Crush Rett Syndrome
- Assets
- $22.1k
- Revenue
- $218.0k
- Investments
- $0.0
- Employees
- 0
- Location
- Gilbert, AZ
- Founding
- 04/2016
- Data as of
- 12/2023
- EIN
- 81-1809941
Organization Overview
Crush Rett Syndrome is located in Gilbert, AZ. The organization was established in 2016. According to its NTEE Classification (E12) the organization is classified as: Fund Raising & Fund Distribution, under the broad grouping of Health Care and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Crush Rett Syndrome is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2023, Crush Rett Syndrome generated $218.0k in total revenue. This organization has experienced exceptional growth, as over the past 6 years, it has increased revenue by an average of 15.1% each year . All expenses for the organization totaled $201.5k during the year ending 12/2023. While expenses have increased by 17.4% per year over the past 6 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
THE CRUSH RETT SYNDROME MISSION IS TO RAISE AWARENESS AND FUNDING TO ULTIMATELY FIND A CURE FOR RETT SYNDROME.
Describe the Organization's Program Activity:
Part 3 - Line 4a
IN 2023, WE SUCCESSFULLY RAISED FUNDS THROUGH OUR FUNDRAISING EVENTS AND OUR SOCIAL MEDIA AWARENESS EFFORTS. WE CONTINUED TO KEEP CONTROL OF OUR OPERATING EXPENSES BY HAVING EFFECTIVE FUNDRAISERS THAT REQUIRE MINIMAL UPFRONT COSTS AND RISKS. AS A RESULT, WE WERE ABLE TO USE MORE FUNDS TO SUPPORT EXCITING RESEARCH ON WAYS TO CURE RETT SYNDROME. WE PROVIDED 200,000 TO SUPPORT GENE THERAPY AND RNA EDITING RESEARCH AGAIN THIS YEAR. WE ARE EXCITED AT THE NEWS THAT THE FIRST TWO HUMAN CLINICAL TRIALS FOR A POTENTIAL GENE THERAPY CURE HAVE BEEN APPROVED WITH SEVERAL FEMALE ADULTS AND ADOLESCENTS DOSED. THE PRELIMINARY RESULTS SHOW VERY GOOD TOLERANCE WITH NO REPORTED INDICATIONS OF SAFETY CONCERNS. ONE OF THE TRIALS HAS REPORTED SOME SIGNIFICANT IMPROVEMENTS IN FINE AND GROSS MOTOR FUNCTION IN THEIR ADULT TRIAL PARTICIPANTS.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Allison Gray President | OfficerTrustee | 1 | $0 |
Katherine Thompson Director | Trustee | 1 | $0 |
Abbie Moseley Director Thru 12/2023 | Trustee | 1 | $0 |
Patricia Gray Secretary | Officer | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $217,991 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $217,991 |
| Total Program Service Revenue | $0 |
| Investment income | $0 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $217,991 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $200,000 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $875 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $0 |
| Advertising and promotion | $0 |
| Office expenses | $50 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $529 |
| All other expenses | $0 |
| Total functional expenses | $201,454 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $22,111 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $22,111 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $0 |
| Net assets without donor restrictions | $22,111 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $22,111 |