Cure Lbsl
- Assets
- $444.9k
- Revenue
- $599.3k
- Investments
- $0.0
- Employees
- 0
- Location
- Arlington, VA
- Founding
- 12/2013
- Data as of
- 12/2021
- EIN
- 46-2829156
Organization Overview
Cure Lbsl is located in Arlington, VA. The organization was established in 2013. According to its NTEE Classification (G12) the organization is classified as: Fund Raising & Fund Distribution, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Cure Lbsl is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Cure Lbsl generated $599.3k in total revenue. This organization has experienced exceptional growth, as over the past 5 years, it has increased revenue by an average of 42.9% each year . All expenses for the organization totaled $414.6k during the year ending 12/2021. While expenses have increased by 40.8% per year over the past 5 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
PROVIDE FUNDING TO RARE DISEASE RESEARCH & SUPPORT AFFECTED FAMILIES
Describe the Organization's Program Activity:
Part 3 - Line 4a
WE PROVIDED $400,010 TO A RESEARCH PROGRAM AT THE KENNEDY KRIEGERINSTITUTE IN BALTIMORE, MARYLAND. THE RESEARCH SEEKS TO CREATE ATREATMENT FOR THE RARE DISEASE, LEUKODYSTROPHY - LBSL. THIS YEARSRESEARCH INCLUDED BUILDING CELLS WITH DISEASE ATTRIBUTES, TESTINGTHERAPEUTICS, AND A NATRUAL HISTORY STUDY WITH A SAMPLE OF KNOWNPATIENTS. MAY NEVER BE READ BY A HUMAN BUT IT IS EXCITING!!!
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Elizabeth A Mcginn Director | OfficerTrustee | 15 | $0 |
Elizabeth Gulugian Board Chair | OfficerTrustee | 5 | $0 |
Morgan Stern Director | Trustee | 1 | $0 |
Chris Gulugian Director | Trustee | 1 | $0 |
Michael Mcginn Director | Trustee | 1 | $0 |
Lance Stern Director | Trustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $599,293 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $599,293 |
| Total Program Service Revenue | $0 |
| Investment income | $0 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $599,293 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $400,000 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $0 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $553 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $0 |
| Advertising and promotion | $2,341 |
| Office expenses | $5,339 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $6,329 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $0 |
| All other expenses | $0 |
| Total functional expenses | $414,562 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $444,924 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $444,924 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $0 |
| Net assets without donor restrictions | $444,924 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $444,924 |
Grants Recieved
Over the last fiscal year, we have identified 4 grants that Cure Lbsl has recieved totaling $659,594.
| Awarding Organization | Amount |
|---|---|
Silicon Valley Community Foundation Mountain View, CA PURPOSE: Health | $600,000 |
Network For Good Inc Washington, DC PURPOSE: UNRESTRICTED | $52,215 |
American Online Giving Foundation Inc Newark, DE PURPOSE: GENERAL SUPPORT | $6,972 |
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $407 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Go2 Foundation For Lung Cancer Washington, DC | $13,060,828 | $13,937,912 |
Townebank Foundation Suffolk, VA | $12,218,911 | $5,948,178 |
Investigative Research Center Inc Arlington, VA | $96,743 | $0 |
Mesothelioma Applied Research Foundation Inc Washington, DC | $9,384,474 | $3,031,525 |
Cool Kids Campaign Foundation Inc Towson, MD | $935,182 | $1,348,951 |
24 Foundation Inc Charlotte, NC | $1,081,885 | $1,362,203 |
Lung Cancer Initiative Raleigh, NC | $1,367,824 | $941,380 |
Shallow Ford Foundation Inc Clemmons, NC | $16,710,912 | $2,245,323 |
Parkinson Foundation Of The National Capital Area Olney, MD | $3,654,969 | $1,520,537 |
Health First Americas Charities Chantilly, VA | $289,925 | $622,332 |
Glut1 Deficiency Foundation Inc Owingsville, KY | $447,949 | $776,976 |
Kendyl And Friends Foundation Inc Burgin, KY | $229,614 | $576,619 |