A Star For Ben Foundation
- Assets
- $176.2k
- Revenue
- $214.7k
- Investments
- $0.0
- Employees
- 0
- Location
- Katonah, NY
- Founding
- 05/2018
- Data as of
- 12/2023
- EIN
- 82-5186436
Organization Overview
A Star For Ben Foundation is located in Katonah, NY. The organization was established in 2018. According to its NTEE Classification (G20) the organization is classified as: Birth Defects & Genetic Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. A Star For Ben Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
TO SUPPORT AND ADVANCE SALLA DISEASE TREATMENTS, RESEARCH, EDUCATION, AWARENESS, AND FAMILY NETWORKS.
Describe the Organization's Program Activity:
Part 3 - Line 4a
THE SALLA TREATMENT AND RESEARCH FOUNDATION (A STAR FOR BEN, INC.) IS A 501 (C) 3 TAX-EXEMPT CHARITABLE ORGANIZATION DEDICATED TO SUPPORTING AND ADVANCING SALLA DISEASE TREATMENTS, RESEARCH, EDUCATION, AWARENESS, AND FAMILY NETWORKS. ?THE FOUNDATION SUPPORTS COLLABORATIVE SCIENTIFIC RESEARCH IN ORDER TO ACCELERATE THE PROSPECTS FOR EFFECTIVE MEDICAL TREATMENTS FOR THOSE AFFECTED WITH SALLA. THE SALLA TREATMENT AND RESEARCH FOUNDATION IS DRIVEN BY AN UNWAVERING BELIEF THAT NO DISEASE IS TOO RARE TO FIGHT, AND THAT WITH SUFFICIENT SUPPORT, HOPE, AND FAITH, A SMALL TEAM OF COMMITTED RESEARCHERS, FAMILIES, SUPPORTERS, AND ADVOCATES CAN CREATE MEANINGFUL SOLUTIONS FOR THOSE IMPACTED BY THIS DISEASE.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
David Halpern Secretary | Officer | 10 | $0 |
Kenneth Klein Treasurer | Officer | 5 | $0 |
Jessica Klein Foglio President | Officer | 10 | $0 |
Michael Foglio Vice President | Officer | 10 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $214,720 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $0 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $214,720 |
| Total Program Service Revenue | $0 |
| Investment income | $18 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $214,738 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $17,568 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $54,937 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $525 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $0 |
| Advertising and promotion | $1,194 |
| Office expenses | $845 |
| Information technology | $3,000 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $4,984 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $1,078 |
| All other expenses | $8,458 |
| Total functional expenses | $125,940 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $6,906 |
| Savings and temporary cash investments | $169,320 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $176,226 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $102,189 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $102,189 |
| Net assets without donor restrictions | $0 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $74,037 |
| Total liabilities and net assets/fund balances | $176,226 |
Grants Awarded
Over the last fiscal year, A Star For Ben Foundation has awarded $95,000 in support to 2 organizations.
| Grant Recipient | Amount |
|---|---|
NATIONAL INSTITUTE OF HEALTH PURPOSE: RESEARCH | $75,000 |
GREENWOOD GENETIC CENTER PURPOSE: RESEARCH | $20,000 |