The Multiple System Atrophy Coalition Inc
- Assets
- $5.9m
- Revenue
- $1.3m
- Investments
- $0.0
- Employees
- 0
- Location
- Mclean, VA
- Founding
- 07/2001
- Data as of
- 12/2023
- EIN
- 74-2926378
Organization Overview
The Multiple System Atrophy Coalition Inc is located in Mclean, VA. The organization was established in 2001. According to its NTEE Classification (G80) the organization is classified as: Specifically Named Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Multiple System Atrophy Coalition Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2023, Multiple System Atrophy Coalition Inc generated $1.3m in total revenue. This represents relatively stable growth, over the past 8 years the organization has increased revenue by an average of 4.9% each year. All expenses for the organization totaled $1.9m during the year ending 12/2023. While expenses have increased by 12.2% per year over the past 8 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Since 2016, Multiple System Atrophy Coalition Inc has awarded 41 individual grants totaling $1,799,918. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
THE MULTIPLE SYSTEM ATROPHY COALITION PROVIDES TRUSTED EMOTIONAL SUPPORT, EDUCATION, RESEARCH FUNDING, AND SENSE OF COMMUNITY FOR PEOPLE LIVING WITH MULTIPLE SYSTEM ATROPHY; ENHANCING QUALITY OF LIFE AND COLLABORATIVELY BUILDING HOPE.
Describe the Organization's Program Activity:
Part 3 - Line 4a
CREATION AND PRODUCTION OF MATERIAL AND PROMOTIONAL ITEMS TO RAISE AWARENESS OF MULTIPLE SYSTEM ATROPHY IN THE MEDICAL AND LAY COMMUNITIES.
RESEARCH GRANT PROGRAM TO PINPOINT A CLEAR CAUSE OF MULTIPLE SYSTEM ATROPHY AND TO IDENTIFY A CURE OR EFFECTIVE THERAPIES THAT SLOW, HALT,OR REVERSE THE INSIDIOUS PROGRESSION OF MSA.
PATIENT AND CAREGIVER EDUCATION AND SUPPORT, INCLUDING ANNUAL CONFERENCE, SUPPORT TELEPHONE LINE, DVDS AND PRINTED EDUCATIONAL MATERIAL.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Pam Bower Chair | OfficerTrustee | 20 | $0 |
Cynthia Roemer Imed Past Chair | OfficerTrustee | 10 | $0 |
Dawn Rodgers-Dexter Treasurer | OfficerTrustee | 15 | $0 |
Patricia Libby Thvedt Secretary | OfficerTrustee | 20 | $0 |
Liz Dyas Director | Trustee | 2 | $0 |
Larry Kellerman Director | Trustee | 2 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $1,186,812 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $1,186,812 |
| Total Program Service Revenue | $0 |
| Investment income | $136,309 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | -$61,283 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $1,261,838 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $386,273 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $100,000 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $1,012,000 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $0 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $28,393 |
| Fees for services: Other | $138,435 |
| Advertising and promotion | $0 |
| Office expenses | $19,188 |
| Information technology | $36,494 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $61,294 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $2,461 |
| All other expenses | $7,798 |
| Total functional expenses | $1,918,382 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $89,178 |
| Savings and temporary cash investments | $618,070 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $33,566 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $5,181,888 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $5,922,702 |
| Accounts payable and accrued expenses | $14,488 |
| Grants payable | $27,919 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $42,407 |
| Net assets without donor restrictions | $2,866,226 |
| Net assets with donor restrictions | $3,014,069 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $5,922,702 |
Grants Awarded
Over the last fiscal year, The Multiple System Atrophy Coalition Inc has awarded $380,408 in support to 19 organizations.
| Grant Recipient | Amount |
|---|---|
MASSACHUSETTS GENERAL HOSPITA PURPOSE: MSA Research | $10,000 |
BRIGHAM AND WOMENS HOSPITAL PURPOSE: MSA Research | $10,000 |
MAYO CLINIC JACKSONVILLE PURPOSE: MSA Research | $10,000 |
MEDICAL UNIVERSITY OF SOUTH C PURPOSE: MSA Research | $10,000 |
PRES & FELLOWS OF HARVARD COL PURPOSE: MSA Research | $90,408 |
NEW YORK UNIVERSITY PURPOSE: MSA Research | $10,000 |