Lupus And Allied Diseases Association Inc
- Assets
- $2.2m
- Revenue
- $1.0m
- Investments
- $0.0
- Employees
- 0
- Location
- Verona, NY
- Founding
- 11/1980
- Data as of
- 09/2023
- EIN
- 16-1083229
Organization Overview
Lupus And Allied Diseases Association Inc is located in Verona, NY. The organization was established in 1980. According to its NTEE Classification (G80) the organization is classified as: Specifically Named Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Lupus And Allied Diseases Association Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 09/2023, Lupus And Allied Diseases Association Inc generated $1.0m in total revenue. This organization has experienced exceptional growth, as over the past 4 years, it has increased revenue by an average of 12.0% each year . All expenses for the organization totaled $707.4k during the year ending 09/2023. You can explore the organizations financials more deeply in the financial statements section below.
Since 2020, Lupus And Allied Diseases Association Inc has awarded 19 individual grants totaling $1,499,220. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
TO ENHANCE QUALITY OF LIFE FOR THOSE AFFECTED BY LUPUS AND ALLIED DISEASES BY PROVIDING EDUCATION AND EMPOWERMENT PROGRAMS AND WIELDING THE PATIENT VOICE AS A CATALYST TO IMPROVE HEALTHCARE AND TREATMENT ACCESS, ADVANCE RESEARCH AND PROMOTE ADVOCACY AND AWARENESS INITIATIVES.
Describe the Organization's Program Activity:
Part 3 - Line 4a
1. THE ORGANIZATION SUPPORTED LUPUS AND AUTOIMMUNE RESEARCH TO IMPROVE METHODS OF DIAGNOSIS AND TREATMENT, AS WELL AS TO FIND CAUSES AND CURES FOR LUPUS AND AUTOIMMUNE DISEASES BY FUNDING A $150,000 GRANT TO THE LUPUS RESEARCH ALLIANCE FOR NONINVASIVE IMAGING OF LUPUS NEPHRITIS AND TARGETING B CELLS TO PREVENT FETAL LOSS PROJECTS. 2. THE ORGANIZATION SUPPORTED PEDIATRIC LUPUS RESEARCH TO STUDY NEUROPSYCHIATRIC SLE AND GENETICS TO ADVANCE PRECISION MEDICINE IN THE PEDIATRIC POPULATION BY FUNDING A $101,400 GRANT TO THE CHILDHOOD ARTHRITIS AND RHEUMATOLOGY RESEARCH ALLIANCE. 3. THE ORGANIZATION ALSO SUPPORTED $45,000 TO SUPPORT THE MICHAEL JON BARLIN CHILDHOOD PEDIATRIC RESEARCH PROGRAM TO IMPROVE THE QUALITY OF LIFE FOR THE PEDIATRIC POPULATION WITH LUPUS AT THE LUPUS FOUNDATION OF AMERICA. 4. THE ORGANIZATION FUNDED THE MARC R. CHEVRIER, MD, PHD, FACR, LUPUS RESEARCH MEMORIAL FUND AT THE RHEUMATOLOGY RESEARCH FOUNDATION BY SUPPORTING A $35,000 GRANT WITHIN THE FOUNDATION'S PRECEPTORSHIPS PROGRAM. 5. THE ORGANIZATION SUPPORTED LUPUS RESEARCH BY FUNDING A $200,000 GRANT TO THE MASONIC MEDICAL RESEARCH INSTITUTE FOR USE OF CARDIOSPHERE-DERIVED HUMAN EXOSOMES, THE RHOA PATHWAY IN LUPUS NEPHRITIS, SHP2 INFLAMMATORY MACROPHAGE AND EFFECTS OF LYMPHOCYTES ON VTS.
THE ORGANIZATION PROVIDED PUBLIC EDUCATION AND ADVOCATED FOR THOSE IMPACTED BY LUPUS AND AUTOIMMUNE DISEASES IN VARIOUS STATES AND FEDERALLY THROUGH EDUCATION MEETINGS, BRIEFINGS, SEMINARS, FORUMS, PUBLIC TESTIMONY, AND WRITTEN COMMENTS. THE ORGANIZATION ALSO DISTRIBUTED INFORMATIONAL MATERIALS, NEWSLETTERS, AND ISSUE BRIEFS; DEVELOPED POSTER PRESENTATIONS; AND REPRESENTED THE LUPUS AND AUTOIMMUNE PATIENT PERSPECTIVE AT EDUCATION AND ADVOCACY INITIATIVES TO IMPROVE ACCESS TO MEDICAL CARE AND TREATMENTS AND ADVANCE BIOMEDICAL RESEARCH TO IMPROVE PATIENT QUALITY OF LIFE.
THE ORGANIZATION PROMOTED DISEASE AWARENESS BY DISSEMINATING INFORMATION AT VIRTUAL AND IN PERSON HEALTH AND WELLNESS EVENTS; PARTICIPATING IN MEDIA INTERVIEWS, PRESS RELEASES, SPEAKING ENGAGEMENTS AND PRESS CONFERENCES; POSTING INFORMATION AND RESOURCES TO WEBSITES AND THROUGH SOCIAL MEDIA, BLOGS, OP-EDS, VIDEOS, AND E-MAILS; AND HOSTING INFORMATIONAL BOOTHS IN EXHIBIT HALLS TO IMPROVE DISEASE AWARENESS TO THE GENERAL PUBLIC, MEDICAL PROFESSIONAL COMMUNITY, PUBLIC OFFICIALS, THE MEDIA, RESEARCHERS, THE HEALTHCARE INDUSTRY, AND PEOPLE WITH LUPUS AND ALLIED DISEASES AND THEIR LOVED ONES.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Lori A Vogel Treasurer | OfficerTrustee | 14 | $0 |
Lisabeth S Iglesias Director | Trustee | 10 | $0 |
Jane M Porter Director | Trustee | 8 | $0 |
Dina Thachet Director | Trustee | 5 | $0 |
Brian J Vogel Director | Trustee | 4 | $0 |
Anne M Zablotowicz Director | Trustee | 10 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $205 |
| Membership dues | $0 |
| Fundraising events | $154,243 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $808,455 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $962,903 |
| Total Program Service Revenue | $0 |
| Investment income | $46,627 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $1,009,530 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $531,400 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $2,500 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $0 |
| Advertising and promotion | $0 |
| Office expenses | $5,510 |
| Information technology | $3,184 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $211 |
| Insurance | $2,578 |
| All other expenses | $0 |
| Total functional expenses | $707,359 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $301,604 |
| Savings and temporary cash investments | $1,944,624 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $317 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $2,246,545 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $0 |
| Net assets without donor restrictions | $2,246,545 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $2,246,545 |
Grants Awarded
Over the last fiscal year, Lupus And Allied Diseases Association Inc has awarded $531,400 in support to 5 organizations.
| Grant Recipient | Amount |
|---|---|
CARRA PURPOSE: Pediatric Lupus Research | $101,400 |
LUPUS FOUNDATION OF AMERICA PURPOSE: Pediatric Lupus Research | $45,000 |
LUPUS RESEARCH ALLIANCE PURPOSE: Lupus Research | $150,000 |
RHEUMATOLOGY RESEARCH FOUNDATION PURPOSE: Marc Chevrier Lupus Research Fund | $35,000 |
MASONIC MEDICAL RESEARCH INSTITUTE PURPOSE: Lupus and Lupus Nephritis Research | $200,000 |