American Parkinson Disease Assoc
- Assets
- $24.6m
- Revenue
- $19.0m
- Investments
- $3.5m
- Employees
- 42
- Location
- Staten Island, NY
- Founding
- 12/1963
- Data as of
- 08/2022
- EIN
- 13-1962771
Organization Overview
American Parkinson Disease Assoc is located in Staten Island, NY. The organization was established in 1963. According to its NTEE Classification (G50) the organization is classified as: Nerve, Muscle & Bone Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 08/2022, American Parkinson Disease Assoc employed 42 individuals. This organization is the central organization for a national or regional group of organizations. American Parkinson Disease Assoc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 08/2022, American Parkinson Disease Assoc generated $19.0m in total revenue. This organization has experienced exceptional growth, as over the past 7 years, it has increased revenue by an average of 12.0% each year . All expenses for the organization totaled $12.2m during the year ending 08/2022. While expenses have increased by 4.9% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Since 2015, American Parkinson Disease Assoc has awarded 386 individual grants totaling $21,241,450. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2022
Describe the Organization's Mission:
Part 3 - Line 1
EVERY DAY WE PROVIDE THE SUPPORT, EDUCATION, AND RESEARCH THAT WILL HELP EVERYONE IMPACTED BY PARKINSON'S DISEASE LIVE LIFE TO THE FULLEST.
Describe the Organization's Program Activity:
Part 3 - Line 4a
PUBLIC AWARENESS - APDA CURRENTLY PROVIDES (ON-LINE AND IN PRINT) MORE THAN 55 FREE EDUCATIONAL PUBLICATIONS, 35 IN ENGLISH, 18 IN SPANISH, AND 2 IN SIMPLIFIED CHINESE TO ADDRESS MEDICAL AND SOCIAL ASPECTS OF THE DIAGNOSIS, TREATMENT, AND CARE OF PEOPLE WITH PARKINSON DISEASE. THESE PUBLICATIONS AND ADDITIONAL INFORMATION DISTRIBUTED THROUGH APDA'S 15 CHAPTERS (13 OF WHICH ARE FULLY ACTIVE), INFORMATION & REFERRAL CENTERS, EXTENSIVE WEBSITE, AND "800" TELEPHONE HELPLINE. APDA ALSO RAISES AWARENESS THROUGH TELEVISION PUBLIC SERVICE ANNOUNCEMENT (PSA) CAMPAIGNS ENTITLED "LIVE WITH OPTIMISM," "LOOK CLOSER, AND "MIRA MAS DE CERCA" THAT HAVE AIRED NATIONWIDE SINCE 2015. APPROXIMATELY 240,000 NEWSLETTERS ARE MAILED ANNUALLY, AND ADDITIONAL 420,000 SENT VIA EMAIL. CONTRIBUTED SERVICES INCLUDE DONATED MEDIA (TELEVISION AND RADIO BROADCASTING AND OTHER FORMS OF MEDIA, INCLUDING PUBLIC SERVICE ANNOUNCEMENTS) VALUED AT APPROXIMATELY $2,670,800 FOR THE YEAR ENDED AUGUST 31, 2022 AND $5,053,225 FOR THE YEAR ENDED AUGUST 31, 2021. THE FAIR VALUE OF THE DONATED MEDIA IS DETERMINED BASED ON CONSIDERATION OF CASH PAYMENTS TYPICALLY MADE BY BUYERS FOR SIMILAR ADVERTISING AND MEDIA, STANDARD DISCOUNTS GIVEN FOR SIMILARLY PLACED MEDIA, THE MEDIA TYPE AND PLACEMENT AND OTHER CONSIDERATIONS. APDA DOES NOT RECOGNIZE ANY REVENUE OR EXPENSE FROM SERVICES CONTRIBUTED BY VOLUNTEERS BECAUSE IT DOES NOT MEET THE CRITERIA FOR RECOGNITION UNDER FASB ASC 958, NOT-FOR-PROFIT ENTITIES.
PATIENT SERVICES AND EDUCATIONAL PROGRAMS - APDA AIMS TO SUPPORT EVERY PERSON AND EVERY FAMILY IMPACTED BY PARKINSON'S. THROUGH ITS NATIONWIDE SYSTEM OF CHAPTERS AND INFORMATION & REFERRAL (I&R) CENTERS, APDA UNIQUELY DELIVERS EDUCATION, SUPPORT AND PATIENT SERVICES TO AMERICANS WITH PARKINSON'S AND THEIR FAMILIES EACH DAY. 13 INFORMATION AND REFERRAL CENTERS ARE FUNDED. APDA CONDUCTED 16 NATIONAL PATIENT WEBINARS/VIRTUAL EDUCATION ON TOPICS THAT ADDRESS THE SYMPTOMS AND TREATMENT OF PARKINSON'S DISEASE AND REACHED OVER 110,000 INDIVIDUALS/UNIQUE VIEWS. THE NATIONAL SUPPORT GROUP PROGRAM "PRESS", PARKINSON'S ROADMAP FOR SUPPORT AND SERVICES, WAS SUCCESSFULLY OFFERED IN 26 MARKETS.
RESEARCH - APDA PROUDLY INVESTS IN EIGHT CENTERS FOR ADVANCED RESEARCH AND SUPPORTS GRANTS TO FUND THE MOST PROMISING SCIENCE FOCUSED ON DISCOVERING THE CAUSE(S) AND FINDING THE CURE FOR PARKINSON'S DISEASE. SINCE ITS FOUNDING IN 1961, APDA HAS BEEN A FUNDING PARTNER IN MANY OF THE MAJOR PD SCIENTIFIC BREAKTHROUGHS.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Leslie A Chambers President/ceo | Officer | 40 | $292,365 |
Michelle Mcdonald Sr. VP Chapter Development | Officer | 40 | $161,601 |
Rebecca Gilbert Sr. Vp, Chief Scientific Officer | 30 | $159,258 | |
Eloise Caggiano VP Development/marketing | 40 | $134,701 | |
Jean Allenbach Executive Director/nw Chapter | 40 | $125,618 | |
Catherine Krane Executive Director/mo Chapter | 40 | $119,652 |
Outside Vendors & Contractors
| Vendor Name (Service) | Service Year | Compensation |
|---|---|---|
Southwest Publishing Direct Mail Vendor | 8/30/22 | $1,832,843 |
Thompson Habib & Denison Inc Direct Mail Consultants | 8/30/22 | $467,879 |
Your Part-time Controller Llc Accounting Services | 8/30/22 | $276,148 |
Aoic Llc Medical/scientific Communications | 8/30/22 | $176,611 |
Perlman & Perlman Llp Legal Services | 8/30/22 | $129,839 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $168,641 |
| Membership dues | $0 |
| Fundraising events | $2,040,449 |
| Related organizations | $0 |
| Government grants | $617,952 |
| All other contributions, gifts, grants, and similar amounts not included above | $16,137,468 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $18,964,510 |
| Total Program Service Revenue | $0 |
| Investment income | $199,426 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $32,522 |
| Net Gain/Loss on Asset Sales | $7,539 |
| Net Income from Fundraising Events | -$259,907 |
| Net Income from Gaming Activities | $12,550 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $19,021,103 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $2,159,029 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $75,000 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $544,718 |
| Compensation of current officers, directors, key employees. | $89,641 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $2,570,854 |
| Pension plan accruals and contributions | $294,942 |
| Other employee benefits | $348,292 |
| Payroll taxes | $222,185 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $90,873 |
| Fees for services: Accounting | $367,675 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $177,335 |
| Fees for services: Investment Management | $43,691 |
| Fees for services: Other | $1,107,498 |
| Advertising and promotion | $169,664 |
| Office expenses | $334,403 |
| Information technology | $202,099 |
| Royalties | $0 |
| Occupancy | $188,766 |
| Travel | $140,130 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $9,929 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $138,959 |
| Insurance | $110,796 |
| All other expenses | $169,756 |
| Total functional expenses | $12,192,786 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $6,416,927 |
| Savings and temporary cash investments | $3,464,401 |
| Pledges and grants receivable | $19,999 |
| Accounts receivable, net | $5,024,214 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $324,455 |
| Net Land, buildings, and equipment | $2,375,799 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $3,520,499 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $3,447,912 |
| Total assets | $24,594,206 |
| Accounts payable and accrued expenses | $733,665 |
| Grants payable | $1,049,535 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $159,680 |
| Total liabilities | $1,942,880 |
| Net assets without donor restrictions | $17,718,480 |
| Net assets with donor restrictions | $4,932,846 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $24,594,206 |
Grants Awarded
Over the last fiscal year, American Parkinson Disease Assoc has awarded $1,691,011 in support to 43 organizations.
| Grant Recipient | Amount |
|---|---|
Saint Louis, MO PURPOSE: MEDICAL RESEARCH - ADVANCED CENTERS | $137,500 |
Rochester, MN PURPOSE: MEDICAL RESEARCH - ADVANCED CENTERS | $100,000 |
UNIVERSITY OF ALABAMA-ADV CTR PURPOSE: MEDICAL RESEARCH - ADVANCED CENTERS | $100,000 |
Chestnut Hill, MA PURPOSE: INFORMATION & REFERRAL | $87,000 |
UNIVERSITY OF ALABAMA BIRMINGHAM PURPOSE: MEDICAL RESEARCH | $75,000 |
UNIVERSITY OF ALABAMA BIRMINGHAM PURPOSE: INFORMATION & REFERRAL | $72,150 |
Grants Recieved
Over the last fiscal year, we have identified 3 grants that American Parkinson Disease Assoc has recieved totaling $214,100.
| Awarding Organization | Amount |
|---|---|
Parkinsons Unity Walk Inc Kingston, NJ PURPOSE: RESEARCH AND AWARENESS ACTIVITIES RELATING TO PARKINSON'S DISEASE | $212,500 |
Kahn Family Charitable Foundation Wellesley, MA PURPOSE: PROGRAM SUPPORT | $1,000 |
George And Mary Jo Budig Family Foundation Fort Mitchell, KY PURPOSE: GENERAL OPERATIONS | $600 |
Endowment Analysis
| Beg. Balance | $174,081 |
| Earnings | $1,296 |
| Ending Balance | $175,377 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
The Multiple Myeloma Research Foundation Inc Norwalk, CT | $85,401,847 | $42,311,196 |
American Parkinson Disease Assoc Staten Island, NY | $24,594,206 | $19,021,103 |
Multiple Sclerosis Association Of America Inc Cherry Hill, NJ | $7,956,030 | $8,817,551 |
Operating Engineers Joint Sub Fund Of Eastern Pa & Delaware Fort Washington, PA | $22,353,627 | $5,658,208 |
Amyotrophic Lateral Sclerosis Association Ambler, PA | $5,488,148 | $5,518,176 |
Amyotrophic Lateral Sclerosis Association New York, NY | $7,108,895 | $5,803,291 |
Tourette Association Of America Inc Bayside, NY | $11,736,131 | $4,454,020 |
Als Association Western Pennsylvani A Chapter Pittsburgh, PA | $1,863,568 | $2,199,894 |
Dysautonomia Foundation Inc New York, NY | $2,301,553 | $2,387,593 |
Amyotrophic Lateral Sclerosis Association Westborough, MA | $3,303,462 | $2,795,826 |
Mckenzie Institute Inc Syracuse, NY | $2,178,526 | $1,635,507 |
Accelerated Cure Project Inc Waltham, MA | $2,403,217 | $1,739,123 |