Cystic Fibrosis Foundation

Organization Overview

Cystic Fibrosis Foundation is located in Bethesda, MD. The organization was established in 1957. According to its NTEE Classification (G20) the organization is classified as: Birth Defects & Genetic Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 12/2022, Cystic Fibrosis Foundation employed 890 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Cystic Fibrosis Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 12/2022, Cystic Fibrosis Foundation generated $248.6m in total revenue. This represents relatively stable growth, over the past 8 years the organization has increased revenue by an average of 6.7% each year. All expenses for the organization totaled $396.7m during the year ending 12/2022. While expenses have increased by 9.4% per year over the past 8 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.

Since 2015, Cystic Fibrosis Foundation has awarded 4,433 individual grants totaling $1,470,089,099. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.

Mission & Program ActivityExcerpts From the 990T Filing

TAX YEAR

2022

Describe the Organization's Mission:

Part 3 - Line 1

TO CURE CYSTIC FIBROSIS (CF) AND TO PROVIDE ALL PEOPLE WITH CF THE (CONTINUED ON SCH O) OPPORTUNITY TO LEAD LONG, FULFILLING LIVES.

Describe the Organization's Program Activity:

SEE SCHEDULE O


SEE SCHEDULE O


SEE SCHEDULE O


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Board, Officers & Key Employees

Name (title)Compensation
Michael P Boyle MD
President & CEO
$950,256
Louis A Defalco
Vice Chair
$0
Carole B Griego MD
Trustee
$0
Catherine C Mcloud
Trustee
$0
Chad T Moore
Trustee
$0
David A Mount
Treasurer
$0

Outside Vendors & Contractors

Vendor Name (Service)Compensation
Vertex Pharmaceuticals Inc
Contracted Research
$10,000,000
Eloxx Pharmaceuticals
Contracted Research
$8,811,900
Pioneering Medicine (Cf) Llc
Contracted Research
$8,000,000
Synspira Therapeutics Inc
Contracted Research
$5,450,000
Armata Pharmaceuticals Inc
Contracted Research
$2,500,000
View All Vendors

Financial Statements

Statement of Revenue
Federated campaigns$303,736
Membership dues$0
Fundraising events$56,151,039
Related organizations$0
Government grants $0
All other contributions, gifts, grants, and similar amounts not included above$41,494,183
Noncash contributions included in lines 1a–1f $9,893,530
Total Revenue from Contributions, Gifts, Grants & Similar$97,948,958
Total Program Service Revenue$2,555,705
Investment income $63,753,516
Tax Exempt Bond Proceeds $0
Royalties $14,016,961
Net Rental Income $0
Net Gain/Loss on Asset Sales $64,313,171
Net Income from Fundraising Events $0
Net Income from Gaming Activities $39,056
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $248,630,352

Grants Awarded

Over the last fiscal year, Cystic Fibrosis Foundation has awarded $172,994,773 in support to 599 organizations.

Grant RecipientAmount

RUTGERS THE STATE UNIVERSITY OF NEW JERSEY

PURPOSE: TRAINING

$3,000

UNIVERSITY OF GEORGIA RESEARCH FOUNDATION INC

PURPOSE: TRAINING

$3,000

CODY DIERUF BENEFIT FOUNDATION

PURPOSE: COMMUNITY IMPACT

$8,300

UNIVERSITY OF SOUTH FLORIDA

PURPOSE: TRAINING

$3,000

UNIVERSITY OF SOUTH ALABAMA

PURPOSE: TRAINING

$6,000

THE BONNELL FOUNDATION LIVING WITH CYSTIC FIBROSIS

PURPOSE: COMMUNITY IMPACT

$9,310
View Grant Profile

Peer Organizations

Organization NameAssets
Cystic Fibrosis Foundation
Bethesda, MD
$248,630,352
March Of Dimes Inc
Arlington, VA
$88,512,222
United Cerebral Palsy Of Cental Pennsylvania Inc
Camp Hill, PA
$46,624,503
Children And Adult Disability And Educational Services
Swarthmore, PA
$35,914,257
Easter Seals Serving Dc-Md-Va Inc
Silver Spring, MD
$30,154,770
Community Living And Support Services Inc
Pittsburgh, PA
$11,451,985
Accessabilities Inc
Butler, PA
$9,444,932
Community Care Connections Inc
Butler, PA
$8,661,499
The Clinic For Special Children Inc
Strasburg, PA
$9,727,240
United Cerebral Palsy Of Northeastern Pa
Scranton, PA
$5,069,750
Lancaster Cleft Palate Clinic
Lancaster, PA
$3,223,196
Genetic Alliance Inc
Damascus, MD
$2,497,287
American Board Of Medical Genetics And Genomics Inc
Rockville, MD
$1,137,838
Sickle Cell Disease Association Of America Inc
Hanover, MD
$1,104,795
The Familiescn2a Foundation Inc
Gettysburg, PA
$1,486,870
Nf2 Biosolutions
West Chester, PA
$772,336
Parkinson Foundation Of Western Pennsylvania
Cranberry Twp, PA
$520,994
United Cerebral Palsy Of Delaware Inc
Wilmington, DE
$339,514
We Care Dmv Day Services Inc
Washington, DC
$629,150
Tova Community Health Inc
Wilmington, DE
$381,712
Community Choices Properties
Johnstown, PA
$235,172
United Hemophilia Foundation
Mitchellville, MD
$242,991
Prisms Inc
Herndon, VA
$420,621
Bow Foundation
Charlottesville, VA
$370,375
Gaucher Community Alliance
Pittsburgh, PA
$268,783

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