Amyotrophic Lateral Sclerosis Association
- Assets
- $4.9m
- Revenue
- $6.2m
- Investments
- $428.0k
- Employees
- 38
- Location
- Fort Washington, PA
- Founding
- 07/1990
- Data as of
- 01/2024
- EIN
- 23-2387205
Organization Overview
Amyotrophic Lateral Sclerosis Association is located in Fort Washington, PA. The organization was established in 1990. According to its NTEE Classification (G50) the organization is classified as: Nerve, Muscle & Bone Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 01/2024, Amyotrophic Lateral Sclerosis Association employed 38 individuals. This organization is a subordinate organization within an affiliated group for tax-exemption purposes. Amyotrophic Lateral Sclerosis Association is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 01/2024, Amyotrophic Lateral Sclerosis Association generated $6.2m in total revenue. This represents relatively stable growth, over the past 9 years the organization has increased revenue by an average of 0.6% each year. All expenses for the organization totaled $5.8m during the year ending 01/2024. While expenses have increased by 0.2% per year over the past 9 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2024
Describe the Organization's Mission:
Part 3 - Line 1
THE MISSION OF ALS UNITED MID-ATLANTIC IS TO UNITE AND EMPOWER THE ALS COMMUNITY THROUGH A COLLABORATIVE APPROACH TO FOSTERING BOLD RESEARCH INITIATIVES, ADVANCE NATIONAL AND STATE ADVOCACY, AND PROVIDE COMPREHENSIVE CARE AND SUPPORT TO INDIVIDUALS AND FAMILIES AFFECTED BY ALS.
Describe the Organization's Program Activity:
Part 3 - Line 4a
CARE SERVICES:ALS UNITED MID-ATLANTIC PROVIDES COMPREHENSIVE SUPPORT AND RESOURCES FREE OF CHARGE FOR PATIENTS DIAGNOSED WITH ALS AND THEIR LOVED ONES. OUR SERVICES INCLUDE SUPPORTING NINE MULTIDISCIPLINARY ALS CLINICS, IN HOME CARE GRANTS, DME, ASSISTIVE TECHNOLOGY, TRANSPORTATION, RAMPING, SUPPORT GROUPS, AND DEDICATED PROFESSIONAL STAFF SUPPORT TO EVERY PATIENT.
EDUCATION:ALS UNITED MID-ATLANTIC PROVIDES AN ANNUAL ALS RESEARCH SYMPOSIUM; A COMPREHENSIVE WEBSITE RESOURCE WITH ACCURATE INFORMATION AND CARE SUPPORT VIDEOS; IN PERSON EDUCATION AT CLINIC, PATIENT HOMES, FACILITES, AND EVENTS; HARD COPY MATERIALS PROVIDED IN THESE SAME SETTINGS AND MAILED TO PATIENTS; AND SUPPORT GROUPS FOR NEWLY DIAGNOSED, CAREGIVERS, AND THOSE LIVING WITH ALS.
RESEARCH:ALS UNITED MID-ATLANTIC FUNDS ALS RESEARCH IN THESE GENERAL AREAS: BASIC SCIENCE, CLINICAL RESEARCH, CLINICAL TRIALS, TRANSLATIONAL RESEARCH, AND STUDIES AIMED AT IMPROVING PATIENT QUALITY OF LIFE. FUNDING DECISIONS ARE RECOMMENDED BY THE RESEARCH COMMITTEE AND APPROVED BY THE BOARD OF DIRECTORS.
Get More from Intellispect for FreeCreate a free account to get more data, nonprofit salaries, advanced search and more.
Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Ellyn C Phillips Board Member | Trustee | 40 | $0 |
Daniel J Quinn Chair | OfficerTrustee | 5 | $0 |
Susanna Foo Board Member | Trustee | 1 | $0 |
Benjamin S Ohrenstein ESQ Board Member | Trustee | 1 | $0 |
Patricia Lake-Quinn Board Member | Trustee | 1 | $0 |
Crystal Goodwyn Board Member | Trustee | 1 | $0 |
Outside Vendors & Contractors
| Vendor Name (Service) | Service Year | Compensation |
|---|---|---|
Ballard Spahr Legal Services | 1/30/24 | $285,363 |
Thomas Jefferson University Hospital Clinic Support | 1/30/24 | $200,000 |
Itsolutions Technology Specialists | 1/30/24 | $127,355 |
Penn State Hershey Medical Center Clinic Support | 1/30/24 | $170,779 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $1,843,546 |
| Related organizations | $0 |
| Government grants | $1,538,974 |
| All other contributions, gifts, grants, and similar amounts not included above | $2,455,369 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $5,837,889 |
| Total Program Service Revenue | $0 |
| Investment income | $114,492 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $17,000 |
| Net Income from Fundraising Events | -$258,962 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $6,167,626 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $172,549 |
| Compensation of current officers, directors, key employees. | $24,157 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $2,600,011 |
| Pension plan accruals and contributions | $39,188 |
| Other employee benefits | $333,198 |
| Payroll taxes | $199,434 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $66,969 |
| Fees for services: Accounting | $97,900 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $0 |
| Advertising and promotion | $0 |
| Office expenses | $89,429 |
| Information technology | $348,684 |
| Royalties | $0 |
| Occupancy | $132,028 |
| Travel | $10,975 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $195,082 |
| Interest | $0 |
| Payments to affiliates | $103,036 |
| Depreciation, depletion, and amortization | $65,346 |
| Insurance | $27,007 |
| All other expenses | $0 |
| Total functional expenses | $5,785,548 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $853,727 |
| Savings and temporary cash investments | $2,042,268 |
| Pledges and grants receivable | $1,267,047 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $129,486 |
| Net Land, buildings, and equipment | $140,398 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $428,021 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $23,471 |
| Total assets | $4,884,418 |
| Accounts payable and accrued expenses | $345,040 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $22,343 |
| Total liabilities | $367,383 |
| Net assets without donor restrictions | $3,440,812 |
| Net assets with donor restrictions | $1,076,223 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $4,884,418 |