Batten Disease Research is located in Westport, MA. The organization was established in 2015. According to its NTEE Classification (G50) the organization is classified as: Nerve, Muscle & Bone Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Batten Disease Research is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Batten Disease Research generated $16.1k in total revenue. This organization has experienced exceptional growth, as over the past 7 years, it has increased revenue by an average of 20.3% each year . All expenses for the organization totaled $40.2k during the year ending 12/2021. You can explore the organizations financials more deeply in the financial statements section below.
Name (title) | Role | Hours | Compensation |
---|---|---|---|
Raymond St Gelais Clerk | 3 | $0 | |
Elaine Lebeau Treasurer | 5 | $0 | |
Maurice St Gelais President | 10 | $0 | |
Jean Marie St Gelais Vice President | 10 | $0 | |
Kathleen M Beck Director | 10 | $0 | |
Robin Beck Director | 10 | $0 |
Statement of Revenue | |
---|---|
Total Revenue from Contributions, Gifts, Grants & Similar | $13,669 |
Total Program Service Revenue | $0 |
Membership dues | $0 |
Investment income | $19 |
Gain or Loss | $0 |
Net Income from Gaming & Fundraising | $2,445 |
Other Revenue | $0 |
Total Revenue | $16,133 |
Statement of Expenses | |
---|---|
Grants and similar amounts paid | $0 |
Benefits paid to or for members | $0 |
Salaries, other compensation, and employee benefits | $0 |
Professional fees and other payments to independent contractors | $0 |
Occupancy, rent, utilities, and maintenance | $0 |
Printing, publications, postage, and shipping | $183 |
Other expenses | $0 |
Total expenses | $40,183 |
Balance Sheet | |
---|---|
Cash, savings, and investments | $29,418 |
Other assets | $0 |
Total assets | $29,418 |
Total liabilities | $0 |
Net assets or fund balances | $29,418 |
Over the last fiscal year, we have identified 2 grants that Batten Disease Research has recieved totaling $1,518.
Awarding Organization | Amount |
---|---|
Tom And Elena Matlack Foundation Boston, MA PURPOSE: CREATING AWARENESS AND RAISING FUNDS FOR BATTEN DISEASE RESEARCH | $1,500 |
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $18 |
Organization Name | Assets | Revenue |
---|---|---|
Amyotrophic Lateral Sclerosis Association New York, NY | $7,108,895 | $5,803,291 |
Tourette Association Of America Inc Bayside, NY | $11,736,131 | $4,454,020 |
Dysautonomia Foundation Inc New York, NY | $2,301,553 | $2,387,593 |
Amyotrophic Lateral Sclerosis Association Westborough, MA | $3,303,462 | $2,795,826 |
Mckenzie Institute Inc Syracuse, NY | $2,178,526 | $1,635,507 |
Accelerated Cure Project Inc Waltham, MA | $2,403,217 | $1,739,123 |
Amyotrophic Lateral Sclerosis Association Milford, CT | $2,655,935 | $1,541,822 |
Joint Employment Office Of The Elevator Industry Long Island City, NY | $2,453,035 | $1,572,234 |
Amyotrophic Lateral Sclerosis Association Liverpool, NY | $2,245,425 | $1,082,289 |
Dysimmune Neuromuscular Diseases Foundation Lexington, MA | $186,488 | $904,704 |
Joint Coordinating Committee Inc Of Msp Fsu Amherst, MA | $1,358,827 | $634,741 |
Workers United New York, NY | $1,507,853 | $380,292 |