Shwachman-Diamond Syndrome Alliance Inc

Organization Overview

Shwachman-Diamond Syndrome Alliance Inc is located in Woburn, MA. According to its NTEE Classification (G20) the organization is classified as: Birth Defects & Genetic Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Shwachman-Diamond Syndrome Alliance Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2021

Describe the Organization's Mission:

Part 3 - Line 1

DEDICATED TO BUILDING A WORLD WHERE SHWACHMAN-DIAMOND SYNDROME (SDS) IS CURABLE.

Describe the Organization's Program Activity:

Part 3 - Line 4a

THE SDS ALLIANCE BRINGS TOGETHER PATIENT FAMILIES, RESEARCHERS, CLINICIANS, AND OTHER DIVERSE STAKEHOLDERS TO BETTER UNDERSTAND, DIAGNOSE, AND TREAT THIS DEVASTATING CANCER PREDISPOSITION GENETIC DISORDER.


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Board, Officers & Key Employees

Name (title)Compensation
Lotien Huang
Treasurer
$0
Eszter Hars
President
$0
Dora Erdos
Secretary
$0

Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$0
Fundraising events$0
Related organizations$0
Government grants $0
All other contributions, gifts, grants, and similar amounts not included above$386,094
Noncash contributions included in lines 1a–1f $0
Total Revenue from Contributions, Gifts, Grants & Similar$386,094
Total Program Service Revenue$0
Investment income $0
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $0
Net Income from Fundraising Events $1,474
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $387,568

Grants Recieved

Over the last fiscal year, we have identified 3 grants that Shwachman-Diamond Syndrome Alliance Inc has recieved totaling $600,271.

Awarding OrganizationAmount
Silicon Valley Community Foundation

Mountain View, CA

PURPOSE: Health

$600,000
Amazonsmile Foundation

Seattle, WA

PURPOSE: GENERAL SUPPORT

$171
Jp Morgan Chase Foundation

New York, NY

PURPOSE: GENERAL OPERATING SUPPORT

$100
View Grant Recipient Profile

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