Hemophilia Federation Of America Inc
- Assets
- $9.0m
- Revenue
- $5.5m
- Investments
- $0.0
- Employees
- 40
- Location
- Washington, DC
- Founding
- 12/2000
- Data as of
- 12/2021
- EIN
- 72-1282316
Organization Overview
Hemophilia Federation Of America Inc is located in Washington, DC. The organization was established in 2000. According to its NTEE Classification (E70) the organization is classified as: Public Health, under the broad grouping of Health Care and related organizations. As of 12/2022, Hemophilia Federation Of America Inc employed 40 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Hemophilia Federation Of America Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Hemophilia Federation Of America Inc generated $5.5m in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 8.2% each year. All expenses for the organization totaled $4.5m during the year ending 12/2021. While expenses have increased by 8.0% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Since 2022, Hemophilia Federation Of America Inc has awarded 33 individual grants totaling $380,000. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
SEE PART III, LINE 1.
Describe the Organization's Program Activity:
Part 3 - Line 4a
HFA RESEARCH - A COMMUNITY CENTERED, COMMUNITY FOCUSED, AND COMMUNITY DRIVEN PROGRAM AIMED AT IMPROVING THE LIVES OF BLEEDING DISORDERS COMMUNITY MEMBERS. RESEARCH TOPICS ARE IDENTIFIED BY THE COMMUNITY POPULATION AND FOCUSED ON PATIENT/COMMUNITY DATA. DATA IS COLLECTED NATIONALLY ONLINE AS WELL AS LOCALLY THROUGH HFA'S 50-PLUS MEMBER ORGANIZATIONS ACROSS THE COUNTRY.
SYMPOSIUM CONFERENCE - A NATIONAL ANNUAL COMMUNITY-CERTIFICATION EDUCATIONAL CONFERNCE EVENT THAT DRAWS HUNDREDS OF PATIENTS AND THEIR FAMILIES.THIS CONFERENCE IS A PLACE WHERE COMMUNITY MEMBERS COME TOGETHER TO SHARE INFORMATION, LEARN ABOUT NEW ADVANCEMENT, AND BUILD A NETWORK OF SUPPORT.
HELPING HANDS - DESIGNED TO ESTABLISH A RAPID, NON-INVASIVE SOURCE OF RELIEF FOR EMERGENCY SITUATIONS FOR INDIVIDUALS AND FAMILIES IN THE BLEEDING DISORDERS COMMUNITY. EACH APPLICATION IS GIVEN CAREFUL CONSIDERATION AS TO THE PERSONAL CIRCUMSTANCES, WHILE ENSURING A MINIMUM INVASION OF PRIVACY FOR COMMUNITY MEMBERS. THE PROGRAM ALSO ASSISTS INDIVIDUALS WITH THE COSTS OF MEDICALLY NECESSARY ITEMS AND DURABLE MEDICAL EQUIPMENT.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Allie Ritcey Chair | OfficerTrustee | 1 | $0 |
Joseph Markowitz Vice Chair | OfficerTrustee | 1 | $0 |
Tracy Cleghorn Past Chair | OfficerTrustee | 1 | $0 |
Lucas Runion Treasurer | OfficerTrustee | 1 | $0 |
George Stone Secretary | OfficerTrustee | 1 | $0 |
Stephen Long Vice Chair | OfficerTrustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $43,784 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $3,923,370 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $3,967,154 |
| Total Program Service Revenue | $848,545 |
| Investment income | $178,439 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $37,757 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $5,475,706 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $292,418 |
| Compensation of current officers, directors, key employees. | $20,469 |
| Compensation to disqualified persons | $1,935,001 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $355,816 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $830 |
| Fees for services: Accounting | $95,445 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $0 |
| Advertising and promotion | $22,067 |
| Office expenses | $26,224 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $140,104 |
| Travel | $59,028 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $27,531 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $8,279 |
| All other expenses | $142,865 |
| Total functional expenses | $4,515,451 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $1,587,891 |
| Savings and temporary cash investments | $1,132,798 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $312,041 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $31,347 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $5,955,076 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $9,019,153 |
| Accounts payable and accrued expenses | $290,497 |
| Grants payable | $0 |
| Deferred revenue | $1,400,500 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $241,526 |
| Total liabilities | $1,932,523 |
| Net assets without donor restrictions | $7,086,630 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $9,019,153 |
Grants Awarded
Over the last fiscal year, Hemophilia Federation Of America Inc has awarded $380,000 in support to 33 organizations.
| Grant Recipient | Amount |
|---|---|
BDAND (BLEEDING DISORDERS OF ND) PURPOSE: COOKING DEMONSTRATION - EVENT 2/1/2022, COOKING DEMONSTRATION - EVENT 2/26/2022 - JOINT EVENT WITH ALASKA AND PACIFIC NORTHWEST,WHEN TO FREAK OUT AND PATHWAYS TO BEST CARE | $8,000 |
ASOCIACIN PUERTORRIQUEA DE HEMOFILIA Y CONDICIONES DE SANGRADO PURPOSE: CUIDANDO DE TI,FACILITATED RAP SESSION - EVENT 7/8/2022, FACILITATED RAP SESSION FOR TEENS, MANEJO DEL DOLOR,TAKING CARE OF YOU (IN SPANISH) EVENT 5/15/2022 | $10,000 |
BLEEDING DISORDER ASSOCIATION OF SOUTH CAROLINA PURPOSE: CARRIER GUILT RAP SESSION AND MIND HEART BODY CONNECTION,COOKING DEMONSTRATION - EVENT 2/26/2022 - JOINT EVENT WITH ALASKA AND PACIFIC NORTHWEST,WHEN TO FREAK OUT AND PATHWAYS TO BEST CARE | $12,000 |
BLEEDING DISORDERS ALLIANCE OF ND (V) PURPOSE: MILD MATTERS, TRAUMA, TAKING CARE OF YOU | $6,000 |
BLEEDING DISORDERS SOUTHERN TIER PURPOSE: MY STORY OF RESILIENCE & BLOOD SISTERHOOD OVEVIEW,PATHWAY FOR BEST CARE; THE REPRODUCTIVE YEARS,RAP SESSION: COPING WITH STRESS | $8,000 |
BLEEDING DISORDERS FOUNDATION OF NORTH CA PURPOSE: BEYOND RECREATION - KEYNOTE,KINESIOTAPING, FINANCIAL WELLNESS 101, PATHWAY TO BEST CARE, | $10,000 |