Project Lyme
- Assets
- $1.2m
- Revenue
- $982.5k
- Investments
- $0.0
- Employees
- 1
- Location
- New York, NY
- Founding
- 03/2016
- Data as of
- 12/2023
- EIN
- 81-1138289
Organization Overview
Project Lyme is located in New York, NY. The organization was established in 2016. According to its NTEE Classification (G80) the organization is classified as: Specifically Named Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Project Lyme is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2023, Project Lyme generated $982.5k in total revenue. This organization has experienced exceptional growth, as over the past 7 years, it has increased revenue by an average of 26.5% each year . All expenses for the organization totaled $781.2k during the year ending 12/2023. While expenses have increased by 24.1% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
PROJECT LYME'S MISSION IS TO ERADICATE THE EPIDEMIC OF LYME DISEASE AND OTHER TICK-BORNE ILLNESSES BY SPREADING AWARENESS, PROVIDING EDUCATIONAL RESOURCES, FUNDING PEER-REVIEWED RESEARCH, AND SUPPORTING ADVOCACY FOR SOLUTIONS TO END THE SUFFERING. SINCE 2016, PROJECT LYME HAS CHALLENGED MISINFORMATION ABOUT DIAGNOSIS AND TREATMENT, ADVOCATED FOR PATIENTS' RIGHTS, AND BUILT A COMMUNITY FOR LYME PATIENTS AS WELL AS THEIR LOVED ONES.
Describe the Organization's Program Activity:
Part 3 - Line 4a
EDUCATION AND AWARENESS: EDUCATION, AWARENESS, AND ADVOCACY ARE PROJECT LYME'S THREE LARGEST INITIATIVES FROM AN EMPLOYMENT AND PUBLIC ENGAGEMENT STANDPOINT. THESE FUNDS ARE SPLIT BETWEEN FUNDING THE DISTRIBUTION OF DOCUMENTARY FILM THE QUIET EPIDEMIC, CREATING SOCIAL MEDIA AND WEBSITE CONTENT FOR @PROJECTLYME AND PROJECTLYME.ORG, CREATING AND DISTRIBUTING PUBLIC SERVICE ANNOUCEMENTS, AS WELL AS SPONSORSHIP ONLINE AND IN-PERSON EDUCATIONAL SEMINARS AND ADVOCACY EVENTS. WE DISTRIBUTED $47,500 TO THE QUIET EPIDEMIC, $14,824 TO GENERATION LYME, $5,000 TO ILADS AND OTHER MINOR GRANTS TO ORGANIZATIONS WORKING IN EDUCATION AND AWARENESS.
RESEARCH: PROJECT LYME DIRECTS FUNDS FOR RESEARCH THROUGH OUR PARTNER ORGANIZATION BAY AREA LYME FOUNDATION. THE MAIN FOCUS OF THIS PROGRAM IS TO INCREASE THE VIABILITY OF DIAGNOSTICS AVAILABLE TO THE GENERAL PUBLIC AND THERAPEUTICS AVAILABLE FOR PATIENTS. WE DISTRIBUTED $222,000 TO BAY AREA LYME.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Noah Johnston Executive Director | Officer | 40 | $120,000 |
David Roth Executive Committee Chair | OfficerTrustee | 2 | $0 |
Jennifer Weis Board Co-Chair | OfficerTrustee | 5 | $0 |
Nan Kurzman Board Co-Chair | OfficerTrustee | 2 | $0 |
Scott Moresco Treasurer | OfficerTrustee | 5 | $0 |
Kim Dickstein Secretary | OfficerTrustee | 5 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $1,189,964 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $25,000 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $1,214,964 |
| Total Program Service Revenue | $0 |
| Investment income | $73 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | -$232,586 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $982,451 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $293,284 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $120,000 |
| Compensation of current officers, directors, key employees. | $48,000 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $5,115 |
| Payroll taxes | $10,875 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $542 |
| Fees for services: Accounting | $19,014 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $216,978 |
| Advertising and promotion | $19,447 |
| Office expenses | $14,389 |
| Information technology | $3,154 |
| Royalties | $0 |
| Occupancy | $5,329 |
| Travel | $5,789 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $724 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $1,440 |
| All other expenses | $1,300 |
| Total functional expenses | $781,172 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $682,533 |
| Savings and temporary cash investments | $500,073 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $1,182,606 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $0 |
| Net assets without donor restrictions | $1,182,606 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $1,182,606 |
Grants Awarded
Over the last fiscal year, Project Lyme has awarded $284,574 in support to 3 organizations.
| Grant Recipient | Amount |
|---|---|
BAY AREA LYME PURPOSE: FUNDS FOR RESEARCH | $222,000 |
THE LYME TRIALS LLC PURPOSE: SUPPORT FOR THE DISTRIBUTION OF DOCUMENTARY FILM | $47,750 |
GENERATION LYME PURPOSE: GENERAL SUPPORT | $14,824 |