Hidradenitis Suppurativa Foundation Inc
- Assets
- $1.2m
- Revenue
- $679.0k
- Investments
- $0.0
- Employees
- 0
- Location
- Cary, NC
- Founding
- 09/2005
- Data as of
- 12/2021
- EIN
- 20-3246772
Organization Overview
Hidradenitis Suppurativa Foundation Inc is located in Cary, NC. The organization was established in 2005. According to its NTEE Classification (G80) the organization is classified as: Specifically Named Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Hidradenitis Suppurativa Foundation Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Hidradenitis Suppurativa Foundation Inc generated $679.0k in total revenue. This organization has experienced exceptional growth, as over the past 7 years, it has increased revenue by an average of 43.6% each year . All expenses for the organization totaled $386.6k during the year ending 12/2021. While expenses have increased by 44.1% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
THE HIDRADENITIS SUPPURATIVA FOUNDATION (HSF) IS A NONPROFIT PUBLIC BENEFIT CORPORATION DEDICATED TO IMPROVING THE QUALITY OF LIFE AND QUALITY OF CARE FOR INDIVIDUALS AND FAMILIES AFFECTED BY HIDRADENITIS SUPPURATIVA (HS). THE HSF FOSTERS AND ENCOURAGES WORLDWIDE RESEARCH BY DEVELOPING AND SUPPORTING AN INTERDISCIPLINARY FAMILY OF SCIENTISTS AND PHYSICIANS DEVOTED TO STUDYING THE MOLECULAR AND CELLULAR BASIS OF HS, IN ORDER TO DEVELOP AND DELIVER MORE EFFECTIVE FORMS OF TREATMENT AND PREVENTATIVE MEASURES FOR THOSE WITH THIS DEBILITATING AND EMINENTLY CHRONIC DISEASE.
Describe the Organization's Program Activity:
Part 3 - Line 4a
THE SIXTH ANNUAL SYMPOSIUM ON HIDRADENITIS SUPPURATIVA ADVANCES (SHSA) WAS HELD VIRTUALLY IN 2021 DUE TO THE ONGOING PANDEMIC. CO-ORGANIZED WITH THE CANADIAN HS FOUNDATION, OVER 350 REGISTRANTS FROM OVER 20 COUNTRIES ATTENDED THE EVENT, INCLUDING NEARLY 100 PATIENTS AND CAREGIVERS AND OVER 100 MEDICAL PROVIDERS.
THE HS FOUNDATION ONCE AGAIN PROVIDED FUNDING FOR HS PROGRESS THROUGH THE FOUNDATION'S TRANSLATIONAL GRANT PROGRAM. HS PROGRESS, WHICH STANDS FOR HIDRADENITIS SUPPURATIVA PROSPECTIVE OBSERVATIONAL REGISTRY AND BIOSPECIMEN REPOSITORY, WAS PROVIDED A THIRD YEAR OF FUNDING AS WELL AS FUNDING FOR THE ONBOARDING OF THE SECOND SITE (MAYO CLINIC). THE REPOSITORY WILL BE THE FIRST OF ITS KIND, INVOLVING A LONGITUDINAL COHORT OF HS PATIENTS IN ALL STAGES OF DISEASE TO UNDERSTAND THE CLINICAL COURSE. THE HS FOUNDATION ALSO PROVIDED GRANT FUNDING TO ONE DANBY RESEARCH GRANT AWARDEE IN THE AMOUNT OF $10,000 AND ONE CAPE GRANT AWARDEE IN THE AMOUNT OF $2,000.
THE HS FOUNDATION HELD ITS FIRST EVER EDUCATIONAL EVENT TARGETED TOWARDS DERMATOLOGY RESIDENTS. THE PURPOSE OF THE EVENT WAS TO EDUCATE THE NEXT GENERATION OF DERMATOLOGISTS ABOUT THE LATEST ADVANCEMENTS IN DIAGNOSIS, PATHOGENESIS, EPIDEMIOLOGY AND COMORBIDITIES, AS WELL AS MEDICAL AND PROCEDURE-BASED TREATMENTS FOR HIDRADENITIS SUPPURATIVA THROUGH LECTURE, BREAK-OUT SESSIONS, AND CASE-BASED STUDIES WITH RENOWNED EXPERTS AND PATIENTS. OVER 75 RESIDENTS ATTENDED THIS TWO-DAY EDUCATIONAL EXPERIENCE.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Brent Hazelett Executive Director | Officer | 15 | $84,000 |
Iltefat Hamzavi MD President | OfficerTrustee | 4 | $0 |
Joslyn R Sciacca Kirby MD Vice President | OfficerTrustee | 4 | $0 |
Martin Okun MD Secretary | OfficerTrustee | 4 | $0 |
Hadar Lev-Tov MD Treasurer | OfficerTrustee | 4 | $0 |
Athena Gierbolini Board Member | Trustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $526,644 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $526,644 |
| Total Program Service Revenue | $144,983 |
| Investment income | $2,362 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $679,044 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $97,000 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $84,000 |
| Compensation of current officers, directors, key employees. | $33,600 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $410 |
| Fees for services: Accounting | $8,295 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $8,805 |
| Fees for services: Investment Management | $163 |
| Fees for services: Other | $3,500 |
| Advertising and promotion | $12,591 |
| Office expenses | $1,735 |
| Information technology | $5,000 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $957 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $153,618 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $1,487 |
| All other expenses | $0 |
| Total functional expenses | $386,599 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $61,281 |
| Savings and temporary cash investments | $1,001,427 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $58,179 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $98,493 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $1,219,380 |
| Accounts payable and accrued expenses | $20,516 |
| Grants payable | $0 |
| Deferred revenue | $66,444 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $86,960 |
| Net assets without donor restrictions | $1,104,369 |
| Net assets with donor restrictions | $28,051 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $1,219,380 |
Grants Awarded
Over the last fiscal year, Hidradenitis Suppurativa Foundation Inc has awarded $95,000 in support to 3 organizations.
| Grant Recipient | Amount |
|---|---|
UNIVERSITY OF CALIFORNIA SAN FRANCISCO PURPOSE: GRANT FUNDING PROVIDED TO RESEARCHERS AND INSTITUTIONS TO SUPPORT THEIR RESEARCH ADVANCES IN HS. | $75,000 |
NATIONAL INSTITUTE OF ARTHRITIS AND MUSCULOSKELETAL AND SKIN DISEASES PURPOSE: GRANT FUNDING PROVIDED TO RESEARCHERS AND INSTITUTIONS TO SUPPORT THEIR RESEARCH ADVANCES IN HS. | $10,000 |
Rochester, MN PURPOSE: GRANT FUNDING PROVIDED TO RESEARCHERS AND INSTITUTIONS TO SUPPORT THEIR RESEARCH ADVANCES IN HS. | $10,000 |
Grants Recieved
Over the last fiscal year, we have identified 1 grants that Hidradenitis Suppurativa Foundation Inc has recieved totaling $467.
| Awarding Organization | Amount |
|---|---|
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $467 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
American Diabetes Association Inc Arlington, VA | $186,412,830 | $138,165,721 |
Malaria Consortium Raleigh, NC | $5,886,578 | $4,408,499 |
No Baby Blisters Winston Salem, NC | $835,772 | $4,997,748 |
Stuttering Foundation Of America Memphis, TN | $42,100,129 | $1,981,007 |
The Als Association Of Georgia Inc Atlanta, GA | $1,686,109 | $1,269,205 |
Dyslexia Resource Trust Inc Atlanta, GA | $1,477,246 | $1,480,098 |
The Multiple System Atrophy Coalition Inc Mclean, VA | $7,567,273 | $2,031,145 |
Angioma Alliance Charlottesville, VA | $1,215,381 | $1,078,304 |
Lupus Foundation Of America Georgia Chapter Inc Smyrna, GA | $558,120 | $586,075 |
Mackenzies Mission Great Falls, VA | $152,356 | $392,048 |
Pediatric Infectious Diseases Society Arlington, VA | $2,174,813 | $704,677 |
Diabetessisters Raleigh, NC | $952,848 | $466,053 |