Angioma Alliance
- Assets
- $1.2m
- Revenue
- $1.1m
- Investments
- $0.0
- Employees
- 6
- Location
- Charlottesville, VA
- Founding
- 07/2002
- Data as of
- 09/2022
- EIN
- 02-0600697
Organization Overview
Angioma Alliance is located in Charlottesville, VA. The organization was established in 2002. According to its NTEE Classification (G80) the organization is classified as: Specifically Named Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 09/2022, Angioma Alliance employed 6 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Angioma Alliance is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 09/2022, Angioma Alliance generated $1.1m in total revenue. This organization has experienced exceptional growth, as over the past 7 years, it has increased revenue by an average of 19.7% each year . All expenses for the organization totaled $800.2k during the year ending 09/2022. While expenses have increased by 14.0% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2022
Describe the Organization's Mission:
Part 3 - Line 1
THE MISSION OF ANGIOMA ALLIANCE IS TO INFORM AND SUPPORT INDIVIDUALS AFFECTED BY CEREBRAL CAVERNOUS MALFORMATIONS WHILE FACILITATING IMPROVED DIAGNOSIS AND MANAGEMENT OF THE ILLNESS THROUGH EDUCATION & SUPPORT. THE ORGANIZATION ALSO PROMOTES RESEARCH INTO A CURE AND PREVENTION OF THE DISEASE.
Describe the Organization's Program Activity:
Part 3 - Line 4a
FAMILY AND SCIENTIFIC CONFERENCES CONDUCTED TO DISEMINATE INFORMATION ABOUT CCM TO THOSE AFFECTED AND THEIR FAMILIES.
CREATION AND MAINTENANCE OF A PATIENT REGISTRY TO ADVOCATE, FACILITATE AND PARTICIPATE IN CCM RESEARCH IN THE PURSUIT OF A GREATER UNDERSTANDING OF THE DISEASE.
PERFORMANCE OF COMMUNITY OUTREACH, PUBLICATION OF NEWSLETTER, AND MAINTENANCE OF WEBSITE TO INCREASE PUBLIC AWARENESS, PROVIDE SUPPORT, AND BUILD A BROAD BASE OF RESEARCH FUNDING RESOURCES.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Amy L Akers Chief Scientific Officer | Officer | 5 | $12,320 |
Cornelia Lee Psyd President & CEO | OfficerTrustee | 40 | $0 |
Karen Buck Treasurer | OfficerTrustee | 2 | $0 |
Tim Gallegos Director | Trustee | 0.5 | $0 |
David Borland Director | Trustee | 0.5 | $0 |
Anthony Mayer Chair | Trustee | 0.5 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $149,851 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $918,733 |
| Noncash contributions included in lines 1a–1f | $44,815 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $1,068,584 |
| Total Program Service Revenue | $0 |
| Investment income | $66 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $1,078,304 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $542,907 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $17,593 |
| Payroll taxes | $44,682 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $5,094 |
| Fees for services: Accounting | $8,006 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $65,267 |
| Advertising and promotion | $631 |
| Office expenses | $41,444 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $2,504 |
| Travel | $11,153 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $444 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $6,630 |
| Insurance | $7,764 |
| All other expenses | $352 |
| Total functional expenses | $800,162 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $1,182,800 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $9,603 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $22,978 |
| Total assets | $1,215,381 |
| Accounts payable and accrued expenses | $31,917 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $3,900 |
| Total liabilities | $35,817 |
| Net assets without donor restrictions | $1,166,488 |
| Net assets with donor restrictions | $13,076 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $1,215,381 |
Grants Recieved
Over the last fiscal year, we have identified 7 grants that Angioma Alliance has recieved totaling $711,253.
| Awarding Organization | Amount |
|---|---|
Silicon Valley Community Foundation Mountain View, CA PURPOSE: Health | $600,000 |
Schwab Charitable Fund San Francisco, CA PURPOSE: HEALTH | $74,431 |
Global Genes Aliso Viejo, CA PURPOSE: 2021 RARE HEALTH EQUITY IMPACT GRANT | $15,000 |
American Online Giving Foundation Inc Newark, DE PURPOSE: GENERAL SUPPORT | $12,721 |
American Endowment Foundation Hudson, OH PURPOSE: DISEASE/DISORDER | $6,000 |
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $2,901 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
American Diabetes Association Inc Arlington, VA | $186,412,830 | $138,165,721 |
Malaria Consortium Raleigh, NC | $5,886,578 | $4,408,499 |
No Baby Blisters Winston Salem, NC | $835,772 | $4,997,748 |
Meredith-Dunn Learning Center Inc Louisville, KY | $4,614,484 | $3,584,903 |
National Center For Learning Disabilities Inc Washington, DC | $10,349,148 | $2,685,624 |
National Gaucher Foundation Inc Rockville, MD | $1,425,962 | $2,242,536 |
Association Of Immunization Managers Rockville, MD | $1,356,883 | $2,872,443 |
United Cerebral Palsy Inc Washington, DC | $10,898,034 | $1,992,500 |
Naaso The Obesity Society Inc Rockville, MD | $4,804,612 | $2,539,900 |
Stuttering Foundation Of America Memphis, TN | $42,100,129 | $1,981,007 |
International Dyslexia Association Inc Pikesville, MD | $2,584,039 | $2,036,941 |
The Multiple System Atrophy Coalition Inc Mclean, VA | $7,567,273 | $2,031,145 |