The Familiescn2a Foundation Inc
- Assets
- $1.8m
- Revenue
- $1.5m
- Investments
- $0.0
- Employees
- 3
- Location
- Gettysburg, PA
- Founding
- 10/2015
- Data as of
- 12/2022
- EIN
- 47-3169795
Organization Overview
The Familiescn2a Foundation Inc is located in Gettysburg, PA. The organization was established in 2015. According to its NTEE Classification (G20) the organization is classified as: Birth Defects & Genetic Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 12/2022, Familiescn2a Foundation Inc employed 3 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Familiescn2a Foundation Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2022, Familiescn2a Foundation Inc generated $1.5m in total revenue. This organization has experienced exceptional growth, as over the past 6 years, it has increased revenue by an average of 50.7% each year . All expenses for the organization totaled $990.8k during the year ending 12/2022. You can explore the organizations financials more deeply in the financial statements section below.
Since 2019, Familiescn2a Foundation Inc has awarded 18 individual grants totaling $602,071. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2022
Describe the Organization's Mission:
Part 3 - Line 1
THE FAMILIESCN2A IS DEDICATED TO FINDING EFFECTIVE TREATMENTS AND ULTIMATELY A CURE FOR SCN2A RELATED AUTISM AND EPILEPSY DISORDERS. THE FAMILIESCN2A FOUNDATION RAISES PUBLIC AWARENESS, PROVIDES PATIENT ADVOCACY, AND SUPPORTS CLINICAL RESEARCH, GENETIC RESEARCH, AND EARLY DETECTION.
Describe the Organization's Program Activity:
Part 3 - Line 4a
PROVIDING ADVANCED RESEARCH TOWARDS EARLY DETECTION, TREATMENTS AND A CURE FOR SCN2A DISORDERS.
THE SUMMER SEMINAR IS A FAMILY-FOCUSED GATHERING, WHERE FAMILIES COME TOGETHER AND LEARN ABOUT SCN2A-RELATED TOPICS AND TREATMENTS, AS WELL AS SHARE EXPERIENCES.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Leah Schust Myers Executive Director | Trustee | 60 | $90,000 |
Catalina Betancur Santamaria Director | Trustee | 2 | $0 |
Will Hutson Director | Trustee | 2 | $0 |
Maura Bragg Director | Trustee | 2 | $0 |
Emily Park Director | Trustee | 5 | $0 |
Mery Oman Vice President | Trustee | 2 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $1,414,320 |
| Noncash contributions included in lines 1a–1f | $30,198 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $1,414,320 |
| Total Program Service Revenue | $72,550 |
| Investment income | $0 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $1,486,870 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $298,568 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $113,072 |
| Compensation of current officers, directors, key employees. | $5,653 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $19,361 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $33,883 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $544 |
| Advertising and promotion | $8,197 |
| Office expenses | $20,047 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $26,774 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $120,775 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $1,193 |
| All other expenses | $23,602 |
| Total functional expenses | $990,762 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $1,196,720 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $557,369 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $3,561 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $1,757,650 |
| Accounts payable and accrued expenses | $124,841 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $124,841 |
| Net assets without donor restrictions | $1,190,725 |
| Net assets with donor restrictions | $442,084 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $1,757,650 |
Grants Awarded
Over the last fiscal year, The Familiescn2a Foundation Inc has awarded $275,050 in support to 8 organizations.
| Grant Recipient | Amount |
|---|---|
ANN & ROBERT H LURIE CHILDREN'S HOSPITAL OF CHICAGO PURPOSE: TO SUPPORT ADVANCED RESEARCH TOWARDS TREATMENTS AND CURE FOR SCN2A DISORDERS. | $12,433 |
UNIVERSITY OF ALABAMA PURPOSE: TO SUPPORT ADVANCED RESEARCH TOWARDS TREATMENTS AND CURE FOR SCN2A DISORDERS. | $10,939 |
PURDUE UNIVERSITY PURPOSE: TO SUPPORT ADVANCED RESEARCH TOWARDS TREATMENTS AND CURE FOR SCN2A DISORDERS. | $46,419 |
UNIVERSITY OF IOWA PURPOSE: TO SUPPORT ADVANCED RESEARCH TOWARDS TREATMENTS AND CURE FOR SCN2A DISORDERS. | $46,175 |
UNIVERSITY OF CALIFORNIA DAVIS PURPOSE: TO SUPPORT ADVANCED RESEARCH TOWARDS TREATMENTS AND CURE FOR SCN2A DISORDERS. | $52,625 |
COMBINEDBRAIN PURPOSE: TO SUPPORT ADVANCED RESEARCH TOWARDS TREATMENTS AND CURE FOR SCN2A DISORDERS. | $61,405 |