National Capital Lyme Disease Association
- Assets
- $434.1k
- Revenue
- $115.9k
- Investments
- $0.0
- Employees
- 0
- Location
- Mc Lean, VA
- Founding
- 06/2001
- Data as of
- 12/2019
- EIN
- 31-1752628
Organization Overview
National Capital Lyme Disease Association is located in Mc Lean, VA. The organization was established in 2001. According to its NTEE Classification (G80) the organization is classified as: Specifically Named Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. National Capital Lyme Disease Association is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2019, National Capital Lyme Disease Association generated $115.9k in total revenue. This represents a relatively dramatic decline in revenue. Over the past 2 years, the organization has seen revenues fall by an average of (4.8%) each year. All expenses for the organization totaled $127.9k during the year ending 12/2019. As we would expect to see with falling revenues, expenses have declined by (5.1%) per year over the past 2 years. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2019
Describe the Organization's Mission:
Part 3 - Line 1
TO IMPROVE THE QUALITY OF LIFE FOR PEOPLE SUFFERING FROM LYME AND OTHER TICK-BORNE ILLNESSES.
Describe the Organization's Program Activity:
Part 3 - Line 4a
LEGISLATIVE EDUCATION AND ADVOCACY: NATIONAL CAPITAL LYME DISEASE ASSOCIATION CREATES AND PARTICIPATES IN ACTIVITIES TO EDUCATE LEGISLATORS TO THE HARMFUL EFFECTS OF LYME DISEASE ON THEIR CONSTITUENTS AND THE PUBLIC IN GENERAL AND TO ADVOCATE TO LOCAL AND FEDERAL AGENCIES AND LEGISLATIVE BODIES ON THE NEED FOR PROTECTION AND RELIEF FOR THOSE WHO SUFFER FROM THIS EVER-SPREADING DISEASE.
PUBLIC INFORMATION AND AWARENESS: NATIONAL CAPITAL LYME DISEASE ASSOCIATION PRINTS BROCHURES AND OTHER DOCUMENTS TO INFORM THE GENERAL PUBLIC, AMONG OTHER THINGS, OF THE DANGERS AND SYMPTOMS OF LYME DISEASE AND HOW TO LIMIT EXPOSURE TO TICKS AND THE PROPER REMOVAL OF TICKS FROM THE BODY.
RESEARCH: SUPPORT INNOVATIVE RESEARCH THAT TARGETS THE PATHOGENESIS OF TICKBORNE DISEASES AND TREATMENTS TO IMPROVE OUTCOMES FOR LONG-TERM SEQUELAE OF TICK-BORNE INFECTIONS
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Monte L Skall Exective Director | OfficerTrustee | 80 | $0 |
Kathy Boileau Director | Trustee | 8 | $0 |
Nancy Brooks Director | Trustee | 5 | $0 |
Barbara Cohen Director | Trustee | 8 | $0 |
Lisa Colbert Director | Trustee | 2 | $0 |
Maureen Crystal Director | Trustee | 2 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $48,399 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $67,470 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $115,869 |
| Total Program Service Revenue | $0 |
| Investment income | $13 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $115,882 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $44,400 |
| Grants and other assistance to domestic individuals. | $2,500 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $3,557 |
| Fees for services: Accounting | $4,048 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $1,380 |
| Advertising and promotion | $13,596 |
| Office expenses | $3,045 |
| Information technology | $12,415 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $1,475 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $1,477 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $1,482 |
| All other expenses | $1,232 |
| Total functional expenses | $127,919 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $407,637 |
| Savings and temporary cash investments | $26,459 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $434,096 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $0 |
| Net assets without donor restrictions | $0 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $434,096 |
| Total liabilities and net assets/fund balances | $434,096 |
Grants Awarded
Over the last fiscal year, National Capital Lyme Disease Association has awarded $44,400 in support to 4 organizations.
| Grant Recipient | Amount |
|---|---|
OLD DOMINION UNIVERSITY PURPOSE: RESEARCH | $6,000 |
LEAF PROGRAM INC PURPOSE: EDUCATION | $15,000 |
JOHN HOPKINS UNIVERSITY PURPOSE: RESEARCH | $15,000 |
ILADEF PURPOSE: EDUCATION | $8,400 |