The International Waldenstroms Macroglobulinemia Foundation Inc
- Assets
- $7.4m
- Revenue
- $4.5m
- Investments
- $0.0
- Employees
- 8
- Location
- Sarasota, FL
- Founding
- 04/2002
- Data as of
- 12/2021
- EIN
- 54-1784426
Organization Overview
The International Waldenstroms Macroglobulinemia Foundation Inc is located in Sarasota, FL. The organization was established in 2002. According to its NTEE Classification (G80) the organization is classified as: Specifically Named Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 12/2021, International Waldenstroms Macroglobulinemia Foundation Inc employed 8 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. International Waldenstroms Macroglobulinemia Foundation Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, International Waldenstroms Macroglobulinemia Foundation Inc generated $4.5m in total revenue. This organization has experienced exceptional growth, as over the past 7 years, it has increased revenue by an average of 13.5% each year . All expenses for the organization totaled $2.5m during the year ending 12/2021. While expenses have increased by 8.8% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Since 2015, International Waldenstroms Macroglobulinemia Foundation Inc has awarded 37 individual grants totaling $6,408,940. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
SUPPORT AND EDUCATE EVERYONE AFFECTED BY WALDENSTROM'S MACROGLOBULINEMIA WHILE ADVANCING THE SEARCH FOR A CURE.
Describe the Organization's Program Activity:
Part 3 - Line 4a
PROVIDED 22 GRANT PAYMENTS TOWARDS 15 DIFFERENT GRANTS TO FURTHER RESEARCH IN WALDENSTROM'S MACROGLOBULINEMIA: TOWARD A RATIONAL TARGETED THERAPY, DIRECT TARGETING THE MYD88 L265P DRIVER MUTATION IN WM, ANTI-TUMOR AND IMMUNE MICROENVIRONMENT RESPONSES, CRISPR-BASED FUNCTIONAL CHARACTERIZATION OF WM CELLS, ORIGINS AND IMMUNOTHERAPY, FROM BIOLOGY TO TREATMENT, MODULATION OF T-CELL FUNCTION, NOVEL ANTIBODY-TARGETED INTERFERONS, SINGLE-CELL NEXT GENERATION, TARGETING THE TUMOR MICROENVIRONMENT AND CORAX IN LYMPHOMA.
EDUCATIONAL FORUMS HOSTED A NATIONAL EDUCATIONAL FORUM FOR WALDENSTROM'S MACROGLOBULINEMIA PATIENTS AND PROVIDED A GRANT TO FUND PATIENT EDUCATIONAL FORUMS.
IWMF PUBLICATIONS SERVE TO EDUCATE AND SUPPORT PATIENTS AND CAREGIVERS. IWMF TORCH IS A QUARTERLY MAGAZINE WHICH COVERS THE LATEST INFORMATION ON WALDENSTROM'S MACROGLOBULINEMIA EDUCATION, RESEARCH, ACTIVITIES, AND TREATMENTS.
OTHER PROGRAM SERVICES FOR INTERNATIONAL OUTREACH AND OTHER PROGRAM SERVICES FOR SUPPORT GROUPS.
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PDF Copies of 990 Filings
Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Newton Guerin President & CEO | Officer | 40 | $131,571 |
Beverly Docteur Secretary/treasurer | OfficerTrustee | 15 | $0 |
Ron Branscome Vice President For Fundraising | OfficerTrustee | 15 | $0 |
Thomas H Hoffmann MD Facsaccp Vice President For Researc | OfficerTrustee | 15 | $0 |
Peter Denardis Board Chair | OfficerTrustee | 30 | $0 |
Lisa J Wise Med Vice President For Member | OfficerTrustee | 15 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $4,187,632 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $4,187,632 |
| Total Program Service Revenue | $270,500 |
| Investment income | $3,028 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $4,461,160 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $1,125,815 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $240,000 |
| Benefits paid to or for members | $4,371 |
| Compensation of current officers, directors, key employees. | $131,571 |
| Compensation of current officers, directors, key employees. | $13,157 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $440,040 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $40,727 |
| Payroll taxes | $45,508 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $9,750 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $10,494 |
| Advertising and promotion | $0 |
| Office expenses | $62,769 |
| Information technology | $44,731 |
| Royalties | $0 |
| Occupancy | $27,192 |
| Travel | $4,865 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $14,239 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $20,705 |
| Insurance | $8,052 |
| All other expenses | $23,321 |
| Total functional expenses | $2,455,198 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $1,461,870 |
| Savings and temporary cash investments | $4,705,150 |
| Pledges and grants receivable | $933,490 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $148,511 |
| Net Land, buildings, and equipment | $76,925 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $76,093 |
| Total assets | $7,402,039 |
| Accounts payable and accrued expenses | $141,983 |
| Grants payable | $0 |
| Deferred revenue | $13,333 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $155,316 |
| Net assets without donor restrictions | $3,767,850 |
| Net assets with donor restrictions | $3,478,873 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $7,402,039 |
Grants Awarded
Over the last fiscal year, The International Waldenstroms Macroglobulinemia Foundation Inc has awarded $1,125,815 in support to 6 organizations.
| Grant Recipient | Amount |
|---|---|
DANA FARBER CANCER INSTITUTE PURPOSE: RESEARCH | $661,000 |
Rochester, MN PURPOSE: RESEARCH | $214,815 |
Houston, TX PURPOSE: RESEARCH | $90,000 |
Columbus, OH PURPOSE: RESEARCH | $80,000 |
Duarte, CA PURPOSE: RESEARCH | $40,000 |
Oakland, CA PURPOSE: RESEARCH | $40,000 |
Grants Recieved
Over the last fiscal year, we have identified 1 grants that The International Waldenstroms Macroglobulinemia Foundation Inc has recieved totaling $3,000.
| Awarding Organization | Amount |
|---|---|
Theodore P Chuffers Foundation Wilmington, DE PURPOSE: GENERAL & UNRESTRICTED | $3,000 |
Endowment Analysis
| Beg. Balance | $66,449 |
| Other Expense | $66,449 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Alabama Game Changers Hoover, AL | $172,690 | $2,825,317 |
Fidec Inc Miami, FL | $10,721,016 | $5,119,630 |
The International Waldenstroms Macroglobulinemia Foundation Inc Sarasota, FL | $7,402,039 | $4,461,160 |
Parkinson Research Foundation Inc Sarasota, FL | $2,347,219 | $2,542,690 |
The Als Association Of Georgia Inc Atlanta, GA | $1,686,109 | $1,269,205 |
Dyslexia Resource Trust Inc Atlanta, GA | $1,477,246 | $1,480,098 |
Workplace Injury Litigation Group Inc New Port Richey, FL | $673,657 | $1,040,739 |
Lupus Foundation Of America Georgia Chapter Inc Smyrna, GA | $558,120 | $586,075 |
Gout Education Society Inc Gainesville, FL | $521,772 | $355,100 |
Usher 2020 Foundation Inc Atlanta, GA | $551,033 | $558,053 |
Down Syndrome Foundation Of Florida Inc Orlando, FL | $554,854 | $431,150 |
Elizabeth Burns Yost Trust Southern National Bank Of Nc Trust Orlando, FL | $2,212,429 | $86,566 |