Hairy Cell Leukemia Foundation

Organization Overview

Hairy Cell Leukemia Foundation is located in New York, NY. The organization was established in 1985. According to its NTEE Classification (H30) the organization is classified as: Cancer Research, under the broad grouping of Medical Research and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Hairy Cell Leukemia Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 12/2021, Hairy Cell Leukemia Foundation generated $2.4m in total revenue. This organization has experienced exceptional growth, as over the past 7 years, it has increased revenue by an average of 18.5% each year . All expenses for the organization totaled $716.7k during the year ending 12/2021. While expenses have increased by 6.9% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.

Since 2015, Hairy Cell Leukemia Foundation has awarded 22 individual grants totaling $2,405,226. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2021

Describe the Organization's Mission:

Part 3 - Line 1

DEDICATED TO IMPROVING OUTCOMES FOR PATIENTS BY ADVANCING RESEARCH INTO THE CAUSES AND TREATMENT OF HAIRY CELL LEUKEMIA, AS WELL AS EDUCATIONAL RESOURCES AND COMFORT.

Describe the Organization's Program Activity:

Part 3 - Line 4a

GRANTS TO THE OHIO STATE UNIVERSITY FOR REGISTRY IMPLEMENTATION AND MAINTENANCE, DATA ENTRY, TRAINING AND SUPPORT OF NEW SITES, AND PROTOCOL REVIEW AND ASSISTANCE; AND GRANTS TO LOCAL SITES FOR REGISTRY IMPLEMENTATION AND DATA ENTRY. FACILITATION OF SCIENTIFIC REVIEW AND APPROVAL OF REQUESTS FOR REGISTRY DATA. ADMINISTRATIVE AND TECHNICAL SUPPORT IN PREPARING AND SUBMITTING FOR PUBLICATION MANUSCRIPTS RELATED TO REGISTRY DATA USE.


GRANT AWARDS TO INVESTIGATORS PURSUING RESEARCH IN HAIRY CELL LEUKEMIA. ADMINISTRATIVE AND TECHNICAL SUPPORT TO INVESTIGATORS. EXTERNAL COMMUNICATION OF RESEARCH AND NEW PUBLICATIONS.


ANNUAL CONFERENCE EACH FALL FOR DOCTORS AND WEBINARS, AS WELL AS EDUCATIONAL WEBINARS AND FORUMS FOR PATIENTS THROUGHOUT THE YEAR. FACILITATION OF REGIONAL SUPPORT NETWORKS FOR PATIENTS. RESPONDING TO PATIENT INQUIRIES AND REFERRALS TO HCL CENTERS OF EXCELLENCE. FACILITATION OF SCIENTIFIC ADVISORY GROUPS AND PEER-TO-PEER DOCTOR SUPPORT. ADMINISTRATIVE, EDITORIAL AND TECHNICAL SUPPORT IN THE PREPARATION AND SUBMISSION OF RELEVANT MANUSCRIPTS.


Get More from Intellispect for FreeCreate a free account to get more data, nonprofit salaries, advanced search and more.

Board, Officers & Key Employees

Name (title)Compensation
Anna Lambertson
Executive Director
$122,000
Kenneth Jensen
Treasurer
$0
Brian Friedman
Vice President
$0
Michael Margolin MD
Vice President
$0
Marc Stadtmauer
President
$0
Adi Weber
Secretary
$0

Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$0
Fundraising events$0
Related organizations$0
Government grants $0
All other contributions, gifts, grants, and similar amounts not included above$2,371,903
Noncash contributions included in lines 1a–1f $255,462
Total Revenue from Contributions, Gifts, Grants & Similar$2,371,903
Total Program Service Revenue$0
Investment income $533
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $0
Net Income from Fundraising Events $0
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $2,372,436

Grants Awarded

Over the last fiscal year, Hairy Cell Leukemia Foundation has awarded $437,088 in support to 5 organizations.

Grant RecipientAmount

LEUKEMIA & LYMPHOMA SOCIETY

Org PageRecipient Profile

Rye Brook, NY

PURPOSE: Research Grant

$156,250

MEMORIAL SLOAN KETTERING CANCER RESEARCH

Org PageRecipient Profile

New York, NY

PURPOSE: Research Grant

$156,250

UNIVERSITY OF ROCHESTER

Org PageRecipient Profile

Rochester, NY

PURPOSE: Research Grant

$50,000

THE OHIO STATE UNIVERSITY

Org PageRecipient Profile

Columbus, OH

PURPOSE: Research grant

$43,338

CASE WESTERN RESERVE UNIVERSITY

Org PageRecipient Profile

Cleveland, OH

PURPOSE: Research grant

$31,250
View Grant Profile

Grants Recieved

Over the last fiscal year, we have identified 6 grants that Hairy Cell Leukemia Foundation has recieved totaling $1,355,570.

Awarding OrganizationAmount
Fidelity Investments Charitable Gift Fund

Boston, MA

PURPOSE: For grant recipient's exempt purposes

$1,022,350
Sass Foundation For Medical Research Inc

Roslyn, NY

PURPOSE: RESEARCH AND EDUCATION - TO FUND RESEARCH PROJECTS TO COMBAT CANCER AND OTHER RELATED DISEASES

$289,196
Jewish Community Foundation Of Greater Metrowest Nj

Whippany, NJ

PURPOSE: General Charitable Purposes

$30,250
Network For Good Inc

Washington, DC

PURPOSE: Unrestricted

$6,690
Network For Good Inc

Washington, DC

PURPOSE: Unrestricted

$6,690
Amazonsmile Foundation

Seattle, WA

PURPOSE: GENERAL SUPPORT

$394
View Grant Recipient Profile

Create an account to unlock the data you need.

or