Gorlin Syndrome Alliance

Organization Overview

Gorlin Syndrome Alliance is located in Reading, PA. The organization was established in 2000. According to its NTEE Classification (G80) the organization is classified as: Specifically Named Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 12/2021, Gorlin Syndrome Alliance employed 3 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Gorlin Syndrome Alliance is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 12/2021, Gorlin Syndrome Alliance generated $361.1k in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 5.5% each year. All expenses for the organization totaled $363.5k during the year ending 12/2021. While expenses have increased by 11.2% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.

Mission & Program ActivityExcerpts From the 990PF Filing

TAX YEAR

2021

Describe the Organization's Program Activity:

Part 3 - Line 4a

IN OCT 2021 GSA CONVENED A PATIENT-FOCUSED DRUG DEV MTG TO EDUCATE THE FDA AND OTHERS ON HOW GORLIN SYNDROME IMPACTS THE LIVES OF THOSE IMPACTED BY THE SY


GSA MAINTAINS AND VALIDATES A PATIENT DATABASE BY MAKING INDIVIDUAL CONTACTS WITH THOSE LISTED


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Financial Statements

Statement of Revenue
Contributions, Gifts, Grants & Similar $361,122
Interest on Savings $0
Dividends & Interest $0
Net Rental Income$0
Net Gain on Sale of Assets $0
Capital Gain Net Income $0
Net ST Capital Gain $0
Income Modifications $0
Profit on Inventory Sales $0
Other Income $0
Total Revenue $361,122

Grants Awarded

Over the last fiscal year, Gorlin Syndrome Alliance has awarded $29,353 in support to 3 organizations.

Grant RecipientAmount

SOCIETY FOR PEDIATRIC DERMATOLOGY

Org PageRecipient Profile

Indianapolis, IN

PURPOSE: RESEARCH

$15,000

Damascus, MD

PURPOSE: RESEARCH

$9,353

UNIVERSITY OF ILLINOIS

PURPOSE: RESEARCH

$5,000
View Grant Profile

Grants Recieved

Over the last fiscal year, we have identified 7 grants that Gorlin Syndrome Alliance has recieved totaling $59,108.

Awarding OrganizationAmount
Kathleen L And Michael J Rainen Family Foundation

Prairie Village, KS

PURPOSE: CHARITABLE

$20,000
$10,000
The Howard Rubenstein Family Foundation Inc

New York, NY

PURPOSE: SUPPORT FOR MEDICAL RESEARCH

$10,000
Jewish Communal Fund

New York, NY

PURPOSE: GENERAL SUPPORT

$10,000
Network For Good Inc

Washington, DC

PURPOSE: UNRESTRICTED

$8,576
Amazonsmile Foundation

Seattle, WA

PURPOSE: GENERAL SUPPORT

$432
View Grant Recipient Profile

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