Sepsis Alliance

TO SAVE LIVES AND REDUCE SUFFERING BY EDUCATING THE PUBLIC (CONTINUED ON SCHED O) (CONTINUED FROM PG 1, PART 1, LINE 1) AND LEADING AN ALLIANCE OF PATIENTS, HEALTHCARE PROFESSIONALS, AND PARTNERS COMMITTED TO PREVENTING AND CURING SEPSIS.

PUBLIC AWARENESS, EDUCATION, & SUPPORT:SEPSIS ALLIANCE MAINTAINED THE SEPSIS.ORG WEBSITE SERVING MORE THAN 2 MILLION VISITORS WITH RELIABLE AND ACCURATE INFORMATION. PROGRAMMATIC WORK INCLUDED THE TRANSLATION OF SEVERAL ANTIMICROBIAL RESISTANCE AND INFECTION PREVENTION RELATED SEPSIS INFORMATION GUIDES TO SPANISH, TRADITIONAL CHINESE AND TAGALOG. ADDITIONAL PROGRAMMATIC WORK INCLUDED DEVELOPING INFECTION PREVENTION EDUCATION MATERIALS FOR PATIENTS RECEIVING AT HOME ANTI-INFECTIVE INFUSIONS IN ENGLISH AND SPANISH AND A COVID-19 EDUCATION PROGRAM TO REACH UNDER-VACCINATED AND UNDERSERVED COMMUNITIES. OTHER 2023 PROGRAMS INCLUDED A SEPSIS AND FLU EDUCATIONAL CAMPAIGN TO ADDRESS FLU PREVENTION, TREATMENT, AND MYTHS VS FACTS, AND THE DEVELOPMENT OF PATIENT EDUCATION (CONTINUED SCHEDULE O)(CONTINED FROM PART III, 4A) FOR CHILDREN AND ADULTS WITH INTELLECTUAL AND DEVELOPMENTAL DISABILITIES (IDD) INCLUDING A SEPSIS AND PAGE, A TEXT GUIDE, VISUAL GUIDE, AND COMPANION HEALTHCARE PROVIDER GUIDE. ADDITIONAL ACCOMPLISHMENTS INCLUDED CONDUCTING A PATIENT SURVEY TO BETTER UNDERSTAND THE PATIENT DIAGNOSTIC JOURNEY. MORE THAN 1,500 PATIENTS AND FAMILY MEMBERS PARTICIPATED IN THE SURVEY. SEPSIS ALLIANCE CELEBRATED THE ONE-YEAR ANNIVERSARY OF SEPSIS ALLIANCE CONNECT, A VIRTUAL SUPPORT COMMUNITY FOR SEPSIS SURVIVORS, CAREGIVERS, AND THOSE WHO HAVE LOST LOVED ONES AND LAUNCHED FIRST SEPSIS ALLIANCE CONNECT AFFINITY GROUP, WHICH WILL CREATE SPACE SPECIFICALLY FOR YOUNG ADULTS IN THE COMMUNITY.

INNOVATION:SEPSIS ALLIANCE CONTINUED WORK ON THE IMSCC (INFECTION MANAGEMENT/SEPSIS COLLABORATIVE COMMUNITY) FUNDED THROUGH A COOPERATIVE AGREEMENT WITH ASPR (THE ADMINISTRATION FOR STRATEGIC PREPAREDNESS AND RESPONSE). ACCOMPLISHMENTS INCLUDED THE IMSCC OFFICIAL RECOGNITION BY FDA (U.S. FOOD AND DRUG ADMINISTRATION) AS ONE OF THEIR COLLABORATIVE COMMUNITIES WITH TWO FEDERAL LIAISONS AND CREATED TWO IMSCC VOLUNTEER MEMBER WORKGROUPS TO EXECUTE ASPR-FUNDED PROJECTS; RECRUITED OVER 40 VOLUNTEER SUBJECT MATTER EXPERTS AND C-SUITE LEVEL OFFICERS TO STAFF WORKGROUPS. ADDITIONAL EFFORTS IN 2023 INCLUDED WORK ON TWO PROJECTS: 1) UNDERSTANDING AND MEASURING THE PATIENT EXPERIENCE IN DIAGNOSING SEPSIS AND 2) DE-RISKING THE PRODUCT DESIGN AND REGULATORY PROCESS FOR INFECTION MANAGEMENT AND SEPSIS-RELATED DEVICES. SEPSIS ALLIANCE ESTABLISHED A MEMBER COMMUNITY WITHIN SIC (SEPSIS INNOVATION COLLABORATIVE) TO FOSTER COLLABORATION AND INNOVATION AMONG DIVERSE STAKEHOLDERS TO ADVANCE THE AVAILABILITY AND QUALITY OF DATA-DRIVEN SOLUTIONS TO IMPROVE SEPSIS OUTCOMES, ENHANCE PATIENT CARE, AND PROMOTE THE WELL-BEING OF SEPSIS SURVIVORS. ADDITIONALLY, SEPSIS ALLIANCE CONVENED A ROUNDTABLE TO ADVANCE THE RECOMMENDATIONS OF THE 2022 ROUNDTABLE ON SEPSIS DATA BY ESTABLISHING A STAKEHOLDER-LED PROCESS FOR ADDRESSING OPERATIONAL QUESTIONS CRITICAL TO A DATA TRUST; INITIATING A PROCESS TO DEVELOP AND PRIORITIZE USE CASES; AND HARMONIZING DATA VOCABULARIES AND DEFINITIONS BY EXPLORING A PARTNERSHIP WITH HEALTH LEVEL SEVEN INTERNATIONAL (HL7).

PROVIDER EDUCATION & TRAINING:SEPSIS ALLIANCE CONTINUED TO HOST LIVE AND ENDURING COURSES VIA SEPSIS ALLIANCE INSTITUTE UTILIZING A NEW PLATFORM WITH OVER 40,000 TOTAL LEARNERS TO DATE. OFFERINGS INCLUDED 245 TOTAL COURSES, OF WHICH 185 ARE COURSES WITH CNE (CONTINUED NURSING EDUCATION) CREDIT. SEPSIS ALLIANCE ALSO ADDED SEVEN CONTINUING EDUCATION WEBINARS INCLUDING A MATERNAL SEPSIS & EQUITY WEBINAR AND RECORDED OVER 4,300 RESOURCE LIBRARY DOCUMENTS DOWNLOADS IN 2023, WHICH WAS AN INCREASE OF 332% OVER THE PRIOR YEAR. THE ORGANIZATION HOSTED THE FOURTH ANNUAL SEPSIS ALLIANCE SUMMIT AND ANNUAL AMR (ANTIMICROBIAL RESISTANCE) CONFERENCES.

ADVOCACY:SEPSIS ALLIANCE CONTINUED LEGISLATIVE EFFORTS TO CREATE A NATIONAL SEPSIS DATA TRUST AND A NATIONAL SEPSIS ACTION PLAN. ACTIVITIES INCLUDED MEETING WITH MORE THAN TWO DOZEN CONGRESSIONAL OFFICES IN SUPPORT OF THE PASSAGE OF LULU'S LAW AND SUBMITTING LULU'S LAW FUNDING REQUESTS TO CONGRESSIONAL OFFICES IN SUPPORT OF APPROPRIATIONS ($5 MILLION) FOR STATE SEPSIS DATA TRUSTS. SEPSIS ALLIANCE ALSO WORKED WITH ADVOCATES TO HAVE REQUESTS SUBMITTED TO APPROXIMATELY 100 CONGRESSIONAL OFFICES. OTHER ACTIVITIES INCLUDED PLANNING AND EXECUTING AN IN-PERSON LOBBYING EVENT/RECEPTION IN WASHINGTON, D.C. ON WORLD SEPSIS DAY, AND CONTINUED SUPPORT OF SEP-1 (THE SEVERE SEPSIS AND SEPTIC SHOCK MANAGEMENT BUNDLE), A KEY (CONTINUED SCHEDULE O)(CONTINED FROM PART III, 4C) CMS (CENTER FOR MEDICARE AND MEDICAID SERVICES) PROCESS MEASURE THAT DRIVES HOSPITAL FOCUS ON THE EARLY RECOGNITION, DIAGNOSIS AND TREATMENT OF SEPSIS. ADDITIONAL ENDEAVORS INVOLVED AN AMPLIFIED PATIENT ADVOCACY VOICE DURING NATIONAL QUALITY FORUM (NQF) MAP COORDINATING COMMITTEE REVIEW MUC MEETING, WHICH RESULTED IN THE SEP-1 MEASURE'S ENDORSEMENT STATUS BEING UPHELD. THIS WORK CULMINATED IN THE CMS (CENTER FOR MEDICARE AND MEDICAID SERVICES) ANNOUNCEMENT THAT SEP-1 WILL BE INCLUDED IN THE VBP (VALUE BASED PURCHASING) PROGRAM BEGINNING IN THE FY2026 PROGRAM YEAR.SEPSIS ALLIANCE REMAINED AN ACTIVE PARTICIPANT IN AMR (ANTIMICROBIAL RESISTANCE) COALITIONS, PROVIDING INFORMATION AND TALKING POINTS ON SEPSIS TO MEMBERS OF CONGRESS AHEAD OF AMR-RELATED HEARINGS TO ENCOURAGE DISCUSSION OF SEPSIS IN THE CONTEXT OF AMR. PARTICIPATION ALSO INCLUDED IN AN IN-PERSON AMR/PASTEUR ADVOCACY DAY, ORGANIZED BY IDSA (INFECTIOUS DISEASES SOCIETY OF AMERICA) AND OTHER LEADERS IN THE AMR SPACE, IN WASHINGTON D.C. ON SEPTEMBER 12, 2023.SEPSIS ALLIANCE CONTINUED TO FOCUS ON SEPSIS AWARENESS MONTH A SEPSIS ALLIANCE INITIATED OBSERVANCE THAT DRIVES ENGAGEMENT ON SEPSIS. ACCOMPLISHMENTS INCLUDED COMPLETION OF THREE ADVOCACY TRAINING WEBINARS THE APPROPRIATIONS PROCESS, SEPSIS AWARENESS MONTH ENGAGEMENT, AND SEPSIS AND ANTIMICROBIAL RESISTANCE. ADDITIONAL INVOLVEMENT INCLUDED WORK ALONGSIDE PARTNERS AT CDC TO CHAMPION ITS ROLLOUT OF THE SEPSIS CORE ELEMENTS PROGRAM WHICH OUTLINES STRUCTURAL AND PROCEDURAL COMPONENTS THAT ARE ASSOCIATED WITH THE MULTIDISCIPLINARY EXPERTISE REQUIRED TO SUPPORT THE CARE OF PATIENTS WITH SEPSIS.