Dysautonomia Foundation Inc
- Assets
- $1.5m
- Revenue
- $1.2m
- Investments
- $0.0
- Employees
- 5
- Location
- New York, NY
- Founding
- 10/1976
- Data as of
- 12/2023
- EIN
- 13-6145280
Organization Overview
Dysautonomia Foundation Inc is located in New York, NY. The organization was established in 1976. According to its NTEE Classification (G50) the organization is classified as: Nerve, Muscle & Bone Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 12/2023, Dysautonomia Foundation Inc employed 5 individuals. This organization is a parent organization of an affiliated group for tax-exemption purposes. Dysautonomia Foundation Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2023, Dysautonomia Foundation Inc generated $1.2m in total revenue. This represents a relatively dramatic decline in revenue. Over the past 7 years, the organization has seen revenues fall by an average of (4.8%) each year. All expenses for the organization totaled $1.9m during the year ending 12/2023. As we would expect to see with falling revenues, expenses have declined by (3.1%) per year over the past 7 years. You can explore the organizations financials more deeply in the financial statements section below.
Since 2017, Dysautonomia Foundation Inc has awarded 22 individual grants totaling $8,753,950. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
THE DYSAUTONOMIA FOUNDATION SUPPORTS AND OPERATES PROGRAMS FOCUSED ON THE MEDICAL CARE, RESEARCH, SOCIAL SERVICES, AND PUBLIC EDUCATION FOR THE BENEFIT OF PEOPLE AFFECTED BY OR AT RISK FOR FAMILIAL DYSAUTONOMIA FD.
Describe the Organization's Program Activity:
Part 3 - Line 4a
THE DYSAUTONOMIA FOUNDATION SUPPORTS AND OPERATES PROGRAMS FOCUSED ON THE MEDICAL CARE, RESEARCH, SOCIAL SERVICES, AND PUBLIC EDUCATION FOR THE BENEFIT OF PEOPLE AFFECTED BY OR AT RISK FOR FAMILIAL DYSAUTONOMIA FD.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Lanie Etkind Executive Dir. | Officer | 40 | $225,000 |
Faye Ginsburg President | OfficerTrustee | 5 | $0 |
Allan Cohen Treasurer | OfficerTrustee | 1 | $0 |
Edward Baranoff Vice President | OfficerTrustee | 1 | $0 |
Laurent Landau Vice President | OfficerTrustee | 1 | $0 |
Jeffrey Goldberger Vice President | OfficerTrustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $572,214 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $572,214 |
| Total Program Service Revenue | $0 |
| Investment income | $75,547 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $567,988 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $1,215,749 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $1,241,796 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $25,000 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $253,266 |
| Compensation of current officers, directors, key employees. | $65,849 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $111,738 |
| Pension plan accruals and contributions | $3,896 |
| Other employee benefits | $354 |
| Payroll taxes | $23,023 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $12,281 |
| Fees for services: Accounting | $50,500 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $14,382 |
| Advertising and promotion | $626 |
| Office expenses | $23,822 |
| Information technology | $15,800 |
| Royalties | $0 |
| Occupancy | $38,476 |
| Travel | $2,102 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $2,083 |
| Insurance | $8,112 |
| All other expenses | $2,631 |
| Total functional expenses | $1,940,535 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $145,700 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $23,535 |
| Accounts receivable, net | $15,729 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $26,022 |
| Net Land, buildings, and equipment | $72,074 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $1,220,352 |
| Total assets | $1,503,412 |
| Accounts payable and accrued expenses | $53,925 |
| Grants payable | $0 |
| Deferred revenue | $68,991 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $75,647 |
| Total liabilities | $198,563 |
| Net assets without donor restrictions | $1,304,849 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $1,503,412 |
Grants Awarded
Over the last fiscal year, Dysautonomia Foundation Inc has awarded $1,224,976 in support to 3 organizations.
| Grant Recipient | Amount |
|---|---|
AUTONOMIC RESEARCH LLC PURPOSE: RESEARCH & TREATMENT | $93,472 |
MONTANA STATE UNIVERSITY PURPOSE: RESEARCH & TREATMENT | $57,863 |
NYU SCHOOL OF MEDICINE PURPOSE: RESEARCH & TREATMENT | $1,073,641 |