Tatton Brown Rahman Syndrome Community Inc
- Assets
- $422.8k
- Revenue
- $337.2k
- Investments
- $0.0
- Employees
- 1
- Location
- Stanfordville, NY
- Founding
- 10/2017
- Data as of
- 12/2021
- EIN
- 81-2216511
Organization Overview
Tatton Brown Rahman Syndrome Community Inc is located in Stanfordville, NY. The organization was established in 2017. According to its NTEE Classification (G20) the organization is classified as: Birth Defects & Genetic Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Tatton Brown Rahman Syndrome Community Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Tatton Brown Rahman Syndrome Community Inc generated $337.2k in total revenue. All expenses for the organization totaled $62.0k during the year ending 12/2021. While expenses have increased by 59.4% per year over the past 2 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
EXPANDED RESEARCH AND DEVELOPES NEW WEBSITE TO DECIMINATE NEW INFORMATIONS AND RESEARCH ON THE TATTON BROWN RAHMAN SYNDROME.
Describe the Organization's Program Activity:
Part 3 - Line 4a
1. ANNUAL INFORMATION CONFERENCE FOR FAMILIES WITH RESEARCH INFORMATION UPDATE, CONNECTING 300 DIAGNOSED FAMILIES THE UPDATED INFORMATION.2. DEVELOPING FAMILY SUPPORT GROUPS BY HOLDING MONTHLY PARENT AND CAREGIVER SUPPORT GROUP MEETINGS AND BY SENDING CARE PACKAGES TO THOSE FAMILIES IN CRISIS. 3. DEVELOPMENT OF THE TBRS CRN MAKING A CONTRIBUTION OF $21,115 AND FINDING A CORPORATE SPONSOR WHO MADE A MATCHING CONTRIBUTION TO DOUBLE SUPPORT IMPACT.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Jill Kiernan Executive Director | Trustee | 40 | $23,750 |
Kacee Richter President | Trustee | 10 | $0 |
Kerry Grens Vice-President | Trustee | 5 | $0 |
Jennifer York-Isaacs Secretary | Trustee | 5 | $0 |
Tom Watson Treasurer | Trustee | 5 | $0 |
Erin Rooker Marketing Director | Trustee | 5 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $305,495 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $305,495 |
| Total Program Service Revenue | $5,738 |
| Investment income | $0 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $26,013 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $337,246 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $21,115 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $23,750 |
| Compensation of current officers, directors, key employees. | $4,750 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $2,012 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $0 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $0 |
| Advertising and promotion | $0 |
| Office expenses | $604 |
| Information technology | $5,400 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $710 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $0 |
| All other expenses | $807 |
| Total functional expenses | $62,026 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $422,765 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $422,765 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $6,831 |
| Total liabilities | $6,831 |
| Net assets without donor restrictions | $0 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $415,934 |
| Total liabilities and net assets/fund balances | $422,765 |
Grants Awarded
Over the last fiscal year, Tatton Brown Rahman Syndrome Community Inc has awarded $21,115 in support to 2 organizations.
| Grant Recipient | Amount |
|---|---|
UNIVERSITY OF MONTREAL PURPOSE: RESEARCH | $10,558 |
UNIVERSITY OF BRITISH COLUMBIA PURPOSE: RESEARCHRESEARCHRESEARCH | $10,557 |
Grants Recieved
Over the last fiscal year, we have identified 2 grants that Tatton Brown Rahman Syndrome Community Inc has recieved totaling $600,420.
| Awarding Organization | Amount |
|---|---|
Silicon Valley Community Foundation Mountain View, CA PURPOSE: Health | $600,000 |
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $420 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Advancing Opportunities Inc Willingboro Nj, NJ | $4,890,971 | $11,587,937 |
Huntington Study Group Ltd Rochester, NY | $10,251,900 | $9,967,496 |
Orange County Cerebral Palsy Assoc Inc Goshen, NY | $3,937,132 | $8,052,491 |
Accessabilities Inc Butler, PA | $7,027,992 | $8,853,287 |
Meeting Street Massachusetts Inc Dartmouth, MA | $7,066,344 | $9,300,886 |
Huntingtons Disease Society Of America Inc New York, NY | $12,188,468 | $8,586,946 |
Aspire Developmental Services Inc Lynn, MA | $8,440,789 | $8,951,245 |
Community Care Connections Inc Butler, PA | $6,381,245 | $7,096,509 |
New York City Foundation For Cerebral Palsy Inc New York, NY | $162,656,067 | $8,109,354 |
The Clinic For Special Children Inc Strasburg, PA | $14,596,490 | $7,339,577 |
United Cerebral Palsy Of Northeastern Pa Scranton, PA | $4,177,102 | $4,455,373 |
Community Quest Inc Egg Harbor Twp, NJ | $3,457,954 | $5,336,065 |