Amyotrophic Lateral Sclerosis Association
- Assets
- $3.3m
- Revenue
- $2.8m
- Investments
- $0.0
- Employees
- 13
- Location
- Westborough, MA
- Founding
- 07/1990
- Data as of
- 01/2022
- EIN
- 04-3085718
Organization Overview
Amyotrophic Lateral Sclerosis Association, operating under the name The Als Association Massachusetts Chapter, is located in Westborough, MA. The organization was established in 1990. According to its NTEE Classification (G50) the organization is classified as: Nerve, Muscle & Bone Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 01/2022, Als Association Massachusetts Chapter employed 13 individuals. This organization is a subordinate organization within an affiliated group for tax-exemption purposes. Als Association Massachusetts Chapter is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 01/2022, Als Association Massachusetts Chapter generated $2.8m in total revenue. This organization has experienced exceptional growth, as over the past 7 years, it has increased revenue by an average of 12.3% each year . All expenses for the organization totaled $1.8m during the year ending 01/2022. While expenses have increased by 7.9% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2022
Describe the Organization's Mission:
Part 3 - Line 1
TO PROMOTE AWARENESS OF, SUPPORT PATIENTS, FAMILIES AND CAREGIVERS AFFECTED BY, AND RAISE FUNDS FOR, RESEARCH OF AMYOTROPHIC LATERAL SCLEROSIS.
Describe the Organization's Program Activity:
Part 3 - Line 4a
PATIENT SUPPORT COORDINATE SUPPORT GROUPS AND PROVIDE TELEPHONE SUPPORT FOR FAMILIES AND CAREGIVERS.
EDUCATION AND AWARENESS PROVIDE NEWSLETTERS TO HUNDREDS OF FAMILIES OF ALS PATIENTS, HOLD SEMINARS ANNUALLY WITH KEY RESEARCHERS AND ALS PATIENT FAMILIES.
FAMILY CARE PROVIDE NURSING AND OTHER PATIENT SUPPORT TO ALS PATIENTS AND THEIR FAMILIES.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
John E Hedstrom JD Executive Director | Officer | 40 | $140,000 |
Gary Scheid Chair | OfficerTrustee | 1 | $0 |
Robert Bloomberg Treasurer (until 6/28/21) | OfficerTrustee | 1 | $0 |
Kelley Warner Treasurer (since 6/28/21) | OfficerTrustee | 1 | $0 |
Steve Kowalski Secretary | OfficerTrustee | 1 | $0 |
Debra Bulkeley Vice Chair | OfficerTrustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $852,750 |
| Related organizations | $0 |
| Government grants | $452,639 |
| All other contributions, gifts, grants, and similar amounts not included above | $1,452,652 |
| Noncash contributions included in lines 1a–1f | $92,650 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $2,758,041 |
| Total Program Service Revenue | $0 |
| Investment income | $37,785 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $2,795,826 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $26,834 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $140,451 |
| Compensation of current officers, directors, key employees. | $42,135 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $682,629 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $38,669 |
| Payroll taxes | $77,736 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $29,500 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $61,515 |
| Advertising and promotion | $3,864 |
| Office expenses | $12,054 |
| Information technology | $48,531 |
| Royalties | $0 |
| Occupancy | $75,252 |
| Travel | $16,785 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $2,785 |
| Interest | $0 |
| Payments to affiliates | $336,108 |
| Depreciation, depletion, and amortization | $64,869 |
| Insurance | $5,163 |
| All other expenses | $0 |
| Total functional expenses | $1,790,411 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $43,650 |
| Savings and temporary cash investments | $1,478,670 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $288,905 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $25,970 |
| Net Land, buildings, and equipment | $294,933 |
| Investments—publicly traded securities | $1,169,490 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $1,844 |
| Total assets | $3,303,462 |
| Accounts payable and accrued expenses | $147,679 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $203,803 |
| Total liabilities | $351,482 |
| Net assets without donor restrictions | $2,951,980 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $3,303,462 |
Grants Recieved
Over the last fiscal year, we have identified 7 grants that Amyotrophic Lateral Sclerosis Association has recieved totaling $71,993.
| Awarding Organization | Amount |
|---|---|
American Online Giving Foundation Inc Newark, DE PURPOSE: GENERAL SUPPORT | $69,662 |
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $1,611 |
Joseph And Rae Gann Charitable Foundation Bal Harbour, FL PURPOSE: GENERAL | $300 |
Eastern Bank Charitable Foundation Lynn, MA PURPOSE: EXEMPT PURPOSE | $170 |
Baker Hughes Foundation Houston, TX PURPOSE: GENERAL SUPPORT | $100 |
Baker Hughes Foundation Houston, TX PURPOSE: GENERAL SUPPORT | $100 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
American Parkinson Disease Assoc Staten Island, NY | $24,594,206 | $19,021,103 |
Amyotrophic Lateral Sclerosis Association New York, NY | $7,108,895 | $5,803,291 |
Tourette Association Of America Inc Bayside, NY | $11,736,131 | $4,454,020 |
Dysautonomia Foundation Inc New York, NY | $2,301,553 | $2,387,593 |
Amyotrophic Lateral Sclerosis Association Westborough, MA | $3,303,462 | $2,795,826 |
Mckenzie Institute Inc Syracuse, NY | $2,178,526 | $1,635,507 |
Accelerated Cure Project Inc Waltham, MA | $2,403,217 | $1,739,123 |
Amyotrophic Lateral Sclerosis Association Milford, CT | $2,655,935 | $1,541,822 |
Joint Employment Office Of The Elevator Industry Long Island City, NY | $2,453,035 | $1,572,234 |
Amyotrophic Lateral Sclerosis Association Liverpool, NY | $2,245,425 | $1,082,289 |
Dysimmune Neuromuscular Diseases Foundation Lexington, MA | $186,488 | $904,704 |
Joint Coordinating Committee Inc Of Msp Fsu Amherst, MA | $1,358,827 | $634,741 |