Project Lyme
- Assets
- $969.0k
- Revenue
- $575.1k
- Investments
- $0.0
- Employees
- 2
- Location
- New York, NY
- Founding
- 03/2016
- Data as of
- 12/2021
- EIN
- 81-1138289
Organization Overview
Project Lyme is located in New York, NY. The organization was established in 2016. According to its NTEE Classification (G80) the organization is classified as: Specifically Named Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 12/2021, Project Lyme employed 2 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Project Lyme is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Project Lyme generated $575.1k in total revenue. This organization has experienced exceptional growth, as over the past 5 years, it has increased revenue by an average of 24.9% each year . All expenses for the organization totaled $645.3k during the year ending 12/2021. While expenses have increased by 30.2% per year over the past 5 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
PROJECT LYME'S MISSION IS TO ERADICATE THE EPIDEMIC OF LYME DISEASE AND OTHER TICK-BORNE ILLNESSES BY SPREADING AWARENESS, PROVIDING EDUCATIONAL RESOURCES, FUNDING PEER-REVIEWED RESEARCH, AND SUPPORTING ADVOCACY FOR SOLUTIONS TO END THE SUFFERING. SINCE 2016, PROJECT LYME HAS CHALLENGED MISINFORMATION ABOUT DIAGNOSIS AND TREATMENT, ADVOCATED FOR PATIENTS' RIGHTS, AND BUILT A COMMUNITY FOR LYME PATIENTS AS WELL AS THEIR LOVED ONES.
Describe the Organization's Program Activity:
Part 3 - Line 4a
EDUCATION AND AWARENESS: PROJECT LYME SPENDS MONEY ON EDUCATION AND AWARENESS THROUGH DEVELOPING INFORMATIONAL CONTENT FOR PRINTED BROCHURES, SOCIAL MEDIA, NEWSLETTERS, WEBSITES, TELEVISION, AND STREAMING SERVICES. IN 2021, OUR WEBSITE HAD 36,119 USERS AND OUR SOCIAL MEDIA GREW TO 32,582 FOLLOWERS. WE ALSO RAN A SUCCESSFUL PSA CAMPAIGN SHARING PATIENT STORIES WHICH RECEIVED 236,000 VIEWS ON NEWS PRE-ROLL (CNN, USA TODAY, FOX NEWS), 462,000 VIEWS ON HULU, AND AIRED ON 52 NEWS CHANNELS THROUGHOUT THE COUNTRY. WE ACHIEVED THIS BY WORKING WITH EXTERNAL CONTRACTORS AND ALLOCATING INTERNAL BILLABLE HOURS TO CREATE CONTENT, DETERMINE STRATEGY, AND DEVELOP PARTNERSHIPS.
RESEARCH: PROJECT LYME INVESTS MONEY INTO RESEARCH VIA GRANTS TO OUR PARTNER, BAY AREA LYME FOUNDATION. THE MAIN FOCUS OF OUR RESEARCH INVESTMENTS ARE DIAGNOSTICS AND THERAPEUTICS, GIVEN THE UNRELIABILITY OF CURRENT LYME TESTING AS WELL AS THE LACK OF EFFECTIVE TREATMENT FOR CHRONIC CASES.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
David Roth Executive Committee Chair | OfficerTrustee | 5 | $0 |
Jennifer Weis Board Co-Chair | OfficerTrustee | 10 | $0 |
Nan Kurzman Board Co-Chair | OfficerTrustee | 10 | $0 |
Mark Weber Treasurer | OfficerTrustee | 5 | $0 |
Kim Dickstein Secretary | OfficerTrustee | 5 | $0 |
Melissa Bell Board Member | Trustee | 10 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $481,572 |
| Noncash contributions included in lines 1a–1f | $21,740 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $481,572 |
| Total Program Service Revenue | $0 |
| Investment income | $0 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $93,169 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $575,104 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $50,100 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $136,369 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $1,320 |
| Payroll taxes | $11,824 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $498 |
| Fees for services: Accounting | $18,250 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $315,580 |
| Advertising and promotion | $9,052 |
| Office expenses | $32,380 |
| Information technology | $17,588 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $1,523 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $225 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $600 |
| All other expenses | $50,000 |
| Total functional expenses | $645,309 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $968,998 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $968,998 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $0 |
| Net assets without donor restrictions | $908,457 |
| Net assets with donor restrictions | $60,541 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $968,998 |
Grants Awarded
Over the last fiscal year, Project Lyme has awarded $1,077,792 in support to 4 organizations.
| Grant Recipient | Amount |
|---|---|
Portola Valley, CA PURPOSE: This grant was used to support the 2020 Gala and other charitable purposes of the organization, in exchange for a 35% share of revenue that comes from the Gala. | $438,896 |
Portola Valley, CA PURPOSE: This grant was used to support the 2020 Gala and other charitable purposes of the organization, in exchange for a 35% share of revenue that comes from the Gala. | $438,896 |
EVERYBODY KNOWS FILMS LLC PURPOSE: Project Lyme awarded $100,000 to filmmaker Sini Anderson for her documentary So Sick which follows the journey of four women suffering from Lyme disease who are struggling to be heard by the medical community. | $100,000 |
EVERYBODY KNOWS FILMS LLC PURPOSE: Project Lyme awarded $100,000 to filmmaker Sini Anderson for her documentary So Sick which follows the journey of four women suffering from Lyme disease who are struggling to be heard by the medical community. | $100,000 |
Grants Recieved
Over the last fiscal year, we have identified 1 grants that Project Lyme has recieved totaling $15,000.
| Awarding Organization | Amount |
|---|---|
Rjl Charitable Foundation Douglaston, NY PURPOSE: GENERAL SUPPORT | $15,000 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Joslin Diabetes Center Inc Boston, MA | $107,556,453 | $76,953,905 |
Fund For Public Health In New York Inc New York, NY | $56,819,635 | $72,117,813 |
National Organization For Rare Disorders Inc Quincy, MA | $37,875,246 | $43,188,172 |
Lymphoma Research Foundation New York, NY | $31,207,101 | $16,103,858 |
African Leaders Malaria Alliance Inc Laurelton, NY | $8,771,808 | $10,298,494 |
The Marfan Foundation Inc Port Washington, NY | $16,600,923 | $9,814,628 |
Prevention Links Roselle, NJ | $1,171,650 | $4,754,072 |
Learning Disabilities Association Of Western New York Inc Kenmore, NY | $2,525,018 | $4,880,891 |
Eb Research Partnership Inc New York, NY | $20,862,871 | $7,736,054 |
Yairockland County Association For People With Disabilities New York, NY | $0 | $3,637,352 |
Prevention Resources Inc Flemington, NJ | $1,493,246 | $2,776,493 |
United Mitochondrial Disease Foundation Inc Pittsburgh, PA | $5,488,767 | $3,021,406 |