Charge Syndrome Foundation Inc
- Assets
- $1.6m
- Revenue
- $1.1m
- Investments
- $1.2m
- Employees
- 5
- Location
- Buffalo Grove, IL
- Founding
- 08/1993
- Data as of
- 12/2023
- EIN
- 43-1642150
Organization Overview
Charge Syndrome Foundation Inc is located in Buffalo Grove, IL. The organization was established in 1993. According to its NTEE Classification (T70) the organization is classified as: Federated Giving Programs, under the broad grouping of Philanthropy, Voluntarism & Grantmaking Foundations and related organizations. As of 12/2023, Charge Syndrome Foundation Inc employed 5 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Charge Syndrome Foundation Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2023, Charge Syndrome Foundation Inc generated $1.1m in total revenue. This represents relatively stable growth, over the past 9 years the organization has increased revenue by an average of 5.5% each year. All expenses for the organization totaled $922.7k during the year ending 12/2023. While expenses have increased by 3.3% per year over the past 9 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
SUPPORT INDIVIDUALS WITH CHARGE SYNDROME THROUGH RESEARCH, OUTREACH, EDUCATION, AND CONFERENCES.
Describe the Organization's Program Activity:
Part 3 - Line 4a
PROVIDE INFORMATION ABOUT CHARGE SYNDROME THROUGH PUBLICATION; PROVIDE SUPPORT TO FAMILIES WITH AN INDIVIDUAL WITH CHARGE; PROVIDE BIENNIAL CONFERENCES; SUPPORT RESEARCH RELATED TO CHARGE SYNDROME.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
David Wolfe President | OfficerTrustee | 20 | $0 |
Neal Stanger Vice President | OfficerTrustee | 15 | $0 |
Joanne Lent Secretary | OfficerTrustee | 10 | $0 |
Amrit Mehta Treasurer | OfficerTrustee | 10 | $0 |
Ben Daigle Director | Trustee | 5 | $0 |
Minnie Lee Lambert Director | Trustee | 8 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $36,420 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $379,326 |
| Noncash contributions included in lines 1a–1f | $2,118 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $415,746 |
| Total Program Service Revenue | $484,545 |
| Investment income | $36,442 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $1,091 |
| Net Income from Fundraising Events | $189,646 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $1,127,763 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $9,053 |
| Grants and other assistance to domestic individuals. | $57,392 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $123,462 |
| Compensation of current officers, directors, key employees. | $18,519 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $95,327 |
| Pension plan accruals and contributions | $8,413 |
| Other employee benefits | $0 |
| Payroll taxes | $17,173 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $0 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $358 |
| Fees for services: Other | $22,532 |
| Advertising and promotion | $0 |
| Office expenses | $2,349 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $550,491 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $9,458 |
| All other expenses | $6,317 |
| Total functional expenses | $922,660 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $336,554 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $51,860 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $1,203,609 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $1,592,023 |
| Accounts payable and accrued expenses | $9,274 |
| Grants payable | $0 |
| Deferred revenue | $1,606 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $10,880 |
| Net assets without donor restrictions | $1,270,408 |
| Net assets with donor restrictions | $310,735 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $1,592,023 |