Hemophilia Federation Of America Inc
- Assets
- $9.0m
- Revenue
- $5.5m
- Investments
- $0.0
- Employees
- 39
- Location
- Washington, DC
- Founding
- 12/2000
- Data as of
- 12/2021
- EIN
- 72-1282316
Organization Overview
Hemophilia Federation Of America Inc is located in Washington, DC. The organization was established in 2000. According to its NTEE Classification (E70) the organization is classified as: Public Health, under the broad grouping of Health Care and related organizations. As of 12/2021, Hemophilia Federation Of America Inc employed 39 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Hemophilia Federation Of America Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Hemophilia Federation Of America Inc generated $5.5m in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 8.2% each year. All expenses for the organization totaled $4.5m during the year ending 12/2021. While expenses have increased by 8.0% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
HEMOPHILIA FEDERATION OF AMERICA IS A NATIONAL NONPROFIT ORGANIZATION THAT ASSISTS, EDUCATES, AND ADVOCATES FOR THE BLEEDING DISORDERS COMMUNITY.
Describe the Organization's Program Activity:
Part 3 - Line 4a
OUTREACH - HELPS INDIVIDUALS WITH BLEEDING DISORDERS AND THEIR CAQREGIVERS LEARN HOW TO BECOME ADVOCATES ON THEOR OWN BEHALF THROPUGH IN-PERSON AND ONLINE TRAINING, TOOL KITS, AND WEV RESOURCES. EDUCATION AND TOOLS ARE PROBIDED TO PARTICIPATE IN MONITORING, LEARNING TO SELF-ADVOCATE, AND EDUCATING ABOUT FEDERALA ND STATE PUBLIC POLICIES THAT O,PACT THE LIVES OF PEOPLE LIVING WITH BLEEDIDNG DISORDERS. SOCIAL AND PRINT MEDIA ARE ACCTIVELY UTILIZED TO ELXTEND OUTREACH EFFORTS AND BRING COMMUNITY TOGETHERE. FOUR PROGRAMS ARE INCLUDED IN OUTREACH:BLOOD BROTHERHOOD, BLOOD SISTERHOOD, HFA FAMILIES,AND OUTREACH EDUCATION
HFA RESEARCH - A COMMUNITY CENTERED, COMMUNITY FOCUSED, AND COMMUNITY DRIVEN PROGRAM AIMED AT IMPROVING THE LIVES OF BLEEDING DISORDERS COMMUNITY MENBERS. RESEARCH TOPICS ARE IDENTIFIED BY THE COMMUNITY POPULATION AND FOCUSED ON PATIENT/COMMUNITY DATA. DATA ARE COLLECTED NATIONALLY ONLINE AS WELL AS LOCALLY THROUGH AFA'S 40-PLUS MEMBER ORGANIZATIONS ACROSS THE COUNTRY.
HELPING HANDS - DESIGNED TO ESTAABLISH A RAPID, NONINVASIVE SOURCE OF RELIEF FOR EMERGENCY SITUATIONS FOR INDIVIDUALS AND FAMILIES IN THE BLEEDING DISORDERS COMMUNITY. EACH APPLICATION IS GIVEN CAREFUL CONSIDERATION AS TO THE PERSONAL CIRCUMSTANCES, WHILE ENSURING A MINIMUM INVASION OF PRIVACY FOR COMMUNITY MEMBERS. THE PROGRAM ALSO ASSISTS INDIVIDUALS WITH THE COSTS OF MEDICALLY NECESSARY ITEMS AND DURABLE MEDICAL EQUIPMENT.
OUTREACH - HELPS INDIVIDUALS WITH BLEEDING DISORDERS AND THEIR CAQREGIVERS LEARN HOW TO BECOME ADVOCATES ON THEOR OWN BEHALF THROPUGH IN-PERSON AND ONLINE TRAINING, TOOL KITS, AND WEV RESOURCES. EDUCATION AND TOOLS ARE PROBIDED TO PARTICIPATE IN MONITORING, LEARNING TO SELF-ADVOCATE, AND EDUCATING ABOUT FEDERALA ND STATE PUBLIC POLICIES THAT O,PACT THE LIVES OF PEOPLE LIVING WITH BLEEDIDNG DISORDERS. SOCIAL AND PRINT MEDIA ARE ACCTIVELY UTILIZED TO ELXTEND OUTREACH EFFORTS AND BRING COMMUNITY TOGETHERE. FOUR PROGRAMS ARE INCLUDED IN OUTREACH:BLOOD BROTHERHOOD, BLOOD SISTERHOOD, HFA FAMILIES,AND OUTREACH EDUCATION
HFA RESEARCH - A COMMUNITY CENTERED, COMMUNITY FOCUSED, AND COMMUNITY DRIVEN PROGRAM AIMED AT IMPROVING THE LIVES OF BLEEDING DISORDERS COMMUNITY MENBERS. RESEARCH TOPICS ARE IDENTIFIED BY THE COMMUNITY POPULATION AND FOCUSED ON PATIENT/COMMUNITY DATA. DATA ARE COLLECTED NATIONALLY ONLINE AS WELL AS LOCALLY THROUGH AFA'S 40-PLUS MEMBER ORGANIZATIONS ACROSS THE COUNTRY.
HELPING HANDS - DESIGNED TO ESTAABLISH A RAPID, NONINVASIVE SOURCE OF RELIEF FOR EMERGENCY SITUATIONS FOR INDIVIDUALS AND FAMILIES IN THE BLEEDING DISORDERS COMMUNITY. EACH APPLICATION IS GIVEN CAREFUL CONSIDERATION AS TO THE PERSONAL CIRCUMSTANCES, WHILE ENSURING A MINIMUM INVASION OF PRIVACY FOR COMMUNITY MEMBERS. THE PROGRAM ALSO ASSISTS INDIVIDUALS WITH THE COSTS OF MEDICALLY NECESSARY ITEMS AND DURABLE MEDICAL EQUIPMENT.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Sharon Meyers Executive Director | 0 | $200,000 | |
Mable Crescioni Project Director | 40 | $122,125 | |
Michelle Burg Executive Dir. | Officer | 40 | $92,418 |
Allison Ritcey Chair | OfficerTrustee | 1 | $0 |
Gillian Schultz Secretary | OfficerTrustee | 1 | $0 |
Lucas Runion Treasurer | OfficerTrustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $43,784 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $3,923,370 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $3,967,154 |
| Total Program Service Revenue | $848,545 |
| Investment income | $178,439 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $37,757 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $5,475,706 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $292,418 |
| Compensation of current officers, directors, key employees. | $20,469 |
| Compensation to disqualified persons | $1,935,001 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $355,816 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $830 |
| Fees for services: Accounting | $95,445 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $0 |
| Advertising and promotion | $22,067 |
| Office expenses | $26,224 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $140,104 |
| Travel | $59,028 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $27,531 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $8,279 |
| All other expenses | $142,865 |
| Total functional expenses | $4,515,451 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $1,587,891 |
| Savings and temporary cash investments | $1,132,798 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $312,041 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $31,347 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $5,955,076 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $9,019,153 |
| Accounts payable and accrued expenses | $290,497 |
| Grants payable | $0 |
| Deferred revenue | $1,400,500 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $241,526 |
| Total liabilities | $1,932,523 |
| Net assets without donor restrictions | $7,086,630 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $9,019,153 |
Grants Recieved
Over the last fiscal year, we have identified 4 grants that Hemophilia Federation Of America Inc has recieved totaling $159,248.
| Awarding Organization | Amount |
|---|---|
Colburn-Keenan Foundation Inc Enfield, CT PURPOSE: SUPPORT ACTIVITIES THAT BENEFIT THE BLEEDING DISORDERS AND CHRONIC ILLNESS COMMUNITIE | $58,500 |
Hemophilia Alliance Foundation Lansdale, PA PURPOSE: PROMOTE HEMOPHILIA | $50,000 |
Hemophilia Alliance Group Purchasing Organization Inc Lansdale, PA PURPOSE: PROMOTE ADVOCACY, EDUCATION AND RESEARCH FOR PATIENTS AND FAMILIES WITH BLEEDING DISORDERS. | $50,000 |
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $748 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
American Public Health Association Inc Washington, DC | $40,190,795 | $21,945,713 |
National Board For Certification In Occupational Therapy Inc Gaithersburg, MD | $70,301,051 | $17,288,402 |
La Clinica Del Pueblo Inc Washington, DC | $16,281,653 | $17,674,538 |
Metavivor Research And Support Inc Annapolis, MD | $15,087,139 | $5,810,082 |
American College Of Preventive Medicine Inc Washington, DC | $3,116,975 | $5,966,752 |
Martinsville Henry Coalition For Health And Wellness Inc Martinsville, VA | $4,474,599 | $6,623,246 |
Health Security Partners Llc Washington, DC | $1,682,123 | $4,978,660 |
National Coalition Of Std Directors Washington, DC | $1,612,194 | $5,001,048 |
Public Health Foundation Washington, DC | $4,925,557 | $5,694,584 |
Crisp Shared Services Inc Columbia, MD | $1,471,151 | $4,912,963 |
American Telemedicine Association Arlington, VA | $1,706,836 | $5,604,534 |
Culpeper Wellness Foundation Culpeper, VA | $44,746,109 | $7,469,590 |