Jacks Corner Foundation Inc is located in Southport, CT. According to its NTEE Classification (G20) the organization is classified as: Birth Defects & Genetic Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Jacks Corner Foundation Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2022
Describe the Organization's Mission:
Part 3 - Line 1
TO RAISE FUNDS TO HELP WITH THE COSTS OF INDIVIDUALS WITH A ULTR RARE GENETIC DISEASE CALLED SPG50. SPG50 IS A DEGENERATIVE , SLOWLY TAKING AWAY CHILDREN'S ABILITY TO WALK AND USE THEIR HANDS , AND EVENTUALLY THEIR MENTAL CAPACITY. THE FUNDS RAISED WILL BE USED FOR GENE THERAPY TREATMENT FOR CHILDREN WITH SPG50.
Describe the Organization's Program Activity:
Part 3 - Line 4a
TO RAISE FUNDS TO HELP WITH THE COSTS OF INDIVIDUALS WITH A ULTR RARE GENETIC DISEASE CALLED SPG50. SPG50 IS A DEGENERATIVE SLOWLY TAKING AWAY CHILDREN'S ABILITY TO WALK AND USE THEIR HANDS AND EVENTUALLY THEIR MENTAL CAPACITY. THE GOAL OF THIS CHARITY WAS TO RAISE ENOUGH FUNDS TO SUPPORT THE GENE THERAPY TO TREAT SPG50. THE FDA APPROVED A CLINICAL TRIAL FOR THAT GENE THERAPHY IN THE US IN AUGUST OF 2022.
TO RAISE FUNDS TO HELP WITH THE COSTS OF INDIVIDUALS WITH A ULTR RARE GENETIC DISEASE CALLED SPG50. SPG50 IS A DEGENERATIVE SLOWLY TAKING AWAY CHILDREN'S ABILITY TO WALK AND USE THEIR HANDS AND EVENTUALLY THEIR MENTAL CAPACITY. THE GOAL OF THIS CHARITY WAS TO RAISE ENOUGH FUNDS TO SUPPORT THE GENE THERAPY TO TREAT SPG50. THE FDA APPROVED A CLINICAL TRIAL FOR THAT GENE THERAPHY IN THE US IN AUGUST OF 2022.
Name (title) | Role | Hours | Compensation |
---|---|---|---|
Devin Dwyer Secretary | Officer | 10 | $0 |
Michael J Dwyer President | Officer | 10 | $0 |
Adam Rafsky Treasurer | Officer | 5 | $0 |
Statement of Revenue | |
---|---|
Federated campaigns | $0 |
Membership dues | $0 |
Fundraising events | $0 |
Related organizations | $0 |
Government grants | $609,533 |
All other contributions, gifts, grants, and similar amounts not included above | $0 |
Noncash contributions included in lines 1a–1f | $0 |
Total Revenue from Contributions, Gifts, Grants & Similar | $609,533 |
Total Program Service Revenue | $0 |
Investment income | $0 |
Tax Exempt Bond Proceeds | $0 |
Royalties | $0 |
Net Rental Income | $0 |
Net Gain/Loss on Asset Sales | $0 |
Net Income from Fundraising Events | $0 |
Net Income from Gaming Activities | $0 |
Net Income from Sales of Inventory | $0 |
Miscellaneous Revenue | $0 |
Total Revenue | $612,483 |
Statement of Expenses | |
---|---|
Grants and other assistance to domestic organizations and domestic governments. | $45,259 |
Grants and other assistance to domestic individuals. | $0 |
Grants and other assistance to Foreign Orgs/Individuals | $0 |
Benefits paid to or for members | $0 |
Compensation of current officers, directors, key employees. | $0 |
Compensation of current officers, directors, key employees. | $0 |
Compensation to disqualified persons | $0 |
Other salaries and wages | $0 |
Pension plan accruals and contributions | $0 |
Other employee benefits | $0 |
Payroll taxes | $0 |
Fees for services: Management | $7,395 |
Fees for services: Legal | $3,443 |
Fees for services: Accounting | $0 |
Fees for services: Lobbying | $0 |
Fees for services: Fundraising | $0 |
Fees for services: Investment Management | $0 |
Fees for services: Other | $1,798 |
Advertising and promotion | $0 |
Office expenses | $0 |
Information technology | $0 |
Royalties | $0 |
Occupancy | $0 |
Travel | $0 |
Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
Conferences, conventions, and meetings | $0 |
Interest | $0 |
Payments to affiliates | $0 |
Depreciation, depletion, and amortization | $0 |
Insurance | $0 |
All other expenses | $0 |
Total functional expenses | $57,895 |
Balance Sheet | |
---|---|
Cash—non-interest-bearing | $560,082 |
Savings and temporary cash investments | $0 |
Pledges and grants receivable | $0 |
Accounts receivable, net | $0 |
Loans from Officers, Directors, or Controlling Persons | $0 |
Loans from Disqualified Persons | $0 |
Notes and loans receivable | $0 |
Inventories for sale or use | $0 |
Prepaid expenses and deferred charges | $0 |
Net Land, buildings, and equipment | $0 |
Investments—publicly traded securities | $0 |
Investments—other securities | $0 |
Investments—program-related | $0 |
Intangible assets | $0 |
Other assets | $0 |
Total assets | $560,082 |
Accounts payable and accrued expenses | $5,494 |
Grants payable | $0 |
Deferred revenue | $0 |
Tax-exempt bond liabilities | $0 |
Escrow or custodial account liability | $0 |
Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
Secured mortgages and notes payable | $0 |
Unsecured mortgages and notes payable | $0 |
Other liabilities | $0 |
Total liabilities | $5,494 |
Net assets without donor restrictions | $554,588 |
Net assets with donor restrictions | $0 |
Capital stock or trust principal, or current funds | $0 |
Paid-in or capital surplus, or land, building, or equipment fund | $0 |
Retained earnings, endowment, accumulated income, or other funds | $0 |
Total liabilities and net assets/fund balances | $560,082 |