Jacks Corner Foundation Inc

Organization Overview

Jacks Corner Foundation Inc is located in Southport, CT. According to its NTEE Classification (G20) the organization is classified as: Birth Defects & Genetic Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Jacks Corner Foundation Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2022

Describe the Organization's Mission:

Part 3 - Line 1

TO RAISE FUNDS TO HELP WITH THE COSTS OF INDIVIDUALS WITH A ULTR RARE GENETIC DISEASE CALLED SPG50. SPG50 IS A DEGENERATIVE , SLOWLY TAKING AWAY CHILDREN'S ABILITY TO WALK AND USE THEIR HANDS , AND EVENTUALLY THEIR MENTAL CAPACITY. THE FUNDS RAISED WILL BE USED FOR GENE THERAPY TREATMENT FOR CHILDREN WITH SPG50.

Describe the Organization's Program Activity:

Part 3 - Line 4a

TO RAISE FUNDS TO HELP WITH THE COSTS OF INDIVIDUALS WITH A ULTR RARE GENETIC DISEASE CALLED SPG50. SPG50 IS A DEGENERATIVE SLOWLY TAKING AWAY CHILDREN'S ABILITY TO WALK AND USE THEIR HANDS AND EVENTUALLY THEIR MENTAL CAPACITY. THE GOAL OF THIS CHARITY WAS TO RAISE ENOUGH FUNDS TO SUPPORT THE GENE THERAPY TO TREAT SPG50. THE FDA APPROVED A CLINICAL TRIAL FOR THAT GENE THERAPHY IN THE US IN AUGUST OF 2022.


TO RAISE FUNDS TO HELP WITH THE COSTS OF INDIVIDUALS WITH A ULTR RARE GENETIC DISEASE CALLED SPG50. SPG50 IS A DEGENERATIVE SLOWLY TAKING AWAY CHILDREN'S ABILITY TO WALK AND USE THEIR HANDS AND EVENTUALLY THEIR MENTAL CAPACITY. THE GOAL OF THIS CHARITY WAS TO RAISE ENOUGH FUNDS TO SUPPORT THE GENE THERAPY TO TREAT SPG50. THE FDA APPROVED A CLINICAL TRIAL FOR THAT GENE THERAPHY IN THE US IN AUGUST OF 2022.


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Board, Officers & Key Employees

Name (title)Compensation
Devin Dwyer
Secretary
$0
Michael J Dwyer
President
$0
Adam Rafsky
Treasurer
$0

Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$0
Fundraising events$0
Related organizations$0
Government grants $609,533
All other contributions, gifts, grants, and similar amounts not included above$0
Noncash contributions included in lines 1a–1f $0
Total Revenue from Contributions, Gifts, Grants & Similar$609,533
Total Program Service Revenue$0
Investment income $0
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $0
Net Income from Fundraising Events $0
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $612,483

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