Global Genes
- Assets
- $2.1m
- Revenue
- $8.5m
- Investments
- $0.0
- Employees
- 41
- Location
- Washington, DC
- Founding
- 01/2009
- Data as of
- 12/2023
- EIN
- 26-3331487
Organization Overview
Global Genes is located in Washington, DC. The organization was established in 2009. According to its NTEE Classification (G12) the organization is classified as: Fund Raising & Fund Distribution, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 12/2023, Global Genes employed 41 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Global Genes is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2023, Global Genes generated $8.5m in total revenue. This organization has experienced exceptional growth, as over the past 9 years, it has increased revenue by an average of 10.7% each year . All expenses for the organization totaled $8.6m during the year ending 12/2023. While expenses have increased by 11.8% per year over the past 9 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Since 2015, Global Genes has awarded 160 individual grants totaling $2,126,553. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
GLOBAL GENES STRIVES TO CONNECT, EMPOWER AND INSPIRE THE RARE DISEASE COMMUNITY.
Describe the Organization's Program Activity:
Part 3 - Line 4a
GLOBAL GENES' PROGRAMS PROVIDE NEXT-GENERATION PATIENT ADVOCATES WITH A CONTINUUM OF SERVICES TO ACCELERATE THEIR PATH FROM EARLY SUPPORT AND AWARENESS THROUGH RESEARCH READINESS, USING A COLLABORATIVE APPROACH THAT INVOLVES BIOPHARMA, RESEARCHERS AND FUNDERS, WITH DATA AS A CENTRAL CORE. WE AIM TO HAVE A SIGNIFICANT IMPACT ON THE LIVES OF PEOPLE LIVING WITH RARE DISEASES BY BRINGING THE COMMUNITY TOGETHER AROUND OUR THREE PILLARS OF SUPPORT, EDUCATION, AND RESEARCH, WHILE WEAVING HEALTH EQUITY THROUGH ALL OF OUR INITIATIVES TO FOSTER A CULTURE OF INCLUSION. OUR PROGRAMS ARE DESIGNED TO HELP OUR PARTICIPANTS DEVELOP THE SKILLS THEY SEEK TO BUILD ORGANIZATIONS, BECOME RESEARCH READY, AND PURSUE THE DEVELOPMENT OF TREATMENTS.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Nicole R Boice Founder & Chief Mission Officer | OfficerTrustee | 40 | $257,792 |
Betsy Bogard Director | Trustee | 1 | $0 |
Khrystal Davis Director | Trustee | 1 | $0 |
Ilana Fogelman Director | Trustee | 1 | $0 |
Simon Frost CFO | OfficerTrustee | 1 | $0 |
Peter Goodhand Director | Trustee | 1 | $0 |
Outside Vendors & Contractors
| Vendor Name (Service) | Service Year | Compensation |
|---|---|---|
Assured Spc Consulting Services | 12/30/23 | $197,420 |
Adjuvant Partners Llc Consulting Services | 12/30/23 | $180,000 |
Levine Media Group Editorial Services | 12/30/23 | $158,000 |
Msg Consulting Group Llc Consulting Services | 12/30/23 | $155,588 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $6,410,826 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $6,410,826 |
| Total Program Service Revenue | $2,055,089 |
| Investment income | $3,487 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $8,469,402 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $274,880 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $704,930 |
| Compensation of current officers, directors, key employees. | $70,493 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $3,167,908 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $86,928 |
| Payroll taxes | $317,966 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $71,815 |
| Fees for services: Accounting | $99,867 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $0 |
| Advertising and promotion | $0 |
| Office expenses | $18,000 |
| Information technology | $682,559 |
| Royalties | $0 |
| Occupancy | $49,198 |
| Travel | $154,014 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $932,847 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $2,525 |
| Insurance | $23,266 |
| All other expenses | $215,853 |
| Total functional expenses | $8,561,859 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $1,157,502 |
| Savings and temporary cash investments | $251,643 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $466,406 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $194,808 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $28,781 |
| Total assets | $2,099,140 |
| Accounts payable and accrued expenses | $804,996 |
| Grants payable | $0 |
| Deferred revenue | $645,000 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $191,407 |
| Total liabilities | $1,641,403 |
| Net assets without donor restrictions | $457,737 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $2,099,140 |
Grants Awarded
Over the last fiscal year, Global Genes has awarded $241,252 in support to 22 organizations.
| Grant Recipient | Amount |
|---|---|
YELLOW BRICK ROAD PROJECT PURPOSE: MEET-UPS GRANT | $5,100 |
USHER SYNDROME COALITION PURPOSE: MENTAL HEALTH GRANT | $15,000 |
THE RUNX1 RESEARCH PROGRAM PURPOSE: HEALTH EQUITY GRANT | $8,600 |
THE MARFAN FOUNDATION PURPOSE: FAIR GRANT | $15,000 |
THE CUTE SYNDROME FOUNDATION PURPOSE: MENTAL HEALTH GRANT | $14,973 |
TEAM TELOMERE PURPOSE: HEALTH EQUITY GRANT | $8,600 |