Advancing Ctnnb1 Cures And Treatments Inc
- Assets
- $316.2k
- Revenue
- $313.9k
- Investments
- $0.0
- Employees
- 0
- Location
- Morristown, NJ
- Founding
- 09/2019
- Data as of
- 12/2023
- EIN
- 83-4541448
Organization Overview
Advancing Ctnnb1 Cures And Treatments Inc is located in Morristown, NJ. The organization was established in 2019. According to its NTEE Classification (G80) the organization is classified as: Specifically Named Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Advancing Ctnnb1 Cures And Treatments Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2023, Advancing Ctnnb1 Cures And Treatments Inc generated $313.9k in total revenue. This organization has experienced exceptional growth, as over the past 5 years, it has increased revenue by an average of 33.0% each year . All expenses for the organization totaled $194.3k during the year ending 12/2023. While expenses have increased by 39.0% per year over the past 5 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
FINDING TREATMENTS AND A CURE FOR CTNNB1 SYNDROME TO HELP CHILDREN LIVE THEIR BEST LIVES POSSIBLE WHILE RAISING AWARENESS AND CONNECTING FAMILIES.
Describe the Organization's Program Activity:
Part 3 - Line 4a
THE ORGANIZATIONS PURPOSE IS FINDING TREATMENTS AND A CURE FOR CTNNB1 SYNDROME TO HELP CHILDREN LIVE THEIR BEST LIVES POSSIBLE WHILE RAISING AWARENESS AND CONNECTING FAMILIES. THIS WAS ACCOMPLISHED BY HAVING AN IN PERSON RESEARCH CONFERENCE, IN CONJUNCTION WITH HAVING DOCTORS IN PERFORMING A NATURAL HISTORY STUDY ON THE CHILDREN. THE ORGANIZATION ALSO PROVIDES GRANTS FOR RESEARCH TO FIND A CURE.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Sean Cochran Chief Financial Officer | OfficerTrustee | 5 | $0 |
Emily Amerson President | OfficerTrustee | 15 | $0 |
Lauren Cochran Director Of Research | Trustee | 4 | $0 |
Alex Dashiell Co-Treasurer | OfficerTrustee | 4 | $0 |
Nicole Dashiell Secretary | OfficerTrustee | 4 | $0 |
Ngano Tony King Sr Chief Research Officer | OfficerTrustee | 10 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $314,676 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $314,676 |
| Total Program Service Revenue | $0 |
| Investment income | $0 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | -$798 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $313,878 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $155,000 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $0 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $4,664 |
| Advertising and promotion | $1,310 |
| Office expenses | $2,141 |
| Information technology | $2,148 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $335 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $25,930 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $2,198 |
| All other expenses | $0 |
| Total functional expenses | $194,310 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $316,244 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $316,244 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $0 |
| Net assets without donor restrictions | $316,244 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $316,244 |
Grants Awarded
Over the last fiscal year, Advancing Ctnnb1 Cures And Treatments Inc has awarded $155,000 in support to 2 organizations.
| Grant Recipient | Amount |
|---|---|
TRUSTEES OF TUFTS COLLEGE PURPOSE: Research Treatment Study | $90,000 |
BOSTON CHILDREN'S HOSPITAL PURPOSE: CTNNB1 Natural History Study | $65,000 |