Shwachman-Diamond Syndrome Alliance Inc

Organization Overview

Shwachman-Diamond Syndrome Alliance Inc is located in Woburn, MA. According to its NTEE Classification (G20) the organization is classified as: Birth Defects & Genetic Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Shwachman-Diamond Syndrome Alliance Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 12/2023, Shwachman-Diamond Syndrome Alliance Inc generated $288.8k in total revenue. This represents a relatively dramatic decline in revenue. Over the past 3 years, the organization has seen revenues fall by an average of (9.3%) each year. All expenses for the organization totaled $126.5k during the year ending 12/2023. You can explore the organizations financials more deeply in the financial statements section below.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2023

Describe the Organization's Mission:

Part 3 - Line 1

DEDICATED TO BUILDING A WORLD WHERE SHWACHMAN-DIAMOND SYNDROME (SDS) IS CURABLE.

Describe the Organization's Program Activity:

Part 3 - Line 4a

THE SDS ALLIANCE BRINGS TOGETHER PATIENT FAMILIES, RESEARCHERS, CLINICIANS, AND OTHER DIVERSE STAKEHOLDERS TO BETTER UNDERSTAND, DIAGNOSE, AND TREAT THIS DEVASTATING CANCER PREDISPOSITION GENETIC DISORDER.


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Board, Officers & Key Employees

Name (title)Compensation
Eszter Hars
President
$80,000
Indrani Chatterjee
Member
$0
Dora Erdos
Member
$0
Marcelo G Decastro
Secretary
$0
William Chen
Treasurer
$0

Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$0
Fundraising events$0
Related organizations$0
Government grants $0
All other contributions, gifts, grants, and similar amounts not included above$270,083
Noncash contributions included in lines 1a–1f $0
Total Revenue from Contributions, Gifts, Grants & Similar$270,083
Total Program Service Revenue$0
Investment income $18,731
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $0
Net Income from Fundraising Events $0
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $288,814

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