Lupus Foundation Of America Georgia Chapter Inc

Organization Overview

Lupus Foundation Of America Georgia Chapter Inc is located in Smyrna, GA. The organization was established in 1977. According to its NTEE Classification (G80) the organization is classified as: Specifically Named Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 09/2022, Lupus Foundation Of America Georgia Chapter Inc employed 5 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Lupus Foundation Of America Georgia Chapter Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 09/2022, Lupus Foundation Of America Georgia Chapter Inc generated $586.1k in total revenue. The organization has seen a slow decline revenue. Over the past 7 years, revenues have fallen by an average of (2.7%) each year. All expenses for the organization totaled $504.3k during the year ending 09/2022. As we would expect to see with falling revenues, expenses have declined by (4.9%) per year over the past 7 years. You can explore the organizations financials more deeply in the financial statements section below.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2022

Describe the Organization's Mission:

Part 3 - Line 1

SEE PAGE 2 PART III

Describe the Organization's Program Activity:

Part 3 - Line 4a

AS THE ONLY STATEWIDE VALUABLE RESOURCE FOR THE 55,000 GEORGIANS WITH LUPUS, THE GEORGIA CHAPTER PROVIDES THOUSANDS WITH FREE, VALUABLE EDUCATIONAL INFORMATION, PHYSICIAN REFERRALS, RESOURCES, SUPPORT GROUPS AND EDUCATIONAL PROGRAMS REACHING PATIENTS IN 120 OF THE 159 COUNTIES IN GEORGIA. NINETY PERCENT OF EVERY DOLLAR DONATED STAYS IN GEORGIA TO SUPPORT OUR PROGRAMS. THE CHAPTER ALSO SUPPORTS THE NATIONAL RESEARCH EFFORTS OF THE LUPUS FOUNDATION OF AMERICA, WORKING TO ADVANCE THE SCIENCE AND MEDICINE OF LUPUS TO BRING DOWN THE BARRIERS THAT HAVE IMPEDED PROGRESS IN LUPUS RESEARCH. DESPITE ITS PREVALENCE, LUPUS REMAINS ONE OF THE LEAST RECOGNIZABLE AND MOST MISUNDERSTOOD DISEASES IN BOTH THE MEDICAL AND LAY COMMUNITIES. THERE IS NO KNOWN CAUSE, NO CURE, AND THE INCIDENCE HAS INCREASED HUGELY IN THE PAST 20 YEARS. CURRENT TREATMENTS ARE OFTEN VERY TOXIC, THE SIDE EFFECTS OFTEN RIVALING THE SYMPTOMS OF THE DISEASE. WE REACH OUT TO OUR LUPUS CONSTITUENTS AND THEIR FAMILIES WITH OUR YEAR ROUND CHAPTER PROGRAMS AND EVENTS AND IN A VARIETY OF WAYS, FROM DIRECT MAIL TO ONLINE EMAILS BLASTS, WEBSITE UPDATES AND INFORMATION PLACEMENT IN DOCTORS' OFFICES: OVER 39,000 VISITORS TO OUR WEBSITE IN THIS PAST YEAR. OVER 1,200 INQUIRIES AND CHAPTER RESPONSES FROM PATIENTS AND FAMILIES FOR INFORMATION, RESOURCES, AND REFERRALS. MORE THAN 16,000 SOCIAL MEDIA FOLLOWERS. MORE THAN 56,000 PROFILES IN THE CONSTITUENT DATABASE. MORE THAN 25,000 CONSTITUENTS IN THE EMAIL DATABASE. MEDICAL ADVISORY BOARD, COMPRISED OF 57 MEDICAL AND HEALTH CARE PROFESSIONALS DEDICATED TO SUPPORTING THE IMPORTANT WORK OF THE GEORGIA CHAPTER. IN THE PAST YEAR, MORE THAN 1,200 PEOPLE ATTENDED VIRTUAL SYMPOSIUMS, SEMINARS, AND SUMMITS. 25 SUPPORT GROUPS THROUGHOUT THE STATE WITH VIRTUAL ATTENDANCE OF AT LEAST 2,000 PARTICIPANTS. PATIENT NAVIGATOR PROGRAM SUPPORTING 62 PATIENTS AT THE GRADY LUPUS CLINIC AND THE EMORY MIDTOWN NEPHRITIS CLINIC IN OUR FIRST YEAR. SCHOOL NURSES TRAINING FOR 220+ NURSES IN THE METRO ATLANTA AREA IN PARTNERSHIP WITH THE AMERICAN COLLEGE OF RHEUMATOLOGY. 200,000 WHAT IS LUPUS? BROCHURES, IN ENGLISH AND SPANISH HAVE BEEN DISTRIBUTED IN DOCTORS' OFFICES ACROSS GEORGIA. 3,500 WALKERS AND FAMILIES WERE INSPIRED AND EMPOWERED AT THE 2022 ATLANTA WALK TO END LUPUS NOW, THE SECOND LARGEST LFA WALKS IN THE NATION. IN ADDIITON 500 ATTENDED OUR WALKS IN AUGUSTA, COLUMBUS AND MACON. THE GEORGIA CHAPTER CONTINUALLY UPDATES THE LUPUS RESOURCE TOOLKIT WHICH PROVIDES A LIST OF PATIENT SERVICES AVAILABLE IN THE STATE. THE GEORGIA CHAPTER PARTICIPATES IN A NUMBER OF AWARENESS AND EDUCATION CAMPAIGNS INCLUDING THE LFA-CDC FUNDED GRANT TO PROMOTE LUPUS AWARENESS TO MINORITY COMMUNITIES THROUGH THE LFA'S BE FIERCE, TAKE CONTROL AND STRATEGIES TO EMBRACE LIVING WITH LUPUS FEARLESSLY (SELF) INITIATIVES, THE HISTORICALLY BLACK COLLEGE AND UNIVERSITY CAMPAIGN TO BRING AWARENESS TO COLLEGES AND UNIVERSITIES, THE ANNUAL ADVOCACY DAY AT THE GEORGIA STATE CAPITOL, THE WALK TO END LUPUS, AND LUPUS@WORK INITIATIVE TO ADDRESS WORKPLACE CONCERNS. OUR LUPUS PARENT PROJECT, IN PARTNERSHIP WITH CHILDREN'S HEALTHCARE OF ATLANTA, PROVIDES PARENTS OF CHILDREN, ADOLESCENTS, AND YOUNG ADULTS WITH LUPUS WITH THE OPPORTUNITY TO ENGAGE WITH OTHER PARENTS IN A SAFE AND SUPPORTIVE ENVIRONMENT. THE MOST IMPORTANT WORK CONTINUES AT THE PATIENT SERVICES LEVEL, PROVIDING CRITICAL RESOURCES TO 1,300+ PEOPLE INCLUDING EMERGENCY FINANCIAL ASSISTANCE ALL THE WHILE COUNSELLING OUR CONSTITUENTS TO HELP THEM FIND SUSTAINABLE RESOURCES.


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Board, Officers & Key Employees

Name (title)Compensation
Teri Emond
President &
$98,764
Kodell Jackson
Board Co-Cha
$0
Vi-Vi Nguyen
Board Co-Cha
$0
Brittany Wyatt
Secretary
$0
Rebecca Deutsch
Director
$0
Latoya Doby-Holmes
Director
$0

Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$0
Fundraising events$332,186
Related organizations$0
Government grants $0
All other contributions, gifts, grants, and similar amounts not included above$330,818
Noncash contributions included in lines 1a–1f $0
Total Revenue from Contributions, Gifts, Grants & Similar$663,004
Total Program Service Revenue$0
Investment income $0
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $0
Net Income from Fundraising Events -$79,223
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $586,075

Grants Recieved

Over the last fiscal year, we have identified 5 grants that Lupus Foundation Of America Georgia Chapter Inc has recieved totaling $80,997.

Awarding OrganizationAmount
Victor E Clarke Charitable Foundation

Delray Beach, FL

PURPOSE: FOR THE ORGANIZATION'S GENERAL PURPOSE OF SOLVING THE MYSTERIES OF LUPUS

$60,000
Schwab Charitable Fund

San Francisco, CA

PURPOSE: HEALTH

$10,500
Chc Creating Healthier Communities

Alexandria, VA

PURPOSE: RESEARCH/PUBLICEDUCATION

$8,953
Amazonsmile Foundation

Seattle, WA

PURPOSE: GENERAL SUPPORT

$1,519
Bank Of America Charitable Foundation Inc

Charlotte, NC

PURPOSE: OPERATIONAL SUPPORT

$25
View Grant Recipient Profile

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