Project Als Inc
- Assets
- $1.7m
- Revenue
- $3.8m
- Investments
- $0.0
- Employees
- 7
- Location
- New York, NY
- Founding
- 11/1998
- Data as of
- 07/2023
- EIN
- 13-4019464
Organization Overview
Project Als Inc is located in New York, NY. The organization was established in 1998. According to its NTEE Classification (G50) the organization is classified as: Nerve, Muscle & Bone Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 07/2023, Project Als Inc employed 7 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Project Als Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 07/2023, Project Als Inc generated $3.8m in total revenue. This represents relatively stable growth, over the past 8 years the organization has increased revenue by an average of 6.0% each year. All expenses for the organization totaled $4.5m during the year ending 07/2023. While expenses have increased by 7.5% per year over the past 8 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Since 2015, Project Als Inc has awarded 52 individual grants totaling $23,261,817. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
WORKING TOWARDS AN UNDERSTANDING AND TREATMENTS FOR AMYOTROPHIC LATERAL SCLEROSIS.
Describe the Organization's Program Activity:
Part 3 - Line 4a
GRANTS AND RESEARCH - FUNDING FOR SCIENTIFIC MEDICAL RESEARCH TO FIND TREATMENTS AND ULTIMATELY A CURE FOR AMYOTROPHIC LATERAL SCLEROSIS (ALS) AN ULTIMATELY FATAL MOTOR NEURON DISEASE BY PROMOTING COLLABORATION AND INFORMATION SHARING AMONG RESEARCHERS FOR ALL RELATED DISEASES SUCH AS PARKINSON'S AND MULTIPLE SCLEROSIS. PROSETIN DEVELOPMENT FOR FDA SUBMISSION FOR CLINICAL DRUG TRIAL APPROVAL.
EDUCATION - RAISE AWARENESS OF AND PROVIDE INFORMATION ABOUT AMYOTROPHIC LATERAL SCLEROSIS (ALS) THROUGH SPEAKING ENGAGEMENTS, NEWSLETTER AND WEBSITE.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Meredith Estess Hulbert President | OfficerTrustee | 50 | $194,350 |
Valerie Estess Vice President | OfficerTrustee | 50 | $194,350 |
Robert S Kaplan Chair | OfficerTrustee | 5 | $0 |
Debbie Wilpon Chair | OfficerTrustee | 10 | $0 |
Rob Burnett Director | Trustee | 0.25 | $0 |
Michael Berman Director | Trustee | 0.25 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $1,642,754 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $2,134,472 |
| Noncash contributions included in lines 1a–1f | $19,967 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $3,777,226 |
| Total Program Service Revenue | $0 |
| Investment income | $829 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | -$1,142 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $3,776,913 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $2,940,437 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $464,692 |
| Compensation of current officers, directors, key employees. | $50,366 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $354,408 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $23,995 |
| Payroll taxes | $55,033 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $25,000 |
| Fees for services: Accounting | $40,163 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $90,592 |
| Advertising and promotion | $0 |
| Office expenses | $80,328 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $15,765 |
| Travel | $25,172 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $20,616 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $16,193 |
| All other expenses | $13,379 |
| Total functional expenses | $4,483,713 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $1,187,500 |
| Savings and temporary cash investments | $298,296 |
| Pledges and grants receivable | $49,337 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $118,691 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $200 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $7,581 |
| Total assets | $1,661,605 |
| Accounts payable and accrued expenses | $48,792 |
| Grants payable | $1,859,661 |
| Deferred revenue | $382,501 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $2,290,954 |
| Net assets without donor restrictions | -$733,138 |
| Net assets with donor restrictions | $103,789 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $1,661,605 |
Grants Awarded
Over the last fiscal year, Project Als Inc has awarded $2,940,210 in support to 5 organizations.
| Grant Recipient | Amount |
|---|---|
COLUMBIA UNIVERSITY PURPOSE: MEDICAL RESEARCH | $2,575,227 |
SALK INSTITUTE PURPOSE: MEDICAL RESEARCH | $98,000 |
UNIVERSITY OF CALIFORNIA SAN DIEGO PURPOSE: MEDICAL RESEARCH | $135,662 |
UNIVERSITY OF CALIFORNIA SAN FRANCISCO PURPOSE: MEDICAL RESEARCH | $80,000 |
WEILL CORNELL MEDICAL COLLEGE PURPOSE: MEDICAL RESEARCH | $51,321 |