United Mitochondrial Disease Foundation Inc
- Assets
- $5.5m
- Revenue
- $3.0m
- Investments
- $0.0
- Employees
- 17
- Location
- Pittsburgh, PA
- Founding
- 11/2001
- Data as of
- 06/2021
- EIN
- 25-1767180
Organization Overview
United Mitochondrial Disease Foundation Inc is located in Pittsburgh, PA. The organization was established in 2001. According to its NTEE Classification (G80) the organization is classified as: Specifically Named Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 06/2021, United Mitochondrial Disease Foundation Inc employed 17 individuals. This organization is a parent organization of an affiliated group for tax-exemption purposes. United Mitochondrial Disease Foundation Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 06/2021, United Mitochondrial Disease Foundation Inc generated $3.0m in total revenue. The organization has seen a slow decline revenue. Over the past 6 years, revenues have fallen by an average of (1.6%) each year. All expenses for the organization totaled $2.7m during the year ending 06/2021. As we would expect to see with falling revenues, expenses have declined by (3.3%) per year over the past 6 years. You can explore the organizations financials more deeply in the financial statements section below.
Since 2015, United Mitochondrial Disease Foundation Inc has awarded 51 individual grants totaling $3,555,262. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
PROMOTE RESEARCH AND EDUCATION FOR THE DIAGNOSIS, TREATMENT AND CURE OF MITOCHONDRIAL DISORDERS AND TO PROVIDE SUPPORT TO AFFECTED INDIVIDUALS AND FAMILIES.
Describe the Organization's Program Activity:
Part 3 - Line 4a
FUNDING RESEARCH FOR CURES AND TREATMENTS OF MITOCHONDRIAL DISORDERS.
PROVIDING SUPPORT FOR AFFECTED FAMILIES - PARENT EDUCATION
PROMOTING PUBLIC AWARENESS OF MITOCHONDRIAL DISORDERS
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Brian T Harman President & CEO | Officer | 40 | $171,139 |
Philip E Yeske PHD Science & Alliance Officer | 40 | $137,724 | |
Beth Whitehouse Director Of Development | 40 | $128,354 | |
Mark S Campbell Chief Financial Officer | 40 | $113,011 | |
John Kieffer Chairman, Board Of Trustee | OfficerTrustee | 1 | $0 |
Alicia M Palladino ESQ Vice Chair | OfficerTrustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $8,095 |
| Membership dues | $0 |
| Fundraising events | $314,083 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $1,474,240 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $1,796,418 |
| Total Program Service Revenue | $245,479 |
| Investment income | $86,194 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $109,304 |
| Net Income from Fundraising Events | $535,808 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $403 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $3,021,406 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $424,610 |
| Grants and other assistance to domestic individuals. | $45,000 |
| Grants and other assistance to Foreign Orgs/Individuals | $97,525 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $527,346 |
| Compensation of current officers, directors, key employees. | $40,831 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $745,096 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $227,634 |
| Payroll taxes | $97,479 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $15,405 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $16,310 |
| Fees for services: Other | $0 |
| Advertising and promotion | $155,994 |
| Office expenses | $71,554 |
| Information technology | $53,209 |
| Royalties | $0 |
| Occupancy | $75,421 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $126,265 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $1,755 |
| Insurance | $8,536 |
| All other expenses | $0 |
| Total functional expenses | $2,704,378 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $571,001 |
| Savings and temporary cash investments | $939,483 |
| Pledges and grants receivable | $350,611 |
| Accounts receivable, net | $134,570 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $8,811 |
| Prepaid expenses and deferred charges | $56,315 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $3,427,976 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $5,488,767 |
| Accounts payable and accrued expenses | $90,594 |
| Grants payable | $1,649,391 |
| Deferred revenue | $53,666 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $275,680 |
| Other liabilities | $0 |
| Total liabilities | $2,069,331 |
| Net assets without donor restrictions | $1,772,746 |
| Net assets with donor restrictions | $1,646,690 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $5,488,767 |
Grants Awarded
Over the last fiscal year, United Mitochondrial Disease Foundation Inc has awarded $418,033 in support to 7 organizations.
| Grant Recipient | Amount |
|---|---|
PERLARA PBC PURPOSE: Research | $100,000 |
Cambridge, MA PURPOSE: Research | $100,000 |
Philadelphia, PA PURPOSE: Research | $64,622 |
WIRB COPERNICUS GROUP INC PURPOSE: Research | $53,197 |
New York, NY PURPOSE: Patient Registry | $50,000 |
ADVARRA INC PURPOSE: Research | $25,214 |
Grants Recieved
Over the last fiscal year, we have identified 9 grants that United Mitochondrial Disease Foundation Inc has recieved totaling $201,696.
| Awarding Organization | Amount |
|---|---|
American Online Giving Foundation Inc Newark, DE PURPOSE: GENERAL SUPPORT | $64,128 |
Foundation To Decrease World Suck Missoula, MT PURPOSE: Operating Funds | $27,653 |
Spartanburg County Foundation Spartanburg, SC PURPOSE: GENERAL SUPPORT | $25,000 |
Foundation For The Carolinas Charlotte, NC PURPOSE: CHARITABLE GIFT | $24,500 |
Schwab Charitable Fund San Francisco, CA PURPOSE: HEALTH | $16,450 |
American Endowment Foundation Hudson, OH PURPOSE: DISEASE/DISORDER | $15,500 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Lorain County Alcohol And Drug Abuse Services Inc Lorain, OH | $9,389,055 | $9,939,919 |
Lymphoma Research Foundation New York, NY | $31,207,101 | $16,103,858 |
African Leaders Malaria Alliance Inc Laurelton, NY | $8,771,808 | $10,298,494 |
Northern Ohio Handicapped Fund Burton, OH | $172,519 | $6,181,567 |
The Marfan Foundation Inc Port Washington, NY | $16,600,923 | $9,814,628 |
Prevention Links Roselle, NJ | $1,171,650 | $4,754,072 |
Learning Disabilities Association Of Western New York Inc Kenmore, NY | $2,525,018 | $4,880,891 |
Eb Research Partnership Inc New York, NY | $20,862,871 | $7,736,054 |
Yairockland County Association For People With Disabilities New York, NY | $0 | $3,637,352 |
Prevention Resources Inc Flemington, NJ | $1,493,246 | $2,776,493 |
United Mitochondrial Disease Foundation Inc Pittsburgh, PA | $5,488,767 | $3,021,406 |
National Gaucher Foundation Inc Rockville, MD | $1,425,962 | $2,242,536 |