Eb Research Partnership Inc
- Assets
- $24.7m
- Revenue
- $7.4m
- Investments
- $9.4m
- Employees
- 5
- Location
- New York, NY
- Founding
- 03/2011
- Data as of
- 12/2023
- EIN
- 27-2417202
Organization Overview
Eb Research Partnership Inc is located in New York, NY. The organization was established in 2011. According to its NTEE Classification (G80) the organization is classified as: Specifically Named Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 12/2023, Eb Research Partnership Inc employed 5 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Eb Research Partnership Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2023, Eb Research Partnership Inc generated $7.4m in total revenue. This represents relatively stable growth, over the past 9 years the organization has increased revenue by an average of 4.3% each year. All expenses for the organization totaled $7.7m during the year ending 12/2023. While expenses have increased by 13.8% per year over the past 9 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Since 2015, Eb Research Partnership Inc has awarded 94 individual grants totaling $23,616,999. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
TO FUND RESEARCH FOR TREATMENTS AND A CURE FOR EPIDERMOLYSIS BULLOSA.
Describe the Organization's Program Activity:
Part 3 - Line 4a
GRANTS AND MONEY AWARDED FOR FURTHER RESEARCH. EB RESEARCH PARTNERSHIP FUNDS THE MOST PROMISING, INNOVATIVE AND POTENTIALLY COMMERCIALLY VIABLE TREATMENTS AND POTENTIAL CURES FOR EB. OUR RESEARCH GRANTS INCORPORATE ADVANCES THROUGH THE FIELD OF BIOMEDICINE FOR BETTER TREATMENTS FOR ALL EB SUBTYPES. OUR SCIENTIFIC ADVISORY BOARD REVIEWS ALL GRANT APPLICATIONS SO THAT WE ARE ASSURED THAT GRANTS ARE RELEVANT, INNOVATIVE AND COULD MEANINGFULLY IMPROVE THE QUALITY OF LIFE FOR THOSE LIVING WITH EB.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Jill Vedder Chairwomen | OfficerTrustee | 5 | $0 |
Alexander Lemos Director | Trustee | 1 | $0 |
Ari Deshe Vice Chairman | OfficerTrustee | 1 | $0 |
Chad Ceretto Director | Trustee | 1 | $0 |
Daniel Deshe Director | Trustee | 1 | $0 |
Ric Firth Director | Trustee | 1 | $0 |
Outside Vendors & Contractors
| Vendor Name (Service) | Service Year | Compensation |
|---|---|---|
Rose Group Park Avenue Llc Catering And Event Space | 12/30/17 | $224,947 |
Wnp Consultingwhitney Pollack Management And Development Consulting | 12/30/17 | $137,853 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $4,748,344 |
| Related organizations | $208,666 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $2,155,041 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $7,112,051 |
| Total Program Service Revenue | $0 |
| Investment income | $552,333 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | -$26,636 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $7,430,625 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $3,916,116 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $1,540,238 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $426,699 |
| Compensation of current officers, directors, key employees. | $21,335 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $494,864 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $44,344 |
| Payroll taxes | $52,680 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $179,189 |
| Fees for services: Accounting | $190,053 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $81,426 |
| Advertising and promotion | $0 |
| Office expenses | $354,905 |
| Information technology | $16,859 |
| Royalties | $0 |
| Occupancy | $120,400 |
| Travel | $97,411 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $3,880 |
| All other expenses | $0 |
| Total functional expenses | $7,652,304 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $1,177,720 |
| Savings and temporary cash investments | $6,772,805 |
| Pledges and grants receivable | $2,940,832 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $3,577,000 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $66,964 |
| Net Land, buildings, and equipment | $1,578 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $9,370,293 |
| Investments—program-related | $0 |
| Intangible assets | $15,231 |
| Other assets | $745,596 |
| Total assets | $24,668,019 |
| Accounts payable and accrued expenses | $127,715 |
| Grants payable | $6,774,846 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $6,902,561 |
| Net assets without donor restrictions | $14,847,882 |
| Net assets with donor restrictions | $2,917,576 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $24,668,019 |
Grants Awarded
Over the last fiscal year, Eb Research Partnership Inc has awarded $3,904,445 in support to 13 organizations.
| Grant Recipient | Amount |
|---|---|
STANFORD UNIVERSITY PURPOSE: TO FUND RESEARCH TO FIND A CURE FOR EB | $1,937,685 |
THOMAS JEFFERSON UNIVERSITY PURPOSE: TO FUND RESEARCH TO FIND A CURE FOR EB | $244,800 |
COLUMBIA UNIVERSITY PURPOSE: TO FUND RESEARCH TO FIND A CURE FOR EB | $169,209 |
CINCINNATI CHILDREN'S HOSPITAL MEDICAL CENTER PURPOSE: TO FUND RESEARCH TO FIND A CURE FOR EB | $51,223 |
CHILDREN'S HOSPITAL OF PHILADELPHIA PURPOSE: TO FUND RESEARCH TO FIND A CURE FOR EB | $29,255 |
UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL PURPOSE: TO FUND RESEARCH TO FIND A CURE FOR EB | $20,100 |