Tourette Association Of America Inc
- Assets
- $10.4m
- Revenue
- $5.0m
- Investments
- $34.5k
- Employees
- 38
- Location
- Bayside, NY
- Founding
- 12/1982
- Data as of
- 02/2024
- EIN
- 23-7191992
Organization Overview
Tourette Association Of America Inc is located in Bayside, NY. The organization was established in 1982. According to its NTEE Classification (G50) the organization is classified as: Nerve, Muscle & Bone Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 02/2024, Tourette Association Of America Inc employed 38 individuals. This organization is a parent organization of an affiliated group for tax-exemption purposes. Tourette Association Of America Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 02/2024, Tourette Association Of America Inc generated $5.0m in total revenue. This represents relatively stable growth, over the past 9 years the organization has increased revenue by an average of 3.9% each year. All expenses for the organization totaled $6.6m during the year ending 02/2024. You can explore the organizations financials more deeply in the financial statements section below.
Since 2016, Tourette Association Of America Inc has awarded 61 individual grants totaling $5,095,359. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2024
Describe the Organization's Mission:
Part 3 - Line 1
TO IDENTIFY THE CAUSE OF, FIND THE CURE FOR AND CONTROL THE EFFECTS OF TOURETTE SYNDROME.
Describe the Organization's Program Activity:
Part 3 - Line 4a
PUBLIC EDUCATION - PROVIDE EDUCATION AND AWARENESS BY RAISING PUBLIC AWARENESS AND FOSTERING SOCIAL ACCEPTANCE. EDUCATING PROFESSIONALS TO BETTER SERVE THE NEEDS OF CHILDREN, ADULTS AND FAMILIES CHALLENGED BY TOURETTE AND TIC DISORDERS. ADVOCATING FOR PUBLIC POLICIES AND SERVICES THAT PROMOTE POSITIVE SCHOOL, WORK AND SOCIAL ENVIRONMENTS. PROVIDING HELP, HOPE AND A SUPPORTIVE COMMUNITY ACROSS THE NATION. EMPOWERING OUR COMMUNITY TO DEAL WITH THE COMPLEXITIES OF THIS SPECTRUM OF DISORDERS.
RESEARCH & MEDICAL PROGRAMS - WORKING TO ADVANCE SCIENTIFIC UNDERSTANDING, TREATMENT OPTIONS AND CARE OPTIONS FOR THE DISORDER BY PROVIDING FUNDING FOR RESEARCH INVESTIGATIONS IN THE AREAS OF NEUROSCIENCES, GENETICS, BEHAVIORIAL THERAPY, CLINICAL TRIALS.
CENTERS FOR DISEASE CONTROL (CDC) PARTNERSHIP - THE ASSOCIATION AND CDC WORK TOGETHER TO PROVIDE EXPERT EDUCATION ABOUT TOURETTE SYNDROME TO PHYSICIANS AND ALLIED PROFESSIONAL AND TO ENCOURAGE PHYSICIANS TO APPLY TO THE ASSOCIATIONS ' REFERRAL LISTS. INCLUDES PROGRAMS TO EDUCATE SCHOOLS AND COMMUNITIES ABOUT TOURETTE SYNDROME.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Alice Kane Fourth Vice Chair | OfficerTrustee | 2 | $0 |
Bruce D Ochsman Director | Trustee | 2 | $0 |
Cheri G David CPA Director | Trustee | 2 | $0 |
Cindy Kurtz Director | Trustee | 2 | $0 |
Daniel Mcgarvey Director | Trustee | 2 | $0 |
David Schoenhaar First Vice Chair | OfficerTrustee | 2 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $940,526 |
| Related organizations | $0 |
| Government grants | $1,443,655 |
| All other contributions, gifts, grants, and similar amounts not included above | $2,082,564 |
| Noncash contributions included in lines 1a–1f | $246,577 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $4,466,745 |
| Total Program Service Revenue | $138,528 |
| Investment income | $280,265 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $206,401 |
| Net Income from Fundraising Events | -$43,744 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $5,048,195 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $972,793 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $909,748 |
| Compensation of current officers, directors, key employees. | $165,354 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $1,847,598 |
| Pension plan accruals and contributions | $22,180 |
| Other employee benefits | $217,237 |
| Payroll taxes | $196,226 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $29,503 |
| Fees for services: Accounting | $0 |
| Fees for services: Lobbying | $7,500 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $34,397 |
| Fees for services: Other | $422,015 |
| Advertising and promotion | $199,005 |
| Office expenses | $411,709 |
| Information technology | $121,721 |
| Royalties | $0 |
| Occupancy | $82,737 |
| Travel | $217,840 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $455,401 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $11,332 |
| Insurance | $60,429 |
| All other expenses | $49,822 |
| Total functional expenses | $6,604,537 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $125,327 |
| Savings and temporary cash investments | $2,605,365 |
| Pledges and grants receivable | $916,497 |
| Accounts receivable, net | $43,958 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $252,556 |
| Net Land, buildings, and equipment | $16,376 |
| Investments—publicly traded securities | $6,100,707 |
| Investments—other securities | $34,519 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $319,366 |
| Total assets | $10,414,671 |
| Accounts payable and accrued expenses | $445,542 |
| Grants payable | $822,300 |
| Deferred revenue | $18,327 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $539,586 |
| Unsecured mortgages and notes payable | $158,810 |
| Other liabilities | $278,209 |
| Total liabilities | $2,262,774 |
| Net assets without donor restrictions | $6,993,959 |
| Net assets with donor restrictions | $1,157,938 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $10,414,671 |
Grants Awarded
Over the last fiscal year, Tourette Association Of America Inc has awarded $897,197 in support to 6 organizations.
| Grant Recipient | Amount |
|---|---|
CINCINATTI CHILDRENS HOSPITAL MEDICAL CENTER PURPOSE: RESEARCH | $150,000 |
WAKE FOREST UNIVERSITY HEALTH SCIENCES PURPOSE: RESEARCH | $147,197 |
VANDERBILT UNIVERSITY MEDICAL CENTER PURPOSE: RESEARCH | $150,000 |
REGENTS UNIVERSITY OF MINNESOTA PURPOSE: RESEARCH | $150,000 |
REGENTS OF THE UNIVERSITY OF CALIFORNIA LA PURPOSE: RESEARCH | $150,000 |
YALE UNIVERSITY PURPOSE: RESEARCH | $150,000 |