Global Down Syndrome Foundation
- Assets
- $8.6m
- Revenue
- $4.3m
- Investments
- $0.0
- Employees
- 17
- Location
- Denver, CO
- Founding
- 12/2009
- Data as of
- 07/2024
- EIN
- 26-4431001
Organization Overview
Global Down Syndrome Foundation is located in Denver, CO. The organization was established in 2009. According to its NTEE Classification (E12) the organization is classified as: Fund Raising & Fund Distribution, under the broad grouping of Health Care and related organizations. As of 07/2024, Global Down Syndrome Foundation employed 17 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Global Down Syndrome Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 07/2024, Global Down Syndrome Foundation generated $4.3m in total revenue. This represents relatively stable growth, over the past 9 years the organization has increased revenue by an average of 1.5% each year. All expenses for the organization totaled $4.7m during the year ending 07/2024. While expenses have increased by 3.1% per year over the past 9 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Since 2015, Global Down Syndrome Foundation has awarded 118 individual grants totaling $6,437,563. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2024
Describe the Organization's Mission:
Part 3 - Line 1
TO SIGNIFICANTLY IMPROVE THE LIVES OF PEOPLE WITH DOWN SYNDROME THROUGH RESEARCH, MEDICAL CARE, EDUCATION, AND ADVOCACY.
Describe the Organization's Program Activity:
Part 3 - Line 4a
RESEARCH AND CLINICAL CARE: DOWN SYNDROME IS WHEN A PERSON IS BORN WITH THREE COPIES OF CHROMOSOME 21 INSTEAD OF THE USUAL TWO. BECAUSE OF GLOBAL'S WORK, SCIENTISTS ARE DEVELOPING BETTER METHODS TO UNDERSTAND HOW THE TRIPLICATION LEADS TO A HIGHER INCIDENCE OF CERTAIN DISEASES AND PROTECTS THOSE SAME INDIVIDUALS FROM OTHER DISEASES. THEY DO SO IN THE FOLLOWING WAYS: - CREATING AND UPDATING MEDICAL GUIDELINES BY CONDUCTING RESEARCH ON HOW PEOPLE WITH DOWN SYNDROME ARE TREATED FOR CERTAIN CONDITIONS OR DISEASES AND WHAT INTERVENTIONS OR MEDICATIONS WORK FOR PEOPLE WITH DOWN SYNDROME. - CONDUCTING MEDICAL OR CLINICAL RESEARCH TO IMPROVE THE HEALTH AND LIFESPAN OF PEOPLE WITH DOWN SYNDROME, ESPECIALLY IN AREAS WHERE THEY ARE HIGHLY PREDISPOSED TO DISEASE (E.G. ALZHEIMER'S DISEASE AND AUTOIMMUNE CONDITIONS) AND HIGHLY PROTECTED (E.G. SOLID TUMORS AND CERTAIN TYPES OF HEART ATTACK AND STROKE.) - CONDUCTING BASIC OR LABORATORY RESEARCH IN CONJUNCTION WITH MEDICAL OR CLINICAL RESEARCH. - EXPANDING AWARENESS THROUGH EDUCATION OUTREACH, GOVERNMENT ADVOCACY, AND PUBLIC RELATIONS WORK IN COORDINATION WITH AND FOR THE CRNIC INSTITUTE, GLOBAL'S OTHER AFFILIATES, AND THE ENTIRE DOWN SYNDROME COMMUNITY.
OUTREACH, EDUCATION, AND CONFERENCES: GLOBAL OFFERS A VARIETY OF RESEARCH AND MEDICAL OUTREACH MEETINGS, WORKSHOPS, WEBINARS, EDUCATIONAL PROGRAMS, AND CLASSES DESIGNED TO SUPPORT AND IMPROVE THE LIVES OF GLOBAL 'S SELF- ADVOCATES, FAMILY MEMBERS AND PROFESSIONALS SERVING OUR COMMUNITY. MANY OF OUR EDUCATIONAL PROGRAMS INVOLVE BUILDING SKILLS, BUILDING SELF-ESTEEM AND FOSTERING INDEPENDENCE.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Michelle Sie Whitten President An | OfficerTrustee | 20 | $129,332 |
John J Sie Chair | OfficerTrustee | 1.5 | $0 |
Anna M Sie Director | Trustee | 1.5 | $0 |
Mary Beth Wallingford Treasurer | OfficerTrustee | 3 | $0 |
Richard Waysdorf Secretary | OfficerTrustee | 1 | $0 |
John C Mcginley Director | Trustee | 1 | $0 |
Outside Vendors & Contractors
| Vendor Name (Service) | Service Year | Compensation |
|---|---|---|
Gotham Artists Talent Services Talent Services | 7/30/24 | $351,500 |
Clifton Larson Allen Lllp Accounting | 7/30/24 | $233,558 |
Williams & Jensen Pllc Advocacy | 7/30/24 | $112,000 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $69,592 |
| Fundraising events | $0 |
| Related organizations | $1,103,159 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $2,911,491 |
| Noncash contributions included in lines 1a–1f | $88,370 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $4,084,242 |
| Total Program Service Revenue | $1,500 |
| Investment income | $228,054 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $4,313,796 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $662,014 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $10,000 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $315,883 |
| Compensation of current officers, directors, key employees. | $44,956 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $1,534,651 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $113,584 |
| Payroll taxes | $55,459 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $37,099 |
| Fees for services: Accounting | $0 |
| Fees for services: Lobbying | $198,000 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $5,329 |
| Fees for services: Other | $573,292 |
| Advertising and promotion | $0 |
| Office expenses | $235,123 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $163,840 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $149,190 |
| Insurance | $0 |
| All other expenses | $0 |
| Total functional expenses | $4,670,703 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $406,196 |
| Savings and temporary cash investments | $3,566,199 |
| Pledges and grants receivable | $387,827 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $15,071 |
| Prepaid expenses and deferred charges | $122,115 |
| Net Land, buildings, and equipment | $1,418,209 |
| Investments—publicly traded securities | $2,730,395 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $8,646,012 |
| Accounts payable and accrued expenses | $260,405 |
| Grants payable | $565,000 |
| Deferred revenue | $57,538 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $513,360 |
| Total liabilities | $1,396,303 |
| Net assets without donor restrictions | $5,890,986 |
| Net assets with donor restrictions | $1,358,723 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $8,646,012 |
Grants Awarded
Over the last fiscal year, Global Down Syndrome Foundation has awarded $545,000 in support to 7 organizations.
| Grant Recipient | Amount |
|---|---|
DOWN SYNDROME ASSOC OF CENTRAL FL PURPOSE: EDUCATION | $10,000 |
UNIVERSITY OF COLORADO FOUNDATION PURPOSE: EDUCATION | $500,000 |
DOWN SYNDROME INDIANA PURPOSE: EDUCATION | $7,000 |
DOWN SYNDROME ASSOC OF MIDDLE TN PURPOSE: EDUCATION | $7,000 |
DOWN SYNDROME ASSOC OF GREATER ST PURPOSE: EDUCATION | $7,000 |
DOWN SYNDROME ALABAMA PURPOSE: EDUCATION | $7,000 |