Ald Connect Inc
- Assets
- $1.0m
- Revenue
- $413.3k
- Investments
- $0.0
- Employees
- 1
- Location
- Middleton, MA
- Founding
- 09/2014
- Data as of
- 12/2023
- EIN
- 46-3749890
Organization Overview
Ald Connect Inc is located in Middleton, MA. The organization was established in 2014. According to its NTEE Classification (G80) the organization is classified as: Specifically Named Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Ald Connect Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2023, Ald Connect Inc generated $413.3k in total revenue. The organization has seen a slow decline revenue. Over the past 9 years, revenues have fallen by an average of (1.2%) each year. All expenses for the organization totaled $306.9k during the year ending 12/2023. As we would expect to see with falling revenues, expenses have declined by (4.0%) per year over the past 9 years. You can explore the organizations financials more deeply in the financial statements section below.
Since 2014, Ald Connect Inc has awarded 14 individual grants totaling $631,661. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
TO IMPROVE HEALTH OUTCOMES FOR INDIVIDUALS WITH X-LINKED ADRENOLEUKODYSTROPHY ("ALD") BY RAISING AWARENESS, EMPOWERING PATIENTS, AND ACCELERATING THE TRANSLATION
Describe the Organization's Program Activity:
Part 3 - Line 4a
ALDC SPONSORS AN ANNUAL MEDICAL CONFERENCE, MAINTAINS A WEBSITE WITH EDUCATIONAL CONTENT, PRODUCES FREE WEBINARS, HOSTS SUPPORT CALLS FOR VARIOUS PATIENT GROUPS, AND RAISES AWARENESS. ALDC ALSO HOSTS A PATIENT PORTAL AND COLLECTS PATIENT HEALTH DATA. ALDC WORKS WITH ITS INDUSTRY ADVISORY COUNCIL TO BRING INDUSTRY REPRESENTATIVES TOGETHER TO ENCOURAGE THEIR WORK IN THE ALD/AMN FIELD.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Florian Eichler MD President | OfficerTrustee | 10 | $0 |
Kathleen M O'sullivan-Fortin ESQ Treasurer | OfficerTrustee | 30 | $0 |
Patricia Chapman Secretary | OfficerTrustee | 5 | $0 |
Gregory Benton Director | Trustee | 2 | $0 |
Josh Bonkowsky MD PHD Director | Trustee | 4 | $0 |
S Ali Fatemi MD Director | Trustee | 5 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $69,500 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $343,002 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $412,502 |
| Total Program Service Revenue | $0 |
| Investment income | $825 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $413,327 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $17,200 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $119,326 |
| Fees for services: Legal | $809 |
| Fees for services: Accounting | $7,454 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $0 |
| Advertising and promotion | $13,599 |
| Office expenses | $17,565 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $1,805 |
| Travel | $6,858 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $101,937 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $215 |
| Insurance | $1,303 |
| All other expenses | $0 |
| Total functional expenses | $306,862 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $842,554 |
| Savings and temporary cash investments | $184,810 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $2,500 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $818 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $2,469 |
| Other assets | $0 |
| Total assets | $1,033,151 |
| Accounts payable and accrued expenses | $15,161 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $15,161 |
| Net assets without donor restrictions | $1,017,990 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $1,033,151 |
Grants Awarded
Over the last fiscal year, Ald Connect Inc has awarded $67,200 in support to 3 organizations.
| Grant Recipient | Amount |
|---|---|
UNIVERSITY OF UTAH PURPOSE: RESEARCH | $6,600 |
LUCILE PACKARD FOUNDATION FOR CHILDREN'S HEALTH PURPOSE: RESEARCH | $54,000 |
KENNEDY KRIEGER INSTITUTE PURPOSE: RESEARCH | $6,600 |