Ald Connect Inc
- Assets
- $1.0m
- Revenue
- $461.1k
- Investments
- $0.0
- Employees
- 0
- Location
- Middleton, MA
- Founding
- 09/2014
- Data as of
- 12/2021
- EIN
- 46-3749890
Organization Overview
Ald Connect Inc is located in Middleton, MA. The organization was established in 2014. According to its NTEE Classification (G80) the organization is classified as: Specifically Named Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Ald Connect Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Ald Connect Inc generated $461.1k in total revenue. The organization has seen a slow decline revenue. Over the past 7 years, revenues have fallen by an average of 0.0% each year. All expenses for the organization totaled $184.0k during the year ending 12/2021. As we would expect to see with falling revenues, expenses have declined by (11.8%) per year over the past 7 years. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
TO IMPROVE HEALTH OUTCOMES FOR INDIVIDUALS WITH X-LINKED ADRENOLEUKODYSTROPHY ("ALD") BY RAISING AWARENESS, EMPOWERING PATIENTS, AND ACCELERATING THE TRANSLATION
Describe the Organization's Program Activity:
Part 3 - Line 4a
ALDC SPONSORS AN ANNUAL MEDICAL CONFERENCE, MAINTAINS A WEBSITE WITH EDUCATIONAL CONTENT, PRODUCES FREE WEBINARS, HOSTS SUPPORT CALLS FOR VARIOUS PATIENT GROUPS, AND RAISES AWARENESS. ALDC ALSO HOSTS A PATIENT PORTAL AND COLLECTS PATIENT HEALTH DATA. ALDC WORKS WITH ITS INDUSTRY ADVISORY COUNCIL TO BRING INDUSTRY REPRESENTATIVES TOGETHER TO ENCOURAGE THEIR WORK IN THE ALD/AMN FIELD.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Kelly Miettunen Executive Director | Officer | 10 | $89,321 |
Kathleen M O'sullivan-Fortin ESQ Treasurer | OfficerTrustee | 30 | $0 |
Florian Eichler MD President | OfficerTrustee | 10 | $0 |
Patricia Chapman Clerk | OfficerTrustee | 5 | $0 |
Gregory Benton Director | Trustee | 2 | $0 |
Josh Bonkowsky MD PHD Director | Trustee | 4 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $47,431 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $414,132 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $461,563 |
| Total Program Service Revenue | $0 |
| Investment income | $0 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | -$510 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $461,053 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $101,671 |
| Fees for services: Legal | $4,129 |
| Fees for services: Accounting | $7,171 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $0 |
| Advertising and promotion | $4,893 |
| Office expenses | $5,343 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $1,776 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $22,329 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $215 |
| Insurance | $1,207 |
| All other expenses | $0 |
| Total functional expenses | $183,979 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $1,033,490 |
| Savings and temporary cash investments | $100 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $819 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $2,899 |
| Other assets | $0 |
| Total assets | $1,037,308 |
| Accounts payable and accrued expenses | $17,860 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $17,860 |
| Net assets without donor restrictions | $994,448 |
| Net assets with donor restrictions | $25,000 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $1,037,308 |
Grants Awarded
Over the last fiscal year, Ald Connect Inc has awarded $56,192 in support to 2 organizations.
| Grant Recipient | Amount |
|---|---|
Somerville, MA PURPOSE: RESEARCH | $45,912 |
Baltimore, MD PURPOSE: RESEARCH | $10,280 |
Grants Recieved
Over the last fiscal year, we have identified 4 grants that Ald Connect Inc has recieved totaling $37,082.
| Awarding Organization | Amount |
|---|---|
Ayco Charitable Foundation Cohoes, NY PURPOSE: MEDICAL / PUBLIC SERVICES | $25,000 |
Michael And Cynthia Johnson Foundation Alamo, CA PURPOSE: CHARITABLE DONATION | $10,000 |
Lebovitz Family Charitable Trust Chattanooga, TN PURPOSE: TO SUPPORT A PUBLIC CHARITY | $1,250 |
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $832 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Joslin Diabetes Center Inc Boston, MA | $107,556,453 | $76,953,905 |
Fund For Public Health In New York Inc New York, NY | $56,819,635 | $72,117,813 |
National Organization For Rare Disorders Inc Quincy, MA | $37,875,246 | $43,188,172 |
Lymphoma Research Foundation New York, NY | $31,207,101 | $16,103,858 |
African Leaders Malaria Alliance Inc Laurelton, NY | $8,771,808 | $10,298,494 |
The Marfan Foundation Inc Port Washington, NY | $16,600,923 | $9,814,628 |
Learning Disabilities Association Of Western New York Inc Kenmore, NY | $2,525,018 | $4,880,891 |
Eb Research Partnership Inc New York, NY | $20,862,871 | $7,736,054 |
Yairockland County Association For People With Disabilities New York, NY | $0 | $3,637,352 |
Allegany Council On Alcoholism And Substance Abuse Inc Wellsville, NY | $2,491,126 | $2,749,912 |
Positudes Inc Westbury, NY | $32,648,999 | $5,043,435 |
Learning Disabilities Association Of Central New York Inc Syracuse, NY | $1,127,116 | $1,639,130 |