Tatton Brown Rahman Syndrome Community Inc
- Assets
- $868.4k
- Revenue
- $309.0k
- Investments
- $0.0
- Employees
- 2
- Location
- Stanfordville, NY
- Founding
- 10/2017
- Data as of
- 12/2023
- EIN
- 81-2216511
Organization Overview
Tatton Brown Rahman Syndrome Community Inc is located in Stanfordville, NY. The organization was established in 2017. According to its NTEE Classification (G20) the organization is classified as: Birth Defects & Genetic Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 12/2023, Tatton Brown Rahman Syndrome Community Inc employed 2 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Tatton Brown Rahman Syndrome Community Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2023, Tatton Brown Rahman Syndrome Community Inc generated $309.0k in total revenue. This organization has experienced exceptional growth, as over the past 4 years, it has increased revenue by an average of 33.4% each year . All expenses for the organization totaled $333.7k during the year ending 12/2023. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
TBRS COMMUNITY AIMS TO SUPPORT ALL FAMILIES AFFECTED BY TBRS AND ADVANCE RESEARCH TOWARD INTERVENTIONS.
Describe the Organization's Program Activity:
Part 3 - Line 4a
1. IN 2023, OUR SCIENCE TEAM DROVE EFFORTS TOWARD IDENTIFYING INNOVATIVE TREATMENTS FOR TBRS. WE COMPLETED A RESEARCH GAP ANALYSIS, RECRUITED 10 NEW TBRS RESEARCHERS, AND HOSTED THREE RESEARCH ROUNDTABLES. THESE STRIDES IN OUR SCIENCE PROGRAM UNDERSCORE OUR COMMITMENT TO TRANSFORMING RESEARCH INTO ACTIONABLE SOLUTIONS, DIRECTLY BENEFITING PATIENTS AND THEIR FAMILIES.2. THE HIGHLIGHT OF THE YEAR WAS THE TBRS SUMMIT, A SCIENTIFIC AND FAMILY CONFERENCE, THAT UNITED 187 PATIENTS AND FAMILY MEMBERS WITH 27 SCIENTISTS. IT WAS HELD AT AN ULTRA-ACCESSIBLE VENUE THAT OFFERED INCLUSIVE ACTIVITIES FOR OUR ATTENDEES WITH DISABILITIES.3. WE FUNDED CRITICAL RESEARCH AIMED AT REFINING TBRS DIAGNOSIS AND IDENTIFYING KEY BIOMARKERS ESSENTIAL FOR TREATMENT DEVELOPMENT. WE LAUNCHED THE TBRS BIOREPOSITORY, WITH 32 PATIENT AND 10 CONTROL SAMPLES COLLECTED, THIS RESOURCE HAS BECOME A VITAL TOOL FOR RESEARCHERS WORLDWIDE, ENABLING THEM TO FAST-TRACK THEIR STUDIES ON TBRS.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Jill Kiernan Executive Director | Officer | 40 | $73,433 |
Jennifer York Isaacs Secretary | OfficerTrustee | 5 | $0 |
Thomas Watson Treasurer | OfficerTrustee | 5 | $0 |
Kacee Richter President | OfficerTrustee | 10 | $0 |
Kerry Grens Vice President | OfficerTrustee | 5 | $0 |
Erin Rooker Marketing Manager | OfficerTrustee | 5 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $279,571 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $279,571 |
| Total Program Service Revenue | $12,938 |
| Investment income | $16,493 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $309,002 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $20,000 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $73,433 |
| Compensation of current officers, directors, key employees. | $5,015 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $58,800 |
| Pension plan accruals and contributions | $2,347 |
| Other employee benefits | $5,853 |
| Payroll taxes | $11,169 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $1,700 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $27,819 |
| Advertising and promotion | $3,908 |
| Office expenses | $6,065 |
| Information technology | $13,160 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $20,336 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $78,402 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $5,108 |
| All other expenses | $5,644 |
| Total functional expenses | $333,744 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $844,432 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $24,012 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $868,444 |
| Accounts payable and accrued expenses | $68,979 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $68,979 |
| Net assets without donor restrictions | $645,133 |
| Net assets with donor restrictions | $154,332 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $868,444 |
Grants Awarded
Over the last fiscal year, Tatton Brown Rahman Syndrome Community Inc has awarded $21,115 in support to 2 organizations.
| Grant Recipient | Amount |
|---|---|
UNIVERSITY OF MONTREAL PURPOSE: RESEARCH | $10,558 |
UNIVERSITY OF BRITISH COLUMBIA PURPOSE: RESEARCHRESEARCHRESEARCH | $10,557 |