Lupus And Allied Diseases Association Inc

TO ENHANCE QUALITY OF LIFE FOR THOSE AFFECTED BY LUPUS AND ALLIED DISEASES BY PROVIDING EDUCATION AND EMPOWERMENT PROGRAMS AND WIELDING THE PATIENT VOICE AS A CATALYST TO IMPROVE HEALTHCARE AND TREATMENT ACCESS, ADVANCE RESEARCH AND PROMOTE ADVOCACY AND AWARENESS INITIATIVES.

1. THE ORGANIZATION SUPPORTED LUPUS AND AUTOIMMUNE RESEARCH TO IMPROVE METHODS OF DIAGNOSIS AND TREATMENT, AS WELL AS TO FIND CAUSES AND CURES FOR LUPUS AND AUTOIMMUNE DISEASES BY FUNDING A $150,000 GRANT TO THE LUPUS RESEARCH ALLIANCE. 2. THE ORGANIZATION SUPPORTED PEDIATRIC LUPUS RESEARCH TO STUDY NEUROPSYCHIATRIC SLE AND GENETICS TO ADVANCE PRECISION MEDICINE IN THE PEDIATRIC POPULATION BY FUNDING A $70,000 GRANT TO THE CHILDHOOD ARTHRITIS AND RHEUMATOLOGY RESEARCH ALLIANCE. 3. THE ORGANIZATION SUPPORTED MESENCHYMAL STEM CELL RESEARCH TO ADVANCE BETTER TREATMENTS TO IMPROVE QUALITY OF LIFE FOR PEOPLE WITH LUPUS BY FUNDING A $50,000 GRANT TO THE LUPUS FOUNDATION OF AMERICA. 4. THE ORGANIZATION FUNDED THE MARC R. CHEVRIER, MD, PHD, FACR, LUPUS RESAERCH MEMORIAL FUND AT THE RHEUMATOLOGY RESEARCH FOUNDATION BY FUNDING A $30,200 GRANT WITHIN THE FOUNDATION'S PRECEPTORSHIP PROGRAM. 5. THE ORGANIZATION SUPPORTED LUPUS RESEARCH BY FUNDING A $150,000 GRANT TO THE MASONIC MEDICAL RESEARCH INSTITUTE TO PROVIDE $50,000 ADDITIONAL FUNDING FOR USE OF CARDIOSPHERE-DERIVED HUMAN EXOSOMES AS THERAPEUTIC AGENTS, $50,000 TO SUPPORT A STUDY ON THE RHOA PATHWAY AS A TARGET IN LUPUS NEPHRITIS, AND $50,000 TO SUPPORT A STUDY ON GAIN-OF-FUNCTION MUTATIONS IN SHP2 ENHANCE INFLAMMATORY MACROPHAGE ACTIVATION IN SLE.

THE ORGANIZATION PROVIDED PUBLIC EDUCATION AND ADVOCATED FOR THOSE IMPACTED BY LUPUS AND AUTOIMMUNE DISEASES IN VARIOUS STATES AND FEDERALLY THROUGH EDUCATION MEETINGS, BRIEFINGS, SEMINARS, FORUMS, PUBLIC TESTIMONY, AND WRITTEN COMMENTS. THE ORGANIZATION ALSO DISTRIBUTED INFORMATIONAL MATERIALS, NEWSLETTERS, AND ISSUE BRIEFS; DEVELOPED POSTER PRESENTATIONS; AND REPRESENTED THE LUPUS AND AUTOIMMUNE PATIENT PERSPECTIVE AT EDUCATION AND ADVOCACY INITIATIVES TO IMPROVE ACCESS TO MEDICAL CARE AND TREATMENTS AND ADVANCE BIOMEDICAL RESEARCH TO IMPROVE PATIENT QUALITY OF LIFE. THE ORGANIZATION ALSO FUNDED PATIENT EDUCATION AND ADVOCACY GRANTS TO SEVERAL PATIENT ADVOCACY ORGANIZATIONS TO SUPPORT THEIR OWN PROGRAMS.

THE ORGANIZATION PROMOTED DISEASE AWARENESS BY DISSEMINATING INFORMATION AT VIRTUAL AND IN PERSON HEALTH AND WELLNESS EVENTS; PARTICIPATING IN MEDIA INTERVIEWS, PRESS RELEASES, SPEAKING ENGAGEMENTS AND PRESS CONFERENCES; POSTING INFORMATION AND RESOURCES TO WEBSITES AND THROUGH SOCIAL MEDIA, BLOGS, OP-EDS, VIDEOS, AND E-MAILS; AND HOSTING INFORMATIONAL BOOTHS IN EXHIBIT HALLS TO IMPROVE DISEASE AWARENESS TO THE GENERAL PUBLIC, MEDICAL PROFESSIONAL COMMUNITY, PUBLIC OFFICIALS, THE MEDIA, RESEARCHERS, THE HEALTHCARE INDUSTRY, AND PEOPLE WITH LUPUS AND ALLIED DISEASES AND THEIR LOVED ONES.