Support Organization For Trisomy 18 13 And Related Disorders Soft Inc
- Assets
- $555.9k
- Revenue
- $190.3k
- Investments
- $0.0
- Employees
- 0
- Location
- Rochester, NY
- Founding
- 12/1981
- Data as of
- 07/2024
- EIN
- 94-2781004
Organization Overview
Support Organization For Trisomy 18 13 And Related Disorders Soft Inc is located in Rochester, NY. The organization was established in 1981. According to its NTEE Classification (G20) the organization is classified as: Birth Defects & Genetic Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Support Organization For Trisomy 18 13 And Related Disorders Soft Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 07/2024, Support Organization For Trisomy 18 13 And Related Disorders Soft Inc generated $190.3k in total revenue. This represents relatively stable growth, over the past 9 years the organization has increased revenue by an average of 9.4% each year. All expenses for the organization totaled $209.4k during the year ending 07/2024. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2024
Describe the Organization's Mission:
Part 3 - Line 1
SUPPORT ORGANIZATION FOR TRISOMY 18/13
Describe the Organization's Program Activity:
Part 3 - Line 4a
CONFERENCES AND SEMINARS TO PROVIDE MEDICAL INFORMATION TO FAMILIES AND PROFESSIONALS REGARDING TRISOMY 18/13.
SUPPORT ORGANIZATION TO PROVIDE SUPPORT, UNDERSTANDING, AND ENCOURAGEMENT TO FAMILIES OF INDIVIDUALS WITH TRISOMY 18/13.
NEWSLETTERS, BOOKS, BROCHURES, AND RESEARCH TO INCREASE PUBLIC AWARENESS.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Dave Vanherreweghe Past President | Trustee | 0 | $0 |
Josh Bradley President | Trustee | 0 | $0 |
Terre Krotzer Vice President | Trustee | 0 | $0 |
Jennifer Sogge Vice President | Trustee | 0 | $0 |
Angie Mccauley Director | Trustee | 0 | $0 |
Micah Mccauley Director | Trustee | 0 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $137,344 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $137,344 |
| Total Program Service Revenue | $37,842 |
| Investment income | $15,101 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $190,287 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $1,646 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $1,670 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $0 |
| Advertising and promotion | $0 |
| Office expenses | $2,466 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $140,912 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $901 |
| All other expenses | $7,368 |
| Total functional expenses | $209,361 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $45,530 |
| Savings and temporary cash investments | $510,382 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $555,912 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $0 |
| Net assets without donor restrictions | $555,912 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $555,912 |