Amyotrophic Lateral Sclerosis Association
- Assets
- $537.0k
- Revenue
- $401.3k
- Investments
- $0.0
- Employees
- 7
- Location
- Warwick, RI
- Founding
- 07/1990
- Data as of
- 01/2021
- EIN
- 05-0460482
Organization Overview
Amyotrophic Lateral Sclerosis Association is located in Warwick, RI. The organization was established in 1990. According to its NTEE Classification (G50) the organization is classified as: Nerve, Muscle & Bone Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 01/2021, Amyotrophic Lateral Sclerosis Association employed 7 individuals. This organization is a subordinate organization within an affiliated group for tax-exemption purposes. Amyotrophic Lateral Sclerosis Association is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 01/2021, Amyotrophic Lateral Sclerosis Association generated $401.3k in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 0.8% each year. All expenses for the organization totaled $421.2k during the year ending 01/2021. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
PUBLIC AWARENESS OF ALS DISEASE AND PATIENT AND FAMILY SUPPORT
Describe the Organization's Program Activity:
Part 3 - Line 4a
THE AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION CHAPTER OF RI REACHED MORE THAN 300 PATIENTS AND PATIENT'S FAMILIES THROUGH INFORMATION AND REFERRALS, HOME VISITS, SUPPORT GROUPS AS WELL AS PROVIDING EQUIPMENT LOANS, HANDICAPPED TRANSPORTION AND RESPITE CARE AT NO COST TO THE PATIENT. OUR CHAPTER ALSO FUNDS AN ALS SPECIFIC MULTI-DISCIPLINARY MEDICAL CLINIC THAT PROVIDES THE SERVICES IN THE AREA OF NEUROLOGY, PULMONOLOGY, PHYISICAL, OCCUPATIONAL AND SPEECH THERAPY AND NUTRITION IN ONE LOCATION.
THERE ARE NUMEROUS PROGRAMS THAT SUPPORT PROFESSIONAL AND PUBLIC AWARENESS OUTREACH. ALS AWARENESS DAY IS HELD ANNUALLY AT THE RHODE ISLAND STATE HOUSE DURING MAY. WHILE THIS PROGRAM IS ATTENDED BY OUR CONSTITUENTS, THERE IS ALSO A GREATER OUTREACH TO ANY MEMBERS OF THE GENERAL PUBLIC THAT ARE AT THE STATE HOUSE ON THAT DAY. THE ANNUAL ALS SYMPOSIUM INCLUDES SPEAKERS WHO PROVIDE ALS RESEARCH UPDATES AND GENERAL COPING SKILLS IN DEALING WITH THE DEVASTATION OF AN ALS DIAGNOSIS. THESE PROGRAMS ARE COMMUNICATED BY MAILINGS, SOCIAL MEDIA AND OUR WEBSITE TO OVER 1,200 CONSTITUENTS INCLUDING PATIENTS, FAMILIES, CAREGIVERS, MEDICAL PROFESSIONALS AND SUPPORTERS. WE ALSO CONDUCT INSERVICE PROGRAMS TO EDUCATE MEDICAL STAFF ABOUT DEALING WITH ALS PATIENTS AT HOSPICE AND OTHER CARE FACILITIES.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Beth Flanagan Executive Director | Officer | 40 | $72,880 |
John R Pagliarini President | OfficerTrustee | 1 | $0 |
Thomas May Jr 1st Vice President | OfficerTrustee | 1 | $0 |
Pjprokop 2nd Vice President | OfficerTrustee | 1 | $0 |
John Finnerty Treasurer | OfficerTrustee | 1 | $0 |
Dr Judith A Pratt Interim Secretary | OfficerTrustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Total Revenue from Contributions, Gifts, Grants & Similar | $121,986 |
| Investment income | $2,764 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $276,513 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $401,263 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $72,880 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $109,649 |
| Pension plan accruals and contributions | $281 |
| Other employee benefits | $1,244 |
| Payroll taxes | $15,000 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $0 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $14,548 |
| Advertising and promotion | $0 |
| Office expenses | $7,176 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $35,608 |
| Travel | $472 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $3,334 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $15,675 |
| Insurance | $1,145 |
| All other expenses | $0 |
| Total functional expenses | $421,193 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $431,631 |
| Savings and temporary cash investments | $54,943 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $1,000 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $6,341 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $5,415 |
| Total assets | $537,020 |
| Accounts payable and accrued expenses | $34,650 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $34,650 |
| Net assets without donor restrictions | $0 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Total liabilities and net assets/fund balances | $502,370 |
Grants Recieved
Over the last fiscal year, we have identified 18 grants that Amyotrophic Lateral Sclerosis Association has recieved totaling $42,070.
| Awarding Organization | Amount |
|---|---|
The Rhode Island Community Foundation Providence, RI PURPOSE: GENERAL OPERATING; ALS CARE SERVICE PROGRAMS; ALS MEDICAL TRANSPORTATION; RESEARCH | $31,000 |
Delta Dental Of Rhode Island Providence, RI PURPOSE: PROGRAM SUPPORT | $6,530 |
Bank Of America Charitable Foundation Inc Charlotte, NC PURPOSE: OPERATIONAL SUPPORT | $540 |
Bank Of America Charitable Foundation Inc Charlotte, NC PURPOSE: OPERATIONAL SUPPORT | $500 |
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $374 |
Bank Of America Charitable Foundation Inc Charlotte, NC PURPOSE: OPERATIONAL SUPPORT | $274 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
The Multiple Myeloma Research Foundation Inc Norwalk, CT | $85,401,847 | $42,311,196 |
Amyotrophic Lateral Sclerosis Association Westborough, MA | $3,303,462 | $2,795,826 |
Accelerated Cure Project Inc Waltham, MA | $2,403,217 | $1,739,123 |
Amyotrophic Lateral Sclerosis Association Milford, CT | $2,655,935 | $1,541,822 |
Dysimmune Neuromuscular Diseases Foundation Lexington, MA | $186,488 | $904,704 |
Joint Coordinating Committee Inc Of Msp Fsu Amherst, MA | $1,358,827 | $634,741 |
Back Bay Association Inc Boston, MA | $405,838 | $395,745 |
Amyotrophic Lateral Sclerosis Association Warwick, RI | $537,020 | $401,263 |
The Susie Foundation Inc West Hartford, CT | $218,507 | $258,205 |
Talia Duff Foundation Inc Ipswich, MA | $842,781 | $29,077 |
Patellofemoral Foundation Inc Litchfield, CT | $714,346 | $181,022 |
National Scoliosis Foundation Inc Stoughton, MA | $2,686 | $125,894 |