Huntingtons Disease Society Of America Inc
- Assets
- $12.2m
- Revenue
- $8.6m
- Investments
- $0.0
- Employees
- 36
- Location
- New York, NY
- Founding
- 02/1988
- Data as of
- 12/2020
- EIN
- 13-3349872
Organization Overview
Huntingtons Disease Society Of America Inc is located in New York, NY. The organization was established in 1988. According to its NTEE Classification (G20) the organization is classified as: Birth Defects & Genetic Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 12/2020, Huntingtons Disease Society Of America Inc employed 36 individuals. This organization is a parent organization of an affiliated group for tax-exemption purposes. Huntingtons Disease Society Of America Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2020, Huntingtons Disease Society Of America Inc generated $8.6m in total revenue. This represents relatively stable growth, over the past 6 years the organization has increased revenue by an average of 0.2% each year. All expenses for the organization totaled $8.2m during the year ending 12/2020. While expenses have increased by 2.7% per year over the past 6 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Since 2015, Huntingtons Disease Society Of America Inc has awarded 276 individual grants totaling $10,684,041. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2020
Describe the Organization's Mission:
Part 3 - Line 1
HUNTINGTON'S DISEASE SOCIETY OF AMERICA, INC. IS A HEALTH AND WELFARE ORGANIZATION DEDICATED TO IMPROVING THE LIVES OF PEOPLE WITH HUNTINGTON'S DISEASE AND THEIR FAMILIES.
Describe the Organization's Program Activity:
Part 3 - Line 4a
RESEARCH - SUPPORTS RESEARCH AS ADVISED BY ITS SCIENTIFIC ADVISORY BOARD. THE RESEARCH PROJECTS ARE INVOLVED IN FINDING CURES AND TREATMENTS FOR HUNTINGTON'S DISEASE.
PATIENT AND FAMILY SERVICES - PROVIDES COUNSELING AND REFERRAL SERVICES TO PATIENTS WITH HUNTINGTON'S DISEASE AND THEIR FAMILIES.
COMMUNITY OUTREACH - PROVIDES WORKSHOPS, SEMINARS, AND SYMPOSIUMS ON HUNTINGTON'S DISEASE THROUGH A NETWORK OF CHAPTER AFFILIATES AND BRANCHES THROUGHOUT THE UNITED STATES.
EDUCATION
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Louise Vetter Chief Executive Officer | Officer | 35 | $274,376 |
George Yohrling Sr. Dir. Mission & Sci Affairs | 35 | $233,994 | |
Rosemary Coluccio Chief Operating Officer | Officer | 35 | $220,662 |
Nancy Rhodes Director Of Field Dev & Oper. | 35 | $151,999 | |
Debra Lovecky Dir Of Program Serv & Advocacy | 35 | $151,476 | |
Jamison Skala Director, National Development | 35 | $127,511 |
Outside Vendors & Contractors
| Vendor Name (Service) | Service Year | Compensation |
|---|---|---|
Jr Graphics Graphic Design | 12/30/20 | $126,721 |
Libshap Realty Corp Realty | 12/30/20 | $300,283 |
Thorn Run Partners Llc Advocacy | 12/30/20 | $110,000 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $179,903 |
| Membership dues | $0 |
| Fundraising events | $978,304 |
| Related organizations | $1,577,568 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $5,744,719 |
| Noncash contributions included in lines 1a–1f | $295,757 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $8,480,494 |
| Total Program Service Revenue | $0 |
| Investment income | $23,523 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $1,010 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $8,586,946 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $2,101,403 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $511,465 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $573,526 |
| Compensation of current officers, directors, key employees. | $51,789 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $2,556,241 |
| Pension plan accruals and contributions | $102,599 |
| Other employee benefits | $472,567 |
| Payroll taxes | $259,555 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $406 |
| Fees for services: Accounting | $62,948 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $1,593 |
| Fees for services: Other | $604,125 |
| Advertising and promotion | $0 |
| Office expenses | $106,793 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $287,203 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $43,258 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $44,167 |
| Insurance | $48,159 |
| All other expenses | $205,410 |
| Total functional expenses | $8,232,195 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $0 |
| Savings and temporary cash investments | $8,527,019 |
| Pledges and grants receivable | $1,130,598 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $151,279 |
| Net Land, buildings, and equipment | $29,946 |
| Investments—publicly traded securities | $2,310,097 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $39,529 |
| Total assets | $12,188,468 |
| Accounts payable and accrued expenses | $489,890 |
| Grants payable | $1,283,055 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $634,692 |
| Other liabilities | $118,455 |
| Total liabilities | $2,526,092 |
| Net assets without donor restrictions | $5,361,276 |
| Net assets with donor restrictions | $4,301,100 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $12,188,468 |
Grants Awarded
Over the last fiscal year, Huntingtons Disease Society Of America Inc has awarded $2,103,386 in support to 60 organizations.
| Grant Recipient | Amount |
|---|---|
Shrewsbury, MA PURPOSE: Medical research | $240,000 |
Boston, MA PURPOSE: Medical research | $150,000 |
Shrewsbury, MA PURPOSE: Medical research | $75,000 |
COLUMBIA UNIVERSITY MEDICAL CENTER PURPOSE: Medical research | $75,000 |
Davis, CA PURPOSE: Community services | $71,100 |
UNIVERSITY OF WASHINGTON PURPOSE: Community services | $60,342 |
Grants Recieved
Over the last fiscal year, we have identified 11 grants that Huntingtons Disease Society Of America Inc has recieved totaling $250,735.
| Awarding Organization | Amount |
|---|---|
American Online Giving Foundation Inc Newark, DE PURPOSE: GENERAL SUPPORT | $99,118 |
Schwab Charitable Fund San Francisco, CA PURPOSE: HEALTH | $36,700 |
Columbus Foundation Columbus, OH PURPOSE: HEALTH | $30,000 |
Chc Creating Healthier Communities Alexandria, VA PURPOSE: RESEARCH/PUBLICEDUCATION | $28,026 |
Raymond James Charitable Endowment Fund St Petersberg, FL PURPOSE: GENERAL SUPPORT | $14,250 |
Community Foundation For Southeast Michigan Detroit, MI PURPOSE: GENERAL OPERATIONS | $10,000 |
Endowment Analysis
| Beg. Balance | $268,961 |
| Earnings | -$95 |
| Ending Balance | $268,866 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Enable Inc Princeton, NJ | $15,406,135 | $22,111,061 |
Blossom Philadelphia Philadelphia, PA | $11,542,334 | $13,231,911 |
North Jersey Elks Developmental Disabilities Agency Clifton, NJ | $11,045,124 | $15,523,480 |
Able2 Enhancing Potential Inc Elmira, NY | $14,514,090 | $15,736,211 |
United Cerebral Palsy Association Of Niagara County Inc Niagara Falls, NY | $4,538,001 | $15,973,822 |
United Cerebral Palsy Association Of The Rochester Area Inc Rochester, NY | $11,413,830 | $15,738,861 |
Community Living And Support Services Inc Pittsburgh, PA | $14,170,450 | $10,575,358 |
Adult Resources Center Inc Brooklyn, NY | $6,621,315 | $10,756,544 |
Ucp Bayville Incorporated Roosevelt, NY | $2,475,056 | $10,712,596 |
United Cerebral Palsy Association Of Metro Boston Inc Watertown, MA | $8,349,655 | $10,098,245 |
Advancing Opportunities Inc Willingboro Nj, NJ | $4,890,971 | $11,587,937 |
Huntington Study Group Ltd Rochester, NY | $10,251,900 | $9,967,496 |