Pacs1 Syndrome Research Foundation
- Assets
- $492.2k
- Revenue
- $404.7k
- Investments
- $0.0
- Employees
- 0
- Location
- Old Greenwich, CT
- Founding
- 03/2018
- Data as of
- 12/2022
- EIN
- 82-6460046
Organization Overview
Pacs1 Syndrome Research Foundation is located in Old Greenwich, CT. The organization was established in 2018. According to its NTEE Classification (G20) the organization is classified as: Birth Defects & Genetic Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Pacs1 Syndrome Research Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2022, Pacs1 Syndrome Research Foundation generated $404.7k in total revenue. This represents relatively stable growth, over the past 6 years the organization has increased revenue by an average of 5.7% each year. All expenses for the organization totaled $488.3k during the year ending 12/2022. While expenses have increased by 12.4% per year over the past 6 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Since 2017, Pacs1 Syndrome Research Foundation has awarded 13 individual grants totaling $830,778. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990PF
Mission & Program ActivityExcerpts From the 990PF Filing
TAX YEAR
2022
Describe the Organization's Program Activity:
Part 3 - Line 4a
HITGEN PHARMACEUTICALS: DEL LIBRARY SCREEN TO FIND POTENTIAL BINDING PARTNER/THERAPUTIC TARGETS FOR PACS1 SYNDROME.
UNIVERSITY OF PITTSBURGH: FURTHERANCE OF PACS1 SYNDROME STUDIES
SCIENTIFIC CONSULTING FOR MEDICAL RESEARCH TO FIND A CURE FOR PACS1 SYNDROME
SCIENTIFIC CONFERENCE TO DISCUSS RESEARCH TO FIND A CURE FOR PACS1 SYNDROME
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Taruna Reddy Trustee | 5 | $0 | |
Nicolas Vassalli Trustee | 1 | $0 | |
Amy Cram Trustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Contributions, Gifts, Grants & Similar | $404,738 |
| Interest on Savings | $0 |
| Dividends & Interest | $0 |
| Net Rental Income | $0 |
| Net Gain on Sale of Assets | $0 |
| Capital Gain Net Income | $0 |
| Net ST Capital Gain | $0 |
| Income Modifications | $0 |
| Profit on Inventory Sales | $0 |
| Other Income | $0 |
| Total Revenue | $404,738 |
| Statement of Expenses | |
|---|---|
| Compensation of officers, directors, trustees, etc | $0 |
| Other employee salaries and wages | $0 |
| Pension plans, employee benefits | $0 |
| Interest | $0 |
| Taxes | $0 |
| Depreciation | $0 |
| Occupancy | $0 |
| Travel, conferences, and meetings | $26,057 |
| Printing and publications | $0 |
| Other expenses | $10,140 |
| Total operating and administrative expenses | $159,044 |
| Contributions, gifts, grants paid | $329,280 |
| Total expenses and disbursements | $488,324 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $492,202 |
| Savings and temporary cash investments | $0 |
| Net Accounts receivable | $0 |
| Net Pledges Receivable | $0 |
| Grants receivable | $0 |
| Receivables from Officers, Directors, or Controlling Persons | $0 |
| Net other notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Investments - land, buildings, equipment | $0 |
| Investments—mortgage loans | $0 |
| Investments—other | $0 |
| Net Land, buildings, and equipment | $0 |
| Other assets | $0 |
| Total assets | $492,202 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Mortgages and other notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $0 |
Grants Awarded
Over the last fiscal year, Pacs1 Syndrome Research Foundation has awarded $329,280 in support to 6 organizations.
| Grant Recipient | Amount |
|---|---|
HITGEN PHARMACEUTICALS INC PURPOSE: DEL LIBRARY SCREEN TO FIND POTENTIAL BINDING PARTNER / THERAPEUTIC TARGETS FOR PACS1 SYNDROME. | $200,000 |
UNIVERSITY OF PITTSBURGH - OF THE COMMONWEALTH SYSTEM OF HIGHER EDUCATION PURPOSE: TO FURTHER PACS1 SYNDROME RESEARCH | $65,000 |
NORTHWESTERN UNIVERSITY PURPOSE: GRANT TO UNCOVER BIOMARKERS OF PACS1 SYNDROME, RESULTS TO BE SHARED VIA AN OPEN-SOURCE DATA-SHARING PLATFORM WITH PACS1 FOUNDATION RESEARCH PARTNERS. | $25,000 |
ACROSS HEALTHCARE PURPOSE: PACS1 SYNDROME RESEARCH FOUNDATION OWNED PATIENT DATA COLLECTION PLATFORM TO SUPPORT PACS1 FOUNDATION RESEAERCH PARTNERS IN FURTHERING RESEARCH, DRUG DEVELOPMENT AND CLINICAL TRIAL DESIGN. | $20,000 |
WICELL RESEARCH INSTITUTE INC PURPOSE: PAYMENT TO MANUFACTURE STEM CELLS OF PACS1 PATIENTS TO SEND TO RESEARCH LABS FOR VARIOUS TESTING. | $4,045 |
BROAD INSTITUTE PURPOSE: CELL-BASED SCREEING STUDY USING PATIENT FIBROBLASTS. | $15,235 |