Eb Research Partnership Inc

Organization Overview

Eb Research Partnership Inc is located in New York, NY. The organization was established in 2011. According to its NTEE Classification (G80) the organization is classified as: Specifically Named Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 12/2021, Eb Research Partnership Inc employed 5 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Eb Research Partnership Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 12/2021, Eb Research Partnership Inc generated $7.7m in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 6.2% each year. All expenses for the organization totaled $4.1m during the year ending 12/2021. While expenses have increased by 7.8% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.

Since 2015, Eb Research Partnership Inc has awarded 71 individual grants totaling $17,125,404. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2021

Describe the Organization's Mission:

Part 3 - Line 1

TO FUND RESEARCH FOR TREATMENTS AND A CURE FOR EPIDERMOLYSIS BULLOSA.

Describe the Organization's Program Activity:

Part 3 - Line 4a

GRANTS AND MONEY AWARDED FOR FURTHER RESEARCH. EB RESEARCH PARTNERSHIP FUNDS THE MOST PROMISING, INNOVATIVE AND POTENTIALLY COMMERCIALLY VIABLE TREATMENTS AND POTENTIAL CURES FOR EB. OUR RESEARCH GRANTS INCORPORATE ADVANCES THROUGH THE FIELD OF BIOMEDICINE FOR BETTER TREATMENTS FOR ALL EB SUBTYPES. OUR SCIENTIFIC ADVISORY BOARD REVIEWS ALL GRANT APPLICATIONS SO THAT WE ARE ASSURED THAT GRANTS ARE RELEVANT, INNOVATIVE AND COULD MEANINGFULLY IMPROVE THE QUALITY OF LIFE FOR THOSE LIVING WITH EB.


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Board, Officers & Key Employees

Name (title)Compensation
Michael Patrick Hund
CEO
$343,677
Donna Whiffin
Executive Director
$52,774
Jill Vedder
Vice Chairman
$0
Alexander J Silver
Chairman
$0
Jamie G Silver
Secretary
$0
Edward Grossmann
Treasurer
$0

Outside Vendors & Contractors

Vendor Name (Service)Compensation
Rose Group Park Avenue Llc
Catering And Event Space
$224,947
Wnp Consultingwhitney Pollack
Management And Development Consulting
$137,853
View All Vendors

Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$0
Fundraising events$2,701,283
Related organizations$0
Government grants $0
All other contributions, gifts, grants, and similar amounts not included above$4,475,969
Noncash contributions included in lines 1a–1f $1,537,362
Total Revenue from Contributions, Gifts, Grants & Similar$7,177,252
Total Program Service Revenue$250,000
Investment income $9,574
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $0
Net Income from Fundraising Events -$167,607
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $7,736,054

Grants Awarded

Over the last fiscal year, Eb Research Partnership Inc has awarded $1,987,105 in support to 8 organizations.

Grant RecipientAmount

STANFORD UNIVERSITY

Org PageRecipient Profile

Redwood City, CA

PURPOSE: TO FUND RESEARCH TO FIND A CURE FOR EB

$1,527,767

UNIVERSITY OF COLORADO

Org PageRecipient Profile

Denver, CO

PURPOSE: TO FUND RESEARCH TO FIND A CURE FOR EB

$264,702

THOMAS JEFFERSON UNIVERSITY

Org PageRecipient Profile

Philadelphia, PA

PURPOSE: TO FUND RESEARCH TO FIND A CURE FOR EB

$79,527

CINCINNATI CHILDREN'S HOSPITAL MEDICAL CENTER

Org PageRecipient Profile

Cincinnati, OH

PURPOSE: TO FUND RESEARCH TO FIND A CURE FOR EB

$43,296

CENTRE FOR HUMAN GENETICS

Org PageRecipient Profile

Cambridge, MA

PURPOSE: TO FUND RESEARCH TO FIND A CURE FOR EB

$31,520

CHILDREN'S HOSPITAL OF PHILADELPHIA

Org PageRecipient Profile

Philadelphia, PA

PURPOSE: TO FUND RESEARCH TO FIND A CURE FOR EB

$24,982
View Grant Profile

Grants Recieved

Over the last fiscal year, we have identified 1 grants that Eb Research Partnership Inc has recieved totaling $50,000.

Awarding OrganizationAmount
Shinemaker Foundation

Mill Valley, CA

PURPOSE: GENERAL DONATION TO PUBLIC CHARITY

$50,000
View Grant Recipient Profile

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