Amyotrophic Lateral Sclerosis Association
- Assets
- $0.0
- Revenue
- $0.0
- Investments
- $0.0
- Employees
- 17
- Location
- Rockville, MD
- Founding
- 07/1990
- Data as of
- 10/2023
- EIN
- 52-1749047
Organization Overview
Amyotrophic Lateral Sclerosis Association is located in Rockville, MD. The organization was established in 1990. According to its NTEE Classification (G50) the organization is classified as: Nerve, Muscle & Bone Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 10/2023, Amyotrophic Lateral Sclerosis Association employed 17 individuals. This organization is a subordinate organization within an affiliated group for tax-exemption purposes. Amyotrophic Lateral Sclerosis Association is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 10/2023, Amyotrophic Lateral Sclerosis Association generated $41.3k in total revenue. This represents a relatively dramatic decline in revenue. Over the past 9 years, the organization has seen revenues fall by an average of (36.3%) each year. All expenses for the organization totaled $2.2m during the year ending 10/2023. You can explore the organizations financials more deeply in the financial statements section below.
Since 2016, Amyotrophic Lateral Sclerosis Association has awarded 43 individual grants totaling $806,611. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990EZ
Mission & Program ActivityExcerpts From the 990EZ Filing
TAX YEAR
2023
Describe the Organization's Program Activity:
Part 3
CARE SERVICES - THE CHAPTER WORKS TO IMPROVE THE QUALITY OF LIFE FOR PEOPLE LIVING WITH ALS BY PROVIDING A HOST OF FREE SERVICES. THESE SERVICES INCLUDE HOME VISITS, THAT WERE ELIMINATED IN 2020 AS A RESULT OF THE CORONA VIRUS, AND SUBSTITUTED BY TELEHEALTH COMMUNICATION WITH COORDINATORS, WHO PROVIDE CASE MANAGEMENT AND ASSISTANCE WITH BENEFIT APPLICATIONS, ASSISTIVE TECHNOLOGY LABS THAT PROVIDE ACCESS TO SPEECH GENERATING AND ENVIRONMENTAL CONTROL DEVICES, MULTIDISCIPLINARY CLINICS THAT ALLOW PATIENTS TO SEE IN ONE VISIT, A VARIETY OF HEALTHCARE CLINICIANS, EQUIPMENT LOAN CLOSETS THAT PROVIDE ACCESS TO ITEMS SUCH AS WHEELCHAIRS, WALKERS AND BEDS, SUPPORT GROUPS FOR PEOPLE WITH ALS AND CAREGIVERS, AND MUCH-NEEDED TRANSPORTATION GRANTS. THE CHAPTER ALSO HOSTS SEVERAL EVENTS THAT BRING PEOPLE WITH ALS AND THEIR FAMILIES TOGETHER TO RAISE AWARENESS FOR ALS IN ALL COMMUNITIES.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Robert Roseman Chair | 4 | $0 | |
Jeff Brainard Vice Chair | 2 | $0 | |
Thomas Mohler Secretary | 2 | $0 | |
Scott Golden Treasurer | 2 | $0 | |
Paull Ingholt Past President | 2 | $0 | |
Richard Bodson Director | 2 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Total Revenue from Contributions, Gifts, Grants & Similar | $8,790 |
| Total Program Service Revenue | $0 |
| Membership dues | $0 |
| Investment income | $32,462 |
| Gain or Loss | $0 |
| Net Income from Gaming & Fundraising | $0 |
| Other Revenue | $0 |
| Total Revenue | $41,252 |
| Statement of Expenses | |
|---|---|
| Grants and similar amounts paid | $0 |
| Benefits paid to or for members | $0 |
| Salaries, other compensation, and employee benefits | $0 |
| Professional fees and other payments to independent contractors | $4,879 |
| Occupancy, rent, utilities, and maintenance | $0 |
| Printing, publications, postage, and shipping | $0 |
| Other expenses | $2,174,242 |
| Total expenses | $2,179,121 |
| Balance Sheet | |
|---|---|
| Cash, savings, and investments | $0 |
| Other assets | $0 |
| Total assets | $0 |
| Total liabilities | $0 |
| Net assets or fund balances | $0 |
Grants Awarded
Over the last fiscal year, Amyotrophic Lateral Sclerosis Association has awarded $266,611 in support to 6 organizations.
| Grant Recipient | Amount |
|---|---|
UNIVERSITY OF MARYLAND - BALTIMORE PURPOSE: CARE SERVICES | $25,000 |
UNIVERSITY OF VIRGINIA HEALTH SYSTEM PURPOSE: CARE SERVICES | $25,000 |
PENINSULA REGIONAL MEDICAL CENTER PURPOSE: CARE SERVICES | $7,500 |
ZEPHYRX LLC PURPOSE: CARE SERVICES | $64,111 |
THE JOHNS HOPKINS UNIVERSITY PURPOSE: CARE SERVICES | $120,000 |
GEORGE WASHINGTON UNIVERSITY PURPOSE: CARE SERVICES | $25,000 |