Cadasil Association
- Assets
- $340.2k
- Revenue
- $256.7k
- Investments
- $0.0
- Employees
- 0
- Location
- Plainsboro, NJ
- Founding
- 09/2012
- Data as of
- 12/2022
- EIN
- 45-5242623
Organization Overview
Cadasil Association is located in Plainsboro, NJ. The organization was established in 2012. According to its NTEE Classification (G80) the organization is classified as: Specifically Named Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Cadasil Association is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2022, Cadasil Association generated $256.7k in total revenue. All expenses for the organization totaled $28.9k during the year ending 12/2022. While expenses have increased by 12.0% per year over the past 2 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2022
Describe the Organization's Mission:
Part 3 - Line 1
THE MISSION OF CURECADASIL IS TO RAISE AWARENESS OF CADASIL, ENSURING IT WILL BE UNIVERSALLY RECOGNIZED AND UNDERSTOOD BY THE MEDICAL COMMUNITY, ENABLING PATIENTS TO BE CORRECTLY DIAGNOSED. WE ARE DEDICATED TO HELPING ALL TOUCHED BY CADASIL, IMPROVING EDUCATION AVAILABLE ON CADASIL AND PROMOTE AND SUPPORT RESEARCH FOR THIS RARE DISEASE.
Describe the Organization's Program Activity:
Part 3 - Line 4a
CADASIL IS AN HEREDITARY SMALL VESSEL DISEASE CAUSED BY MUTATIONS IN THE NOTCH3 GENE. THESE MUTATIONS LEAD TO PROGRESSIVE CHANGES IN THE SMALL BRAIN ARTERIES AND REDUCED BLOOD FLOW TO THE BRAIN. WE AIM TO SHARE THESE CADASIL VESSEL-ON-CHIP WITH THE INTERNATIONAL CADASIL RESEARCH COMMUNITY TO PROMOTE CADASIL RESEARCH. WE AIM TO UNITE PATIENTS AND THE MEDICAL COMMUNITY TOWARD THE COMMON GOAL OF TREATMENTS AND ULTIMATELY A CURE FOR THIS RARE GENETIC DISEASE, BY PROMOTING COMMUNICATION, ADVOCACY, RESEARCH, AND EDUCATION.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Bertram Kasiske President | Officer | 20 | $0 |
Pedro DE Lencastre Secretary | Officer | 18 | $0 |
Debra Robinson Treasurer | Officer | 18 | $0 |
Jane Gunther Research Ofc. | Officer | 18 | $0 |
Sandra Talbird Trustee | Trustee | 5 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $256,732 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $256,732 |
| Total Program Service Revenue | $0 |
| Investment income | $7 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | -$23 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $256,716 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $10,000 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $1,280 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $6,124 |
| Advertising and promotion | $0 |
| Office expenses | $0 |
| Information technology | $3,818 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $2,213 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $1,250 |
| All other expenses | $62 |
| Total functional expenses | $28,900 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $314,153 |
| Savings and temporary cash investments | $26,083 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $340,236 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $0 |
| Net assets without donor restrictions | $130,236 |
| Net assets with donor restrictions | $210,000 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $340,236 |
Grants Recieved
Over the last fiscal year, we have identified 3 grants that Cadasil Association has recieved totaling $6,613.
| Awarding Organization | Amount |
|---|---|
Paypal Charitable Giving Fund Washington, DC PURPOSE: General Support | $5,311 |
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $1,292 |
Lumen Clarke M Williams Foundation Wilmington, DE PURPOSE: GENERAL SUPPORT | $10 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Lymphoma Research Foundation New York, NY | $31,207,101 | $16,103,858 |
African Leaders Malaria Alliance Inc Laurelton, NY | $8,771,808 | $10,298,494 |
The Marfan Foundation Inc Port Washington, NY | $16,600,923 | $9,814,628 |
Prevention Links Roselle, NJ | $1,171,650 | $4,754,072 |
Learning Disabilities Association Of Western New York Inc Kenmore, NY | $2,525,018 | $4,880,891 |
Eb Research Partnership Inc New York, NY | $20,862,871 | $7,736,054 |
Yairockland County Association For People With Disabilities New York, NY | $0 | $3,637,352 |
Prevention Resources Inc Flemington, NJ | $1,493,246 | $2,776,493 |
United Mitochondrial Disease Foundation Inc Pittsburgh, PA | $5,488,767 | $3,021,406 |
Allegany Council On Alcoholism And Substance Abuse Inc Wellsville, NY | $2,491,126 | $2,749,912 |
Positudes Inc Westbury, NY | $32,648,999 | $5,043,435 |
Atlantic Prevention Resources Inc Absecon, NJ | $503,584 | $1,633,056 |