Kcnma1 Channelopathy International Advocacy Foundation
- Assets
- $4.7k
- Revenue
- $0.0
- Investments
- $0.0
- Employees
- 0
- Location
- New York, NY
- Founding
- 06/2019
- Data as of
- 12/2021
- EIN
- 83-4532605
Organization Overview
Kcnma1 Channelopathy International Advocacy Foundation is located in New York, NY. The organization was established in 2019. According to its NTEE Classification (G80) the organization is classified as: Specifically Named Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Kcnma1 Channelopathy International Advocacy Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Kcnma1 Channelopathy International Advocacy Foundation generated $5.4k in total revenue. This organization has experienced exceptional growth, as over the past 3 years, it has increased revenue by an average of 15.3% each year . All expenses for the organization totaled $4.0k during the year ending 12/2021. You can explore the organizations financials more deeply in the financial statements section below.
Form
990EZ
Mission & Program ActivityExcerpts From the 990EZ Filing
TAX YEAR
2021
Describe the Organization's Program Activity:
Part 3
WEBSITE EDUCATION AND OUTREACH. OUR WEBSITE SERVES AS THE MAIN REPOSITORY FOR NEW RESEARCH WHICH ALLOWED UNIVERSITY RESEARCHERS ACCESS TO FAMILY DATA LEADING TO ADVANCEMENTS IN THE STATE OF KNOWLEDGE IN KCNMA1-RELATED DISORDERS. IN ADDITION, WE PROVIDE INFORMATION FOR FAMILIES AND PHYSICIANS. WE HAD APPROXIMATELY 1500 UNIQUE VISITORS FROM 50 DIFFERENT COUNTRIES DURING 2021. WE PROVIDED FUNDS ($3000) TO MAKE RESEARCH PUBLICATIONS FREELY AVAILABLE TO THE PUBLIC, WHICH OTHERWISE REQUIRED VIEWING FEES.
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PDF Copies of 990 Filings
Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Sotirios Keros President | 2 | $0 | |
Michael Kruer Board Member | 0 | $0 | |
Andrea Meredith Vice-President | 2 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Total Revenue from Contributions, Gifts, Grants & Similar | $5,370 |
| Total Program Service Revenue | $0 |
| Membership dues | $0 |
| Investment income | $0 |
| Gain or Loss | $0 |
| Net Income from Gaming & Fundraising | $0 |
| Other Revenue | $0 |
| Total Revenue | $5,370 |
| Statement of Expenses | |
|---|---|
| Grants and similar amounts paid | $0 |
| Benefits paid to or for members | $0 |
| Salaries, other compensation, and employee benefits | $0 |
| Professional fees and other payments to independent contractors | $0 |
| Occupancy, rent, utilities, and maintenance | $0 |
| Printing, publications, postage, and shipping | $3,000 |
| Other expenses | $1,009 |
| Total expenses | $4,009 |
| Balance Sheet | |
|---|---|
| Cash, savings, and investments | $4,674 |
| Other assets | $0 |
| Total assets | $4,674 |
| Total liabilities | $0 |
| Net assets or fund balances | $4,674 |
Grants Recieved
Over the last fiscal year, we have identified 1 grants that Kcnma1 Channelopathy International Advocacy Foundation has recieved totaling $147.
| Awarding Organization | Amount |
|---|---|
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $147 |
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Learning Disabilities Association Of Western New York Inc Kenmore, NY | $2,525,018 | $4,880,891 |
Eb Research Partnership Inc New York, NY | $20,862,871 | $7,736,054 |
Yairockland County Association For People With Disabilities New York, NY | $0 | $3,637,352 |
Prevention Resources Inc Flemington, NJ | $1,493,246 | $2,776,493 |
United Mitochondrial Disease Foundation Inc Pittsburgh, PA | $5,488,767 | $3,021,406 |
Allegany Council On Alcoholism And Substance Abuse Inc Wellsville, NY | $2,491,126 | $2,749,912 |
Positudes Inc Westbury, NY | $32,648,999 | $5,043,435 |
Atlantic Prevention Resources Inc Absecon, NJ | $503,584 | $1,633,056 |