| Payroll taxes | $0 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $525 |
| Fees for services: Accounting | $23,602 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $358,344 |
| Advertising and promotion | $0 |
| Office expenses | $28,675 |
| Information technology | $162,627 |
| Royalties | $0 |
| Occupancy | $175,427 |
| Travel | $9,692 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $4,093 |
| Insurance | $0 |
| All other expenses | $54,663 |
| Total functional expenses | $2,454,065 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $763,568 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $368,634 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $19,340 |
| Net Land, buildings, and equipment | $45,135 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $7,726 |
| Total assets | $1,204,403 |
| Accounts payable and accrued expenses | $350,638 |
| Grants payable | $0 |
| Deferred revenue | $68,152 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $294,970 |
| Other liabilities | $3,959 |
| Total liabilities | $717,719 |
| Net assets without donor restrictions | $486,684 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $1,204,403 |
Grants Recieved
Over the last fiscal year, we have identified 4 grants that Genetic Alliance Inc has recieved totaling $388,939.
| Awarding Organization | Amount |
|---|---|
Silicon Valley Community Foundation Mountain View, CA PURPOSE: Health | $291,000 |
Health Quest Foundation San Diego, CA PURPOSE: PROGRAM | $50,000 |
American Online Giving Foundation Inc Newark, DE PURPOSE: GENERAL SUPPORT | $32,939 |
Biotechnology Innovation Organization Washington, DC PURPOSE: SUPPORT | $15,000 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Blossom Philadelphia Philadelphia, PA | $11,542,334 | $13,231,911 |
Community Living And Support Services Inc Pittsburgh, PA | $14,170,450 | $10,575,358 |
Accessabilities Inc Butler, PA | $7,027,992 | $8,853,287 |
Community Care Connections Inc Butler, PA | $6,381,245 | $7,096,509 |
The Clinic For Special Children Inc Strasburg, PA | $14,596,490 | $7,339,577 |
United Cerebral Palsy Of Northeastern Pa Scranton, PA | $4,177,102 | $4,455,373 |
Lancaster Cleft Palate Clinic Lancaster, PA | $10,557,062 | $3,106,992 |
Sickle Cell Disease Association Of America Inc Hanover, MD | $2,467,677 | $3,493,721 |
Genetic Alliance Inc Damascus, MD | $1,204,403 | $2,331,033 |
1000 Days Washington, DC | $67,078 | $328,745 |
United Cerebral Palsy Of Delaware Inc Wilmington, DE | $2,743,495 | $1,340,878 |
American Board Of Medical Genetics And Genomics Inc Rockville, MD | $2,818,271 | $1,268,506 |