The Stiff Person Syndrome Research Foundation Inc
- Assets
- $1.0m
- Revenue
- $830.7k
- Investments
- $0.0
- Employees
- 0
- Location
- Bethesda, MD
- Founding
- 11/2019
- Data as of
- 12/2023
- EIN
- 84-2291780
Organization Overview
The Stiff Person Syndrome Research Foundation Inc is located in Bethesda, MD. The organization was established in 2019. According to its NTEE Classification (G12) the organization is classified as: Fund Raising & Fund Distribution, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Stiff Person Syndrome Research Foundation Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2023, Stiff Person Syndrome Research Foundation Inc generated $830.7k in total revenue. All expenses for the organization totaled $227.5k during the year ending 12/2023. While expenses have increased by 38.9% per year over the past 4 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990PF
Mission & Program ActivityExcerpts From the 990PF Filing
TAX YEAR
2023
Describe the Organization's Program Activity:
Part 3 - Line 4a
REGISTRY THE SPS INTERNATIONAL PATIENT REGISTRY & NATURAL HISTORY STUDY PROVIDES RESEARCHERS WITH UNIFORM AND UPDATED DATA FROM SPS PATIENTS
AWARENESS IN 2023 WE RAISED AWARENESS THROUGH OUR COMMUNICATION CHANNELS INCLUDING EMAIL SOCIAL MEDIA AND WEBSITE AND CO-HOSTING AN SPS SYMPOSIUM
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Tara Zier President | 40 | $0 | |
Dan Robson Treasurer Until 1223 | 2 | $0 | |
Carla Robson Secretary Until 1223 | 1 | $0 | |
Jim Weiss Director | 24 | $0 | |
Lara Vujovic Secretary As Of 1223 | 1 | $0 | |
Helena Zec Director | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Contributions, Gifts, Grants & Similar | $827,713 |
| Interest on Savings | $0 |
| Dividends & Interest | $2,974 |
| Net Rental Income | $0 |
| Net Gain on Sale of Assets | $0 |
| Capital Gain Net Income | $0 |
| Net ST Capital Gain | $0 |
| Income Modifications | $0 |
| Profit on Inventory Sales | $0 |
| Other Income | $0 |
| Total Revenue | $830,687 |
| Statement of Expenses | |
|---|---|
| Compensation of officers, directors, trustees, etc | $0 |
| Other employee salaries and wages | $0 |
| Pension plans, employee benefits | $0 |
| Interest | $0 |
| Taxes | $0 |
| Depreciation | $0 |
| Occupancy | $0 |
| Travel, conferences, and meetings | $1,520 |
| Printing and publications | $4,736 |
| Other expenses | $15,755 |
| Total operating and administrative expenses | $227,503 |
| Contributions, gifts, grants paid | $0 |
| Total expenses and disbursements | $227,503 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $978,469 |
| Savings and temporary cash investments | $0 |
| Net Accounts receivable | $21,813 |
| Net Pledges Receivable | $0 |
| Grants receivable | $0 |
| Receivables from Officers, Directors, or Controlling Persons | $0 |
| Net other notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $500 |
| Net Investments - land, buildings, equipment | $0 |
| Investments—mortgage loans | $0 |
| Investments—other | $0 |
| Net Land, buildings, and equipment | $0 |
| Other assets | $207 |
| Total assets | $1,000,989 |
| Accounts payable and accrued expenses | $22,686 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Mortgages and other notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $22,686 |