Global Genes

Organization Overview

Global Genes is located in Aliso Viejo, CA. The organization was established in 2009. According to its NTEE Classification (G12) the organization is classified as: Fund Raising & Fund Distribution, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 12/2021, Global Genes employed 31 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Global Genes is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 12/2021, Global Genes generated $5.9m in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 8.2% each year. All expenses for the organization totaled $5.6m during the year ending 12/2021. While expenses have increased by 8.5% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.

Since 2015, Global Genes has awarded 118 individual grants totaling $1,664,042. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2021

Describe the Organization's Mission:

Part 3 - Line 1

INCREASE PUBLIC AWARENESS FOR RARE DISEASE AND GLOBALLY CONNECT, EMPOWER AND EDUCATE INDIVIDUALS AND RARE DISEASE FOUNDATIONS IN PERSON, PRINT AND ONLINE.

Describe the Organization's Program Activity:

Part 3 - Line 4a

OUTREACH SERVICESPROVIDE CAPACITY BUILDING EDUCATIONAL AND CONNECTIVE NETWORKING OPPORTUNITIES TO PATIENTS, CAREGIVERS AND DISEASE FOUNDATIONS VIA IN PERSON MEETINGS, PRINT AND ONLINE TOOLS AND ONLINE EDUCATION.


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Outside Vendors & Contractors

Vendor Name (Service)Compensation
Rithm Health
Consulting Services
$360,000
Levine Media Group
Editorial Services
$139,035
View All Vendors

Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$0
Fundraising events$0
Related organizations$0
Government grants $0
All other contributions, gifts, grants, and similar amounts not included above$4,169,975
Noncash contributions included in lines 1a–1f $30,000
Total Revenue from Contributions, Gifts, Grants & Similar$4,169,975
Total Program Service Revenue$1,715,904
Investment income $940
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales -$2,822
Net Income from Fundraising Events $0
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $5,883,997

Grants Awarded

Over the last fiscal year, Global Genes has awarded $251,155 in support to 18 organizations.

Grant RecipientAmount

GLOBAL PEDIATRIC MDS INITIATIVE

Org PageRecipient Profile

Albany, NY

PURPOSE: FAIR IMPACT GRANT

$58,000

FOUNDATION FOR SARCOIDOSIS RESEARCH

Org PageRecipient Profile

Chicago, IL

PURPOSE: 2021 RARE HEALTH EQUITY IMPACT GRANT

$15,000

Charlottesville, VA

PURPOSE: 2021 RARE HEALTH EQUITY IMPACT GRANT

$15,000

THE AKARI FOUNDATION

Org PageRecipient Profile

San Antonio, TX

PURPOSE: 2021 RARE HEALTH EQUITY IMPACT GRANT

$15,000

SICKLE CELL ASSOC OF TEXAS MARC THOMAS FN

Org PageRecipient Profile

Austin, TX

PURPOSE: 2021 RARE HEALTH EQUITY IMPACT GRANT

$15,000

CFC INTERNATIONAL

Org PageRecipient Profile

Austin, TX

PURPOSE: 2021 RARE HEALTH EQUITY IMPACT GRANT

$15,000
View Grant Profile

Grants Recieved

Over the last fiscal year, we have identified 4 grants that Global Genes has recieved totaling $234,526.

Awarding OrganizationAmount
Silicon Valley Community Foundation

Mountain View, CA

PURPOSE: Health

$225,000
Paypal Charitable Giving Fund

Washington, DC

PURPOSE: General Support

$5,934
Gordon Croft Foundation Inc

Towson, MD

PURPOSE: PAYMENTS FOR COMMUNITY IMPROVEMENTS

$3,000
Amazonsmile Foundation

Seattle, WA

PURPOSE: GENERAL SUPPORT

$592
View Grant Recipient Profile

Endowment Analysis

Beg. Balance$444,445
Net Contributions$340,911
Other Expense$392,669
Grants$112,187
Ending Balance$280,500

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